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Curriculum Update: Patients With Special Challenges and Interventions for Patients with Chronic Care Needs Condell Medical Center EMS System August 2006 Site Code # 10-7200-E1206 Revised by: Sharon Hopkins, RN, BSN EMS Educator Patients With Hearing Impairments • Deafness – partial or complete inability to hear – Conductive problem due to: infection injury earwax – Sensorineural deafness due to: congenital problem, birth injury disease, tumor, viral infection medication-induced aging prolonged exposure to loud noise Patients With Special Challenges - Hearing Impairments • Recognizing patients with hearing loss – Hearing aids – Poor diction – Inability to respond to verbal communication in the absence of direct eye contact – Speaks with different syntax (speech pattern) – Use of sign language Patients With Special Challenges Hearing Impairment • Assessment/management accommodations – Provide pen/paper – Do not shout or exaggerate lip movement – Speak softly into their ear canal – Use pictures or demonstrate procedures – Notify hospital so interpreter is available Patients With Special Challenges Visual Impairment • Etiologies – Injury – Disease – Degeneration of eyeball, optic nerve or nerve pathways – Congenital – Infection (C.M.V.) Patients with Special Challenges Visual Impairment • Central vs peripheral loss – Patients with central loss of vision are usually aware of the condition – Patients with peripheral loss are more difficult to identify until it is well advanced Central loss Peripheral loss Patients With Special Challenges Visual Impairment • Assessment/management accommodations – Retrieve visual aids/glasses – Explain/demonstrate all procedures – Allow guide dog to accompany patient – Notify hospital of patient’s special needs – Carefully lead patient when ambulatory • patient holds your arm • call out obstructions, steps and turns ahead of time Etiologies of Speech Impairment Language disorders • Stroke •Hearing loss • Head injury •Lack of stimulation • Brain tumor •Emotional disturbance • Delayed development Articulation disorder – Damage to nerve pathways passing from brain to muscles in larynx, mouth, or lips – Delayed development from hearing problems; slow maturation of nervous system – Speech can be slurred, indistinct, slow, nasal Etiologies of Speech Impairment Voice production disorders – Disorder affecting closure of vocal cords – Hormonal or psychiatric disturbances – Severe hearing loss – Hoarseness, harshness, inappropriate pitch, abnormal nasal resonance Fluency Disorders – Not well understood – Marked by repetition of single sounds or whole words – Stuttering Recognizing Patients With Speech Impairment Reluctance to verbally communicate Inaudible or nondiscernable speech pattern Language disorders (aphasia) – Limitations in speaking, listening, reading & writing – Slowness to understand speech – Slow growth in vocabulary/sentence structure – Common causes: blows to head, GSW, other traumatic brain injury, tumors Utilizing Translation Line Patients With Special Challenges Obesity • Definition – body weight 20% over the average weight of people same size, gender, age • >58 million Americans are obese • 2nd leading cause of preventable death • Etiologies – Caloric intake exceeds calories burned – Low basal metabolic rate – Genetic predisposition Obesity Risk Factors • • • • • • Hypertension Stroke Heart disease Diabetes Some cancers Kidney failure Assessment/management Accommodations- Obesity • Appropriate sized equipment • May have extensive medical history • Additional assistance for lifting/moving • Recognize your own biases • Assessment techniques may need to be altered Breathing Considerations in Obesity • • • • • Lungs 35% less compliant Increased weight of the chest Increased work of breathing Hypoxemia common O2 sats not reliable on finger tips (poor circulation) • Diaphragm higher Airway Considerations in Obesity Control of airway challenging!!! • Short neck • Large powerful tongue • Distorted landmarks • Cricoid pressure helpful in stabilizing anatomy during intubation attempts • Positioning is critical – towels, blankets, pillows Circulation Considerations in Obesity • Hypertension common • Alternate blood pressure cuff size – may need to use thigh cuff around upper arm – if difficulty fitting cuff around upper arm, place around forearm, stethoscope over radial artery • Prone to pulmonary emboli due to immobility Transport Considerations in Obesity • Can be dangerous • Ensure ample personnel • Patient must fit through doorway • Patient may not tolerate supine position • May need to remove cot from ambulance for patient to fit • Know weight limitations of stretcher Patients With Special Challenges Spinal Cord Injuries • Conditions result from nerve damage in the brain and spinal cord – MVC, sports injury, fall, GSW, medical illness • Paraplegia – Weakness/paralysis of both legs • Quadriplegia – Paralysis of all four extremities and possibly the trunk Assessment/Management Accommodations - Spinal Cord Injuries • Assistive devices may need to be transported with the patient • May have ostomies (trachea, bladder,colon) • May be ventilator dependent • May need to transport wheel chairs • Priapism in male patients - may be presenting as a medical emergency Patients With Special Challenges Mental Illness • Any form of psychiatric disorder • Psychoses – mental disorders where there is loss of contact with reality; patient may not be aware they have a disorder – schizophrenia, bipolar, organic brain disorder • Neuroses-related to upbringing and personality where person remains “intouch” with reality; patients are aware of their illness – depression, phobias, obsessive/compulsive disorder Assessment/Management Accommodations - Mental Illness • • • • Solicit permission before beginning care Gain rapport/trust but your safety is first Don’t make promises you can’t keep Don’t be afraid to ask about medications, mental illness history, ingestion of alcohol or nonprescription drugs • Evaluate for underlying medical illnesses • If presents as danger to self or others; use proper restraints; document use and distal circulation • If handcuffs, police in rig to ride with patient Patients With Special Challenges Down’s Syndrome • Chromosomal abnormality that causes mild to severe mental retardation • IQ varies from 30-80 • Eyes slope upward and at the outer corners • Folds of skin at side of nose that covers inner corners of the eyes • Small face and facial features • Large and protruding tongue • Flattening on back of the head • Hands that are short and broad Assessment/Management Accommodations - Down’s Syndrome • • • • • Congenital heart, intestinal, hearing defects Limited learning capability Generally affectionate and friendly Utilize patience with assessment Explain procedures before beginning task Patients With Special Challenge - Emotional Impairment • Impaired intellectual functioning that results in inability to cope with normal responsibilities of life – Neurasthenia - irritability, lack of concentration, worry, hypochondria – Anxiety neurosis - mild deviation of mind with unpleasant distressing emotion to imagined fear – Compulsion neurosis - recurrent & intrusive thought, feeling, idea, or sensation – Hysteria Emotional or Mental Impairment • IQ • Mild impairment 55-70 • Moderate impairment 40-54 • Severe impairment 25-39 • Profound impairment < 25 • Extensive history taking needed to differentiate emotional issue vs medical issue • Utilize patience and extra time in history taking and while providing care • Remain supportive & calm Etiologies Emotional/Mental Impairment During pregnancy • Use of alcohol, drugs or tobacco • Illness/infection (toxoplasmosis, rubella, syphilis, HIV) Genetic Phenlketonuria (PKU)-single gene disorder caused by a defective enzyme Chromosomal disorder (down syndrome) Fragile X syndrome - single gene disorder on Y chromosome. Leading cause of mental retardation Etiologies Emotionally/Mentally Impaired cont’d Poverty/cultural deprivation – Malnutrition – Disease-producing conditions (lack of cleanliness) – Inadequate medical care – Environmental health hazards – Lack of stimulation Patients With Special Challenges Emotionally or Mentally Impaired • Assessment/management accommodations – Chronological age may not be consistent with developmental age – May have numerous underlying medical problems – May show no psychological symptoms apart from slowness in mental tasks – Moderate to severe may have limited or absent speech, neurological impairments – Allow extra time for evaluation and patient responses Patients With Special Challenges Due to Disease • Physical injury or disease may result in pathological conditions that require special assessment and management skills – arthritis - muscular dystrophy – cancer - myasthenia gravis – cerebral palsy - poliomyelitis – cystic fibrosis - spina bifida – head injury – multiple sclerosis Patients With Special Challenges Arthritis • Inflammation of a joint, characterized by pain, stiffness, swelling and redness • Has many forms and varies in its effects – Osteoarthritis - results from cartilage loss and wear of joints (elderly) – Rheumatoid arthritis - autoimmune disorder that damages joints/surrounding tissue • Ask patient least painful method to assist in moving & touching them Patients With Special Challenges Cancer • Signs and symptoms – Pale, ashen skin – Loss of hair due to chemotherapy – VAD (venous access device) – Weakness – Transdermal skin patches for pain medication • Determine if under hospice care and DNR status • DNR must be valid State form to be honored by EMS in field – questions - contact medical control Patients With Special Challenges Cerebral Palsy • Non-progressive disorder of movement and posture due to a damaged area of brain that controls muscle tone • Most occur before birth – cerebral hypoxia, maternal infection • Damage to fetal brain in later stages of pregnancy, during birth, newborn or early childhood Patients With Special Challenges • Types of Cerebral Palsy – Spastic – abnormal stiffness and difficulty with movement – Athetoid – involuntary & uncontrolled movements – Ataxic – disturbed sense of balance & depth perception – Mixed - some combination of the above in one person Patients With Special Challenges Cerebral Palsy • Signs and Symptoms – Unusual muscle tone noted during holding and feeding – 60% have mental retardation/ developmental delay – Many have high intelligence – Weakness or paralysis of extremities • Each case is unique to the degree of limitations Patients With Special Challenges Cystic Fibrosis • Inherited metabolic disease of the lung and digestive system – Childhood onset – Defective, recessive gene inherited from each parent (become carrier if gene inherited from only 1 parent) – Gland in lining of lung produces excessive amounts of thick mucous – Pancreas fails to produce enzymes required to break down fats and their absorption from the intestines Patients with Special Challenges - Cystic Fibrosis • Signs and Symptoms – Patient predisposed to chronic lung infections – Pale, greasy looking, foul smelling stools – Persistent cough/breathlessness – Stunted growth – Sweat glands produce salty sweat – May be oxygen dependent, need of suctioning – May be a heart/lung transplant recipient Patients With Special Challenges Previous Head Injuries • Traumatic brain injury affects cognitive, physical and psychological skills • Physical appearance may be uncharacteristic or may be obvious Patients With Special Challenges - Previous Head Injury • Signs and Symptoms – Speech and mobility may be affected – Short term memory loss – Cognitive deficit of language and communication – Physical deficit in balance, coordination, fine motor skills – Patients may use protective or helpful appliances (ie: helmet, braces) Patients With Special Challenges Multiple Sclerosis • • • • • Progressive/incurable autoimmune disease Brain and spine myelin destroyed May be inherited or viral component Begins in early adulthood Physical/emotional stress exacerbates severity Patients With Special Challenges Multiple Sclerosis • Signs and Symptoms – Fatigue, mood swings – Vertigo – Muscle weakness; extremities that feel heavy and weak – Spasticity; difficulty ambulating – Slurred speech – Blurred vision – Numbness, weakness, or pain in face – Midlife incontinence; frequent UTI’s Patients With Special Challenges Muscular Dystrophy • Inherited, incurable muscle disorder that results in a slow but progressive degeneration of muscle fibers • Life span generally not beyond teen years • Duchenne muscular dystrophy – Most common sex-linked cause – Recessive gene that only affects males – Diagnosed after age 3 Patients With Special Challenges Muscular Dystrophy • Signs and Symptoms – – – – – – Child that is slow to sit and walk Unusual gait Patient eventually unable to ambulate Curvature of the spine Muscles become bulky and replaced with fat Immobility causes chronic lung diseases • Management & care includes respiratory support Patient With Special Challenges Myasthenia Gravis • Chronic autoimmune disorder of CNS • Weakness to skeletal (voluntary) muscles • Caused by defect in transmission of nerve impulses to muscles • Eye & eyelid •Throat • Face • Extremities • Chewing, talking, swallowing • Symptoms vary by type & severity • Dependent on precise timing of daily medication • Can live normal or near normal life Myasthenia Gravis • Signs and symptoms – Women ages 20-30; men ages 70-80 – Drooping eyelid, double vision – Difficulty speaking, chewing & swallowing – Weakened respiratory muscles – Exacerbated by infection, medications and menstruation – Controlled with drug therapy to enhance transmission of nerve impulses Patients With Special Challenges Poliomyelitis (polio) • Infectious disease caused by poliovirus hominis – Virus is spread through direct and indirect contact with infected feces and by airborne transmission – Salk & Sabin vaccines in 1950 have reduced incidences – In USA polio virus now injected and not oral form (virus shed thru GI system when given orally) Patients With Special Challenges Poliomyelitis • Signs and Symptoms – Paralysis of lower extremities – Unable to ambulate – Chronic respiratory diseases • Management & care – Needs support for ambulation – May need careful handling of extremities to avoid further injury – Assessment may take longer due to body disfigurement Patients With Special Challenges Spina Bifida • Congenital defect where part of vertebra fails to develop, leaving part of the spinal cord exposed • Ranges from minimal severity to severely disabled • Loss of sensation in all areas below defect • Associated abnormalities – Hydrocephalus with brain damage – Cerebral palsy – Mental retardation Patients With Special Challenges • Financial Challenges – A patient’s ability to pay should never be a factor in obtaining emergency care – Federal laws mandate that quality, emergency health care be provided, regardless of the ability to pay Patients With Financial Challenges • Issues patient deals with – Homelessness – Chronic illness with frequent hospitalizations – Lack of funds for purchase of routine medications – Poor personal hygiene – Poor nutritional status – Emaciation Patients With Financial Challenges • Resources – Payment programs may be available – Government services are available to assist • What does your township office offer? – Free (or near-free) health care services available through local, state and federally-funded organizations Interventions for the Specially Challenged and Chronic Care Patient Home Healthcare Providers • Home health providers know the equipment in the home • They know the patient and the normal state of holistic health • Can make a quick response to acute changes in status • Often highly trained providers • They can be a great resource EMS vs. Home Healthcare • Both have to compliment each other to provide high level of care to the patient • By being integral parts to the overall care delivery system, the patient gets ultimate care • If either decides their job is more important, the delivery of care diminishes Healthcare Delivery • Training or education possibilities – – – – – – – Registered nurse (hospice oriented) Registered respiratory therapist Certified nurses aid (CNA) Registered occupational therapist Registered speech pathologist Licensed paramedic (EMT) Certified nursing assistant (CNA) Delivery of Home Healthcare • Benefits of home health care – – – – Early disposition of acute health problems Socialization of home-bound client Family members can be more involved Patient gets to stay at home while recovering from illness or injury – Less stress to the patient Delivery of Home Healthcare • Deficiencies in care – Cost – Variety of levels and competencies of healthcare providers – Low pay to the provider – Incompetence of provider – Family members not in agreement with care • Complications – Inadequate recognition of acute illness – Theft to the patient In-hospital vs. Homecare • Mortality and quality – Higher incidence of infection as an inpatient – Quality of care depends on competence of the provider in each situation • Can be very supportive and actually diminish the instance for hospitalization if the home care provider is aggressive • Less stress on the patient to be cared for at home Home Care • Equipment – Nearly any piece of equipment found in a hospital can be used at home • Complications and pathologies to summon EMS support – Inadequate respiratory support – Acute cardiac events – Acute sepsis – GI/GU crisis – Home dialysis emergencies – Displaced catheters or G/J-tubes Home Care Airway Adjuncts • Oxygen delivery devices • CPAP machine (mask and nasal) • BiPAP machine • Tracheotomies • Home ventilators • Peak flow machine Vascular Access Devices • Central venous access devices – Hickman, Groshon – Directly into central circulation – Often surgically implanted • Dialysis shunts - usually forearm, may be abdominal placement • PICC access device – Peripheral line – Generally in antecubital • Peripheral venous IV Nutrition (Delivery/Removal) • Gastric emptying or feeding – NG tubes – Feeding tubes – PEG tubes (J-tubes) – Colostomy • Urinary tract – Internal/external catheters – Suprapubic catheters – Urostomy - collection bag worn PEG tubes Urinary Catheter Insertion • Indications – Ability to monitor output – Incontinence – Decreased level of consciousness – Frequency • Contraindications – Inability to care for insertion site • Increases risks of infections that could lead to sepsis Assessing Complications of the Airway • Evaluate – Respiratory effort – Tidal volume – Peak flow – Oxygen saturation – Breath sounds • Compare values based on the patient’s “normal” or baseline levels Assessing Complications of Vascular Access Devices • • • • • • • • Infection/sepsis Inadvertent removal Hemodynamic compromise Hemorrhage Embolus Stable vs. unstable angina Improper fluid administration Inability of home caregiver to flush device PICC line Assessing Complications of GI/GU Devices • • • • • • • Abdominal pain Inability of caregiver to flush device Distention Lack of bowel sounds Palpation of bladder indicating fullness Change in color/character/amount of urine Redness/discharge at insertion sites Ventilatory Devices • Recognizing device or patient failure – Inadequate oxygenation – Anxiety – Hypoventilation • Management – Reposition airway – Remove secretions - suction – Support ventilations with BVM • May need to transport patient to hospital with their ventilator - will it fit in rig? • Consider using home caregiver to continue assisting in providing care Rights of the Terminally Ill • • • • Right to refuse care Right to comfort Right to advanced healthcare They need family support as well as integrated healthcare team • Hospice care • Comfort care Hospice care • Definition – The ability to provide care for a patient in a comfort type of environment as the disease process is in an advanced stage • Patient usually terminal within 6 months • Care is patient and family centered • Palliative & comfort care is necessary Hospice Care • Employs team of caregivers • Advanced directives followed to honor the patients wishes • Family is very involved in process of care • Disease process not limited to cancer care only • Family may call 911 for acute problem (dyspnea, chest pain) that needs to be attended to with full care provided prior to arresting • Involves great deal of emotional support DNR/DNAR • Do not attempt resuscitation – Does not mean do not treat medical conditions – The DNR form must be the State form including the patient name, patient signature, date, doctor’s signature and the words “do not resuscitate” – CPR must be started in the absence of a valid, signed DNR form except for decapitation, rigor mortis without hypothermia, dependent lividity, body decompensation, incineration Patients with Special Challenges and Chronic Care Needs