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CANCERSMART • Wellspring Cancer Support Foundation • November 2011 • Issue 10 Bladder Cancer The Little Known Cancer A Lifeline to Cancer Support By Valerie MacLeod and Greg Neely Bladder Cancer Survivors and Directors, Bladder Cancer Canada Bladder cancer is the fifth most common cancer in Canada, yet many Canadians have never heard of it. FACTS ABOUT BLADDER CANCER • Men develop it more often than women1. • It is the fourth leading cause of cancer in men with about 5,400 new cases in Canada in 2011; it ranks twelfth in women with about 1,800 new cases2. • Approximately 60,000 - 70,000 Canadians are directly affected by this disease3. CAUSES OF BLADDER CANCER The causes of bladder cancer are not known. However, known risk factors include smoking, age and exposure to chemicals in the making of dye. UNDER-REPORTING The number of occurrences is higher than recorded because Ontario does not keep statistics on carcinoma in situ bladder cancer (CIS)4, a high grade cancerous lesion which is often more diffuse and difficult to visualize. It can, however, be a very aggressive form of the disease. DETECTION OF BLADDER CANCER • The most common symptom of bladder cancer is blood in the urine (hematuria) with little or no pain. It should ALWAYS be assessed by a physician who understands the need to rule out bladder cancer. • The hematuria might be intermittent or constant. • A sense of urgency to urinate might accompany the above symptom. TREATMENT OF BLADDER CANCER The majority (about 70%) of bladder cancers are superficial. This means they are only in the lining of the bladder. However, left undiagnosed and untreated, these cells can invade the muscle wall and through it. Even with treatment, some superficial cancers may become invasive. For those with invasive bladder cancer, removal of the bladder is the most common form of treatment (called a radical cystectomy), and the construction of a new urinary diversion is required such as a catheter, or a neobladder. REGULAR CHECK-UPS For the rest of the patient’s life, a cystoscopy on a quarterly, semi-annual or annual basis is essential. Bladder cancer is the most expensive cancer to treat on a per patient basis because of an 80% recurrence rate5. EDUCATING BLADDER CANCER PATIENTS It is important for patients who are diagnosed with bladder cancer to educate themselves as best as they can to become active members of their own healthcare team. Although more research and development for bladder cancer is needed, there are resources available for patients looking to gain more information about their diagnosis: • Bladder Cancer Canada – Bladder Cancer Patient Education Meetings: and patient support one-on-one or group in and Discussion Forum on their website. Patients should consult with their medical team for any additional patient education materials on bladder cancer available through their treatment centre. Continued on next page © Copyright 2011 • All information in this newsletter is owned by or licensed to Wellspring and all rights are reserved. Charitable Registration # 89272 8940 RR0001 • www.wellspring.ca/cancersmart CANCERSMART • Wellspring Cancer Support Foundation • November 2011 • Issue 10 Bladder Cancer The Little Known Cancer CONT’D A Lifeline to Cancer Support By Valerie MacLeod and Greg Neely Bladder Cancer Survivors and Directors, Bladder Cancer Canada THE FUTURE OF BLADDER CANCER TREATMENT Unlike other urogenital cancers, bladder cancer treatments have not experienced any significant breakthroughs nor have there been any new products developed and approved. Advances in treatments have been incremental, with the same diagnosis and treatment methods being used for decades. There is a great need for improved testing for bladder cancer as there remains no single test for the diagnosis of bladder cancer such as the Prostate-specific antigen or PSA test for prostate cancer. There is also a need for improvements in treatment as the current solutions are often muscle invasive and even require removal of the bladder and other organs5. TO REACH THE DESIRED FUTURE With more opportunities for increased education, research and development and greater awareness for this lesser known cancer, there can be better outcomes for people diagnosed with bladder cancer. Bladder Cancer Canada: In 2009, two bladder cancer survivors, Jack Moon and David Guttman, found themselves alone and without peer support in their fight with this disease; they started a patient support and advocacy organization, now called Bladder Cancer Canada. Bladder Cancer Canada is integrally supported by a medical advisory board and a medical research board of leading academic urologists, oncologists and pathologists. Bladder Cancer Canada exists to provide one-to-one support for patients and their caregivers who are living with bladder cancer and its effects. It also seeks to promote awareness of this little-known cancer among the public and provide funding for research. To learn more about important updates in research, education and awareness opportunities please visit the Bladder Cancer Canada website at: www.bladdercancercanada.org Canadian Cancer Statistics 2011 produced by the Canadian Cancer Society and Statistics Canada 2 Ibid. 3 Ibid. 4 Ibid. 5 Dr. Alexandre Zlotta, “The Future of Bladder Cancer”, Bladder Cancer Canada Educational Meeting, May 28, 2011. 1 © Copyright 2011 • All information in this newsletter is owned by or licensed to Wellspring and all rights are reserved. Charitable Registration # 89272 8940 RR0001 • www.wellspring.ca/cancersmart