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Supporting people with active and
advanced disease
• Need better data collection
• Discussion at MDT – new diagnosis
support
• Identify best practice
• Early palliative care support improves
quality and quantity of life
What is the economic evidence
behind survivorship?
‘Routes from Diagnosis’ is a way of linking and analysing
routinely collected data
Maps the cancer journey from diagnosis through to death
Describing health outcomes i.e. survival times, incidence,
prevalence of cancer and non related cancer morbidities.
Tells us how patients interact with the system e.g.
interaction with health care services, when, how long and
cost
All patients
one of these outcome
groups
This isreach
a survivorship
outcome
– taking different routes from diagnosis
framework
Everyone diagnosed
with prostate cancer
in England in 2004
25.3%
7+ years, no
complications
29.7%
7+ years,
morbidities
6.3%
1-7 years, no
complications
5.9%
1-7 years, other
morbidities
Diagnosis
20.4%
12.4%
1-7 years,
cancer
complications
0-12 months
What does RfD tell us?
We know more about
how they interact
with the system
Insight – Health economics
Designing effective Service Solutions
Interventions tailored
for each ‘Route from
Diagnosis’
3 final CR survivorship pathways for testing
Exciting new research
• Macmillan working with NCIN and Imperial College
London to produce evidence on main drivers of cancer
costs.
• Cost data will allow comparison of alternative pathways of
care.
• Investigate variation in costs in England across lung,
breast, prostate and bowel cancer:
• Economic burden of cancer
• Differences in the cancer care pathways and their effects
on patient survival and costs
• Cost of emergency admissions of patients with cancer
Supporting people with active and
advanced disease
• Need better data collection
• Discussion at MDT – new diagnosis
support
• Identify best practice
• Early palliative care support improves
quality and quantity of life
Key survivorship messages
• A shift in professional culture is essential to enable
supported self management.
• New models of cancer aftercare gives opportunities to
improve quality and reduce cost.
• Many people can self manage their health with
support, with rapid access to professionals when needed.
• There is significant unmet need arising from
consequences of treatment, which can be successfully
addressed through prevention and treatment.
• Good survivorship care requires timely communication
across boundaries.
Aligning with the NHS Mandate in
England
Taking Action - a ‘how to guide’