Download Cystic Fibrosis Association of North Dakota

Cystic Fibrosis Association of North Dakota
NOT AFFILIATED WITH CYSTIC FIBROSIS FOUNDATION OR THEIR NORTH DAKOTA CHAPTER
VOL. 30 March/April 2014 NO. 5
Taco John’s Nachos Navidad® Promotion Has Record Year
raised close to $28,000 by donating twenty-five cents from
the sale of each Nachos Navidad® and by selling “Whiplash”
ornaments.
Each year, CFA has many opportunities to thank individuals,
corporations, civic and employee groups on behalf of the
people it serves for their willingness to contribute to fund the
programs we offer that help persons with cystic fibrosis in this
area. Those who give more than once; those who have decided
to make annual contributions are especially important to CFA
because their contributions tend to work themselves into our
budget.
Area Taco John’s® outlets in North Dakota have become
especially significant because of their ongoing commitment to
helping CFA in its battle to “even the playing field” for young
people with cystic fibrosis. This year, area Taco John’s® stores
We are pleased to take this opportunity to thank each Taco
John’s® store franchisee and manager for their commitment to
young people with cystic fibrosis. We realize the holidays are
a busy time for you and the pressures that come with running a
business during that time of year can be daunting. The fact that
you have taken time out of your schedule and even donated
part of your income to help CFA is well-appreciated.
We especially want to thank Mr. Mike Sartwell and his family
for their continuing commitment to this cause. Mike is the
person responsible for making this venture a reality and each
dollar raised during each successive year is made possible only
by his commitment and the cooperation of his fellow store
owners. Without your help, we couldn’t continue.
Giving Hearts Day Contributions Exceed Previous Year
tallied more than $7,000 prior to any matches and money is yet
to come in.
One of the things that makes this event special is that it gives
people who haven’t had a chance to hear about CFA in the past
an opportunity to learn about the Association and the people it
helps. As a result, more than 25% of the money donated this
year came from “first-time donors.”
2013 was the first year CFA participated in Giving Hearts
Day. The event, sponsored by the Dakota Medical Foundation
and the Impact Foundation has greatly expanded during the
one year since we joined with many more charities becoming
involved and taking advantage of a single day of giving to help
others in and around North Dakota.
Last year in our first year, CFA raised $6,000 after all matches
were made and all the money was collected. With the addition
of many more charities calling upon the good people in and
around North Dakota during that single day, we weren’t quite
sure what to expect. We are pleased that this year we have
We certainly welcome and are appreciative of those who are
new to CFA’s donor rolls for their recognition of the need
expressed in our appeal to all for that day. We hope that as you
learn more about CFA, you will be satisfied that the money
you gave really does help the people you want to help through
CFA’s programs and services.
We also want to restate our thanks to those of you who are
repeat donors for your continued support of young people with
cystic fibrosis in and around North Dakota. Last, but certainly
not least, we thank the Dakota Medical Foundation and the
Impact Foundation for giving us the opportunity to participate
in this single day of charitable giving.
Really….Spring is Coming
Think Golf
Have you heard these discussions while warming your hands
around the coffee table? “Well, did you enjoy summer; or did
you miss it? You know, I’m talking about the one day last week
in the 50’s.”
Yes, winter is having a hard time letting go of North Dakota this
year. People are having just as hard a time even thinking about
the things of spring and summer. But as each day goes by, the
calendar tells us it is getting closer to those days when the last of
the snow will melt and the temperatures will not only rise above
freezing during the day, they’ll stay above freezing at night too!!
As I’m writing this, April is just around the weekend and that
means we have roughly only 60 days until the 21st Annual
Bismarck/Mandan CF Golf Classic is held. Mark the date on
your calendar. Friday, June 6th, will officially kick-off the CFA
golfing season.
We already have some people who have told us to reserve a
spot for their team in the tournament and we have others that
have assured us they’re ready to play as soon as the weather will
allow.
So, get out a brush and a bucket of soapy water, and clean those
clubs. Make sure you have replaced those balls that refused to
float the last round you played in 2013. Mark Friday, the 6th
of June, 2014, on your calendar and make plans to join us at
Prairie West Golf Course in Mandan, ND, for the 21st Annual
Bismarck/Mandan CF Golf Classic.
Watch for the posting at www.cfanorthdakota.com for the golf
tournament. We should have all forms and links up and ready to
go for you within the next week or so. We have appreciated your
support in previous years and look forward to seeing you again
this year. Come join us. Golf. Enjoy yourself. And help CFA
help area young people with cystic fibrosis.
Memorials
Giving memorials and honorariums are special ways of
remembering and honoring someone who has made a difference
in your life. The idea of helping someone else by honoring these
individuals extends the positive impact of their lives in our
world. Our thanks to those who remember…and to those they
remembered.
Marjorie Johnson in memory of Tom Mattern
Dean & Sylvia Fatland in memory of their daughter, Jan
Emma Hartman in memory of Jason Hartman
Pam Wohlwend in memory of Don Hagen
Roger & Debby Barth in memory of Delton Bender
Mathilda Wallace Family in memory of Mathilda Wallace
Brian Bender in memory of Gaylen Marzolf
Jill Sinner in memory of Sonia Heidenreich
Les & Kathy Wolf in memory of Bernard & Rita Braun
Mary Mattern in memory of Hermina, Frank & Tom Mattern
Mary Erman in memory of Alan & Peter Allmaras
Anonymous in memory of Gaylen Marzolf
Kate Barone in memory of Donna Hollar
Sue & Nick Thorson in memory of Ryan Thorson
Karen Cossette in memory of Veronica Richards
Janna Ness in memory of Ryan Thorson
Chelsey Haukos in memory of Dorothea Norgaard
Marlys Zuther in memory of Gaylen Marzolf
Anonymous in memory of Raelee Stinkeoway
Leslie Balliet in memory of Sonia Balliet Heidenreich
Daniel Lien in memory of Pearl Lien
Mark & Bridget Belter in memory of Sonia Heidenreich
Anonymous in memory of Frank & Tom Mattern
Marci Julson in memory of Mom, Dad, Pa, Grandma J., Kanji, Paul
Ella Huwe in memory of Lola Huwe
Pam Wohlwend in memory of Pearl Lien
JoAnn Keller in memory of Nick Korte
Gena Blaine in memory of Sonia Balliet-Heidenreich
In Honor Of
Mike & Jessica Zimmerman in honor of Addie Zimmerman
Kim & David Giermann in honor of Logan Hahn
Mike & Linda Eslinger in honor of Jaken Kasper
Josh & Katie Lang in honor of Katherine Wangler
Darin & Katrina Lang in honor of Beckett Harding
JoAnn Keller in honor of Dr. James Hughes
Brandy Randall in honor of Logan Hahn
Kathy Rumple in honor of Jamie Haupt
Cyndi Pederson in honor of Chelsey Smedsrud
Molly Secor-Turner in honor of Jordan Peterson
Anonymous in honor of Jaken Kasper
Jayse & Beth Wharam in honor of Maria Wharam
Greg Falde in honor of Sophia Backlund
Kerry DeCoteau in honor of Jaken Kasper & Michel Crawford
Michelle Wiedrich in honor of Jennifer Rothschiller’s birthday
Kerri Schneider in honor of Logan Hahn
Scott & Carol Markovic in honor of Ashlee Rudolf
Shirley & Al Stavedahl in honor of Austin Huus
Kayla Presnall in honor of Jaken Kasper
Mark Jensen in honor of Jordan Peterson
Renae Gall in honor of Ashlee Rudolf
Cindy Kruger in honor of
Megan Thiel in honor of JoAnn and her amazing son
Elizabeth Cruz in honor of Jaken Kasper
Sara Bashus in honor of Addie Zimmerman
Mason & Jorie Boswell in honor of Makenna Sartwell
Tonya Giermann in honor of Logan Hahn
Megan Grundstrom in honor of Makenna Sartwell, my brave baby sister
Diann & Scott Rudolf in honor of Ashlee Rudolf
Brad Clemenson in honor of Maria Wharam
Tracy Siemieniewski in honor of Jaken Kasper & Daviney McKay
Patti Kritzberger in honor of Jaken Kasper
Callie Stein in honor of Ashlee Rudolf
Jody Paulson in honor of Ashlee Rudolf
Mildred Vonschell in honor of Tarah & Shawna Gackle
Donations Directed Toward Ongoing Need
Our thanks are again extended to area friends for the ongoing
giving taking place that helps us to provide the programs
serving our young members with cystic fibrosis. This is the
time of year when CFA dedicates substantial amounts of
money to college scholarships for its members with CF who
are attending college. CFA tries to provide some financial relief
for young people with CF who in addition to attending classes,
studying, and taking part in college activities, must find time
each day for chest physiotherapy, inhalation therapy and taking
meds. CFA hopes to “even the playing field” a little with its
scholarships for members with CF. We receive thanks from
members for these programs, and it is our turn to pass along
that appreciation. Donations to CFA help us to provide this
service to our members.
Some of the donations received during the past two months
have come in as a result of Giving Hearts Day and as such will
not be listed here. Some other donations are included below.
Another manner of prolonged giving that is through a
charitable trust in which a pre-determined amount is allocated
on a quarterly basis and donated to the charity through an
administrator. Both of the methods listed above include certain
tax advantages to the donor. CFA received another $1250 from
the Duska LaCount Charitable Trust.
000
Foundations, service clubs, corporations, cooperatives, local
businesses, public employees, schools, families and individuals
recognize the importance of helping young people with cystic
fibrosis. Your creative methods of remembering young people
with cystic fibrosis are much appreciated. We will continue to
help them - with your assistance. Thank you to all!
The City of Minot Employees contribute to a charity fund
each month by having money deducted from their paychecks.
This manner of giving allows them to contribute to charities
they have pre-selected without actually having to write a
check or run the amount through a credit card. CFA has
been fortunate enough to have been included as one of those
charities for more than 10 years. The most recent contribution
received from the Minot Employee Charity Fund is $400.
Don’t forget that donations may also be made at www.cfanorthdakota.com.
In the Antibiotic Resistance Battle…
Antibiotic Resistance Targeted by Molecular
‘Drill Bits’
March 17, 2014 - In response to drug-resistant “superbugs” that
send millions of people to hospitals around the world, scientists are
building tiny, “molecular drill bits” that kill bacteria by bursting
through their protective cell walls. They presented some of the
latest developments on these drill bits, better known to scientists
as antimicrobial peptides (AMPs), at the 247th National Meeting &
Exposition of the American Chemical Society.
The meeting, which features more than 10,000 scientific reports across
disciplines from energy to medicine, is being held this week in Dallas,
Texas.
One of the researchers in the search for new ways to beat pathogenic
bacteria is Georges Belfort. He and his team have been searching for
a new therapy against the bacteria that cause tuberculosis (TB). It’s
a well-known treatable disease, but resistant strains are cropping up.
The World Health Organization estimates that about 170,000 people
died from multidrug-resistant TB in 2012.
“If the bacteria build resistance to all current treatments, you’re dead
in the water,” said Belfort, who is at Rensselaer Polytechnic Institute.
To avoid this dire scenario, scientists are developing creative ways to
battle the disease. In ongoing research, Belfort’s group, together with
his wife, Marlene Belfort, and her group at the University at Albany,
are trying to dismantle bacteria from within. They also decided to
attack it from the outside.
In their search for a way to do this, they came upon AMPs. Although
these naturally occurring, short strings of amino acids are not new
– all classes of organisms from humans to bacteria produce them as
part of their natural defense strategy – the fight against drug-resistant
pathogens has heightened attention on these protective molecules.
Researchers began studying them in earnest in the 1980s. By 2010,
they had identified nearly 1,000 unique AMPs from many sources,
including fly larvae, frog skin and mammalian immune system cells.
The molecules come in different shapes, lengths and with other
varying traits. But one thing they all have in common is that they
somehow break through bacterial cell walls, the tough outer layers
that provide structural support and protection. When Belfort found out
about AMPs’ mode of action, he aptly dubbed them “molecular drill
bits.”
Intrigued by their potential, Belfort scoured recent work on the
peptides and discovered a database filtering technique developed by
another group, reported in 2012. It’s a kind of design-your-own-AMP
model.
Using the database filtering technology, Belfort’s lab designed
and synthesized three novel AMPs designed to drill into the thick
walls of tuberculosis cells. When they tested them in the lab against
Mycobacterium tuberculosis and another similar bacteria, all three
AMPs killed the bacteria. One worked better than the others-but not
as well as kanamycin, which is one of several antibiotics in the arsenal
against TB that some strains have developed resistance against.
Belfort’s team is now focused on improving their designs and
understanding exactly how AMPs work. The group is also developing
a laboratory test that will allow them to tell within hours rather than
weeks if an AMP is working against Mycobacterium tuberculosis.
drug-resistance. AMPs attack bacteria’s walls, or cell membranes,
which have been conserved through a long history of evolution.
“It’s going to be much more difficult for a bacterium that’s been
around for millions of years to reconfigure its membrane,” Belfort
said. “That’s the core protective structure that has helped it survive
this long.”
Belfort acknowledges funding from his endowed chair at Rensselaer
Polytechnic Institute.
Source: www.acs.org
Published on Drug Discovery & Development
(http://www.dddmag.com)
If developed in pharmaceuticals, AMPs could have the additional
benefit of overcoming the very challenge they’re designed to meet:
Non-Profit Org.
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Bismarck, ND
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ADDRESS SERVICE REQUESTED
Jeffrey L. Gross
President
Kenneth Karls
Executive Director and
Newsletter Editor
Dedicated to Taco John’s Stores
and Giving Hearts Donors
Jennifer Rothschiller
Deanna Seibold
Ryan Pritchett
Karen Cossette
Kyle Hardy
April
Bir thdays
4/8
4/9
4/18
4/20
4/26
Jordan Klima
Makenna Sartwell
Patrick Meyer
Anthony Suarez
John Loudermilk
May
5/8
5/8
5/13
5/13
5/14
Katie Hoffert
Shane Jahner
Mikaela Moore
Shane Wilhelmi
James Lund
5/22
5/26
5/29
5/29
5/31