Download 2016 DRAFT NACFC PROGRAM-AT-A

2016 DRAFT NACFC PROGRAM-AT-A-GLANCE
SUBJECT TO CHANGE
PLEASE NOTE: Sessions with an * before the title have been suggested for live streaming. These suggestions are not final. They are being vetted by the CFF. The final list will be distributed when available.
4:00 p.m. - 6:00 p.m.
Poster Set-up
4:30 p.m. - 6:00 p.m. ALL: Plenary Session I: A Cure For All: Leaving No One Behind
TUESDAY, OCT. 25
3:30 p.m. - 7:30 p.m.
General & Exhibitor Registration at the Orange County
Convention Center (OCCC)
3:30 p.m. - 7:30 p.m.
Remote General & Exhibitor Registration (TBD)
Large Group Exhibitor Registration (By Appointment Only)
WEDNESDAY, OCT. 26
7:00 a.m. - 6:00 p.m.
General & Exhibitor Registration (OCCC)
7:00 a.m. - 6:00 p.m.
Remote General & Exhibitor Registration (TBD)
8:00 a.m. - 5:00 p.m.
Special Classes
1) NRS: Nuts & Bolts for New CF Caregivers (E. Bryson, L. Feenan)
2) PT & RT: Advanced Airway Clearance Techniques Throughout the Lifespan (B. Button, M.
McIlwaine)
11:00 a.m. - 3:00 p.m.
Psychosocial Working Group
12:30 p.m. - 2:30 p.m.
CF Registry Meeting
3:30 p.m. - 7:30 p.m.
Short Courses
1) CLIN: Nuts & Bolts for the New Research Coordinator (C. Dunn, K. Hilliard)
2) CLIN-NRS: Walking the Therapeutic Tight Rope (J. Weiland, D. Young)
3) CLIN-SW/PSYCH: Patient-centered Communication Strategies to Enhance Partnerships
(S. Larowe)
4) CLIN-SW/PSYCH: Depression & Anxiety Treatment in CF: Therapy, Medications &
Preventative Strategies (A. Georgiopoulos, B. Smith)
5) SW/PSYCH: *No More NO! Helping Parents Gaining Cooperation With Self Care & More
(L. Greene, J. Cary, A. Tluczek)
6) NTR: Advanced Nutrition (L. Mannik, E. Seffrood)
7) PT & RT: Comprehensive Exercise Testing & Prescription Implementation (F. Cerny, S.
Rand)
3:30 p.m. -7:30 p.m.
Special Session by Invitation Only: Quality Improvement
(M. Godfrey)
30th Annual North American
Cystic Fibrosis Conference
October 27-29, 2016
Orange County
Convention Center
Orlando, Florida
THURSDAY, OCT. 27
7:00 a.m. - 6:00 p.m. General & Exhibitor Registration (OCCC)
7:30 a.m. - 9:30 a.m. Physicians Grand Rounds
7:30 a.m. - 9:30 a.m. Caregivers Sessions by Discipline-See Caregivers Program-at-a-Glance
8:00 a.m. - 10:00 p.m. Special Interest & Related Study Groups
9:00 a.m. - 10:00 a.m. Poster Set-up
9:15 a.m. - 9:45 a.m. Coffee Break
9:45 a.m. - 11:05 a.m. Workshop Session I
1) APP&D: Bench to Bedside in CF Inflammation (M. Konstan, D. Nichols)
2) CFTR: CFTR 2016 (A. Abu-Arish, J. Hong)
3) GMS: CF Disease Modifiers: From Genes to Function (S. Blackman, C. Hodges)
4) CLIN: Gastroenterology & Hepatology (M. DiMagno, A. Freeman)
5) CLIN: Noteworthy Publications 2015-2016 (S. Bell, B. Ramsey)
6) INF/MIC: Pathogenesis of Airway Infection (K. Hisert, D. Wozniak)
7) NT: *Clinical Advances in Cystic Fibrosis Research (C. De Boeck, D. Dorgan)
8) NRS: *The Minute Clinic: Partnering to Create the Ideal Visit (C. George, W. Gore)
9) SW/PSYCH: Reducing Isolation: Connecting Patients & Families (A. Daggett, C. Toth)
10) PT & RT: *Exercise: Current Research in Exercise & Physical Activity in People With CF
(J. Agnew, J. Schneiderman)
11:15 a.m. - 1:45 p.m. Poster Session I (All numbers)
11:15 a.m. - 1:45 p.m. Lunch Break/Visit Exhibits/View Posters
11:15 a.m. - 4:15 p.m. Exhibit Hall Open
2:00 p.m. - 3:25 p.m. Symposium Session I
1) APP&D: *Mucociliary Transport & Ion Flux: Lessons Learned From New Models & New
Drugs (A. Cantin, B. Hurley)
2) CFTR: Understanding Missense & Misfolding Mutations in CFTR (M. Amaral, B. Kleizen)
3) CLIN: Review of the New CF Diagnosis Consensus Guidelines (N. Derichs, C. Ren)
4) INF/MIC: *Non-tuberculous Mycobacteria: Now That the Guidelines Are Published (M.
Aitken, S. Martiniano)
5) NRS: *Growing Older With CF (P. Pfahler, R. Wetmore)
6) NT: *CFTR Gene Repair & Replacement: New Progress Toward Cystic Fibrosis Therapy
(B. Davis, J. Engelhardt)
7) PT & RT: *The Management of the Critically Ill CF Patient (B. Button, A. Rao)
3:25 p.m. - 4:20 p.m.
Coffee Break & Poster Viewing
(E. Sorscher)
6:15 p.m. - 7:45 p.m.
ALL: Welcome Reception
FRIDAY, OCT. 28
7:00 a.m. - 6:00 p.m.
7:30 a.m. - 8:45 a.m.
7:30 a.m. - 4:45 p.m.
9:00 a.m. - 10:00 a.m.
General & Exhibitor Registration (OCCC)
Poster Viewing/Continental Breakfast/View Exhibits
Exhibit Hall Open
ALL: Plenary Session II: Worldwide Collaboration: We Are All In
This Together (J. Pilewski/P. Flume, C. De Boeck)
10:00 a.m. - 10:20 a.m. Coffee Break
10:30 a.m. - 11:55 a.m. Symposium Session II
8) CFTR: Corrector MOA: No Longer MIA (A. Aleksandrov, P. Thomas)
9) CLIN: *CF Gastroenterology Comes of Age: Best Practices & DIGEST (M. Kowalczyk, S.
Lusman)
10) CLIN: *The Challenging Landscape of Cost of Care in CF (TBD)
11) CLIN-NRS-SW/PSYCH: *Collaborative Mental Health Care: It Takes a Village (K.
Killeen, K. Reno)
12) GMS: CF Models: From Cell to Organism (J. Beekman, L. Clarke)
13) INF/MIC: Hot Off the Press: New Insights Into CF Lung Infections (D. Nguyen, A.
Hauser)
14) NT: Small Molecule Intervention for Uncommon CFTR Mutations: Achieving Treatment for
Every CF Patient (D. Bedwell, I. Sermet-Gaudelus)
12:15 p.m. - 1:35 p.m.
Lunch Break/View Posters/Visit Exhibits
12:15 p.m. - 1:35 p.m.
U.S. Pediatric/Adult/Affiliate Program Directors Meetings
12:15 p.m. - 1:35 p.m.
Brown Bag Luncheons
1) GMS: Genetics & Genetic Counseling for CF (K. Raraigh)
2) INF/MIC: *Fungal Infection: Where Are We Now-Where Are We Going? (L.Saiman )
3) NRS-PT & RT: *One Size Does Not Fit All: CF Strategies to Improve Outcomes (S. Gray,
M. Lester)
4) NTR: Nutrition-focused Physical Assessment (M. Oberle, P. Rose)
5) SW/PSYCH: Mental Health Guidelines: Lessons Learned the First Year (A. Moog)
12:15 p.m. - 1:35 p.m.
Junior Investigators Best Abstract in Basic Science
12:15 p.m. - 1:35 p.m.
Junior Investigators Best Abstract in Clinical Research
2:00 p.m. - 3:20 p.m.
Workshop Session II
11) APP&D: Mucins & Mucus in CF (B. Button, C. Evans, A. Livraghi)
12) CFTR: Understanding & Stabilizing CFTR Structure (C. Brouillette, C. Govaerts)
13) CLIN: Quality Improvement & Best Practices in Clinical Research (D. Durham, K. Poch)
14) CLIN: Endocrine (K. Larson-Ode, V. Tangpricha)
15) CLIN: *Pulmonary Medicine (M. McCown, M. Pricket)
16) INF/MIC: Microbial Ecology in the CF Airway (L.Caverly, B. Coburn)
17) NRS: *Supporting Patients With Advanced Disease (ME Corrigan, L. Fries)
18) NT: *Biomarkers to Evaluate Treatment (N. Hamblett, A. Ziady)
19) NTR: *Nutrition Research (D. Kalnins, K. Maguiness)
20) PT & RT: *AWC: So Many Devices, So Little Evidence: Choosing the Best AWC Method
(D. Conrad, D. Eidson)
3:20 p.m. - 3:50 p.m.
4:00 p.m. - 6:00 p.m.
4:00 p.m. - 6:00 p.m.
4:00 p.m. - 6:00 p.m.
Coffee Break /Poster Viewing
Fellows Sessions (Pediatric & Adult)
Special Basic Science Poster Session
Caregivers Sessions by Discipline-See Caregivers Program-at-a-Glance
6:00 p.m. - 7:30 p.m.
Speakers & Fellows Reception (By Invitation Only)
SATURDAY, OCT. 29
6:30 a.m. - 3:00 p.m.
General & Exhibitor Registration (OCCC)
7:30 a.m. - 8:45 a.m.
Poster Viewing/Continental Breakfast
7:30 a.m. - 2:20 p.m.
Exhibit Hall Open
7:30 a.m. - 8:45 a.m.
Consultation Clinics
1) NRS: Palliative Care Challenges (J. Goggin, M. Hendry)
2) NTR: GI/Nutrition (M. Marcus, J. Sullivan)
3) SW/PSYCH: Psychosocial Soup: Sorting Out Roles With Challenging Cases
(J. Cary, N. Concotelli, M. Pedrotty)
4) PT & RT: Success Stories Using Adherence Strategies (W. Demaray, B. Owen)
9:00 a.m. - 10:00 a.m.
ALL: Plenary Session III: Observational Research (W. Morgan)
10:00 a.m. - 10:20 p.m. Coffee Break
10:30 a.m. - 11:50 a.m. Workshop Session III
21) APP&D: Ion & Fluid Transport in CF (R. Pickles, V. Saint-Criq)
22) CFTR: Rare CFTR Mutants & How to Fix Them (K. Arora, L. Galietta)
23) CLIN: *Epidemiology in CF (B. Quon, G. Sawicki)
24) CLIN: *Emerging Issues in CF Lung Transplantation (A. Faro, J. Pilewski)
25) CLIN-NT: Imaging Modalities in CF (S. Nagle, J. Woods)
26) GMS: CF Model Systems (S. Burkitt, A.C. Naren)
27) INF/MIC: *Epidemiology & Management of Infection (C. Keating, M. Parkins)
28) NRS: *Appreciating the Complexity With Transplant Referrals (S. Sullivan, E. Wells)
29) NT: Emerging Strategies for Correcting the Basic CFTR Gene Defect (A. Firth, P. McCray,
E. Mendenhall)
30) NTR-SW/PSYCH: Dynamic Duo: SW & RD Collaboration on Challenging Cases (S.
Muenzel, J. Taylor)
12:15 p.m. - 1:35 p.m.
Luncheon Roundtables
12:15 p.m. - 1:35 p.m.
Brown Bag Luncheons
6) APP&D: Multiple Breath Washout & LCI: Measurement & Interpretation (F. Ratjen, TBD)
7) CLIN: Recruiting & Referrals (B. Noren, K. Simmons)
8) CLIN: The Orkambi Effect: Drug & Disease Interaction (Z. Bhakta, R. Pettit)
9) NRS: The Struggle for New Therapies: Obtain, Maintain & Sustain (C. Chacon, A. Willis)
10) NTR: *Addressing Challenging Feeding Behaviors (S. Salzedo, S.Filigno)
11) SW/PSYCH: Sexuality, Intimacy & Reproduction (E. Cohen-Engel, J. Nash)
12) SW/PSYCH: *Employment & Education Advocacy for Adults with CF (A. Lew, B.
Sufian)
12:15 p.m. - 2:20 p.m.
Lunch Break/View Posters/Visit Exhibits
12:15 p.m. - 2:05 p.m.
U.S. Center & Program Directors Meeting
2:20 p.m.
Exhibit Hall Closed
2:30 p.m. - 3:55 p.m.
Symposium Session III
15) APP&D: *The Interface of Innate Immunity in the CF Lung (S. Elborn, D. Nguyen)
16) CLIN: *Women’s Health (J. Billings, R. Jain)
17) CLIN: The Role of CFTR in Beta-cell Function (M. Rayas, A. Kelly)
18) INF/MIC: Challenges in CF Microbiology: Light Amid the Fog (L. Hoffman, M. Tunney)