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Data Needs for
Public/Population Health
Going Beyond Surveillance
Steven J Steindel, Ph.D.
Senior Advisor, Data Standards and Vocabulary
Centers for Disease Control and Prevention
Public Health Data Standards Consortium
3/18/04
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0 - specimen
Infectious Disease Surveillance View
3
Clincal
Site
4N
LRN
Level A
Lab
4P
6.1 - new case
HHS
4.1 - suspicion
4.12
15
2.1 - suspicion
4.2
4.11
14
15
2N
1
FBI
14
State PH
Dept
2P
6N
4.13
6.13
CDC
6.11
6P
5
14
15
6.12
Regular
Lab
7
13
8 9
Local
PH Dept
6.2
12
CDC
Response
Team
LRN
Level B,C
Lab
11
10 - New Event
10
Outbreak Community
Contaminated Bldg.
Vaccination Center
10
Contractor
Response
Team
FBI
Response
Team
Local
Response
Team
Hospital
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CDC’s View of Public Health:
Our Centers
• Chronic Disease
(NCCDPHP)
• Environmental
Health
(NCEH)
• Health Statistics
(NCHS)
• Infectious Disease
(NCID)
• Injury
(NCIPC)
• Birth Defects
(NCBDDD)
• Immunization
(NIP)
• Occupational Safety
and Health
(NIOSH)
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Leading Causes of Death: 2000
Cause
Number
Rate/100K
Heart Disease
710 760
258.2
Cancer
553 091
200.9
Stroke
167 661
60.9
Chronic Respiratory
122 009
44.3
Unintentional Injury
97 900
35.6
Diabetes
69 301
25.2
Influenza/pneumonia
65 313
23.7
Alzheimer
49 558
18
Renal failure
37 251
13.5
Septicemia
31 224
11.3
Other
499 283
181.4
Total
2 403 351
873.1
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Actual Causes of Death: 2000
Cause
Number 1990
Number 2000
Tobacco
400 000
435 000
Poor diet/activity
300 000
400 000
Alcohol
100 000
85 000
Microbial agents
90 000
75 000
Toxic agents
60 000
65 000
Motor vehicle
25 000
43 000
Firearms
35 000
29 000
Sexual behavior
30 000
20 000
Illicit drug use
20 000
17 000
1 060 000
1 159 000
Total
AH Mokad, JS Marks, DF Stroup, JL Gerberding. Actual Causes of Death in the
United States, 2000. JAMA. 2004;291:1238-1245
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Mission of Consortium
• Find and Fill
• Missing data gaps
• With reproducible standards
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Data
Specificity
HL7 RIM
PH Domain
Information
Model
Other Industry
Data Models
Environmental
Health Tracking,
BT, etc.
PH
Logical
Data Model
Physical Database Implementations
Messages
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CDC and the Consortium
• Founding Membership
• All intentions of being active in BOD
• Decision on leadership position on hold
• Wants Consortium to:
• Augment not compete with other partners
• Help identify and implement needed data
standards for population health
• Serve as a unifying body to state's data
standards needs
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