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Viewpoints Well-connected W © 20 16 The service is non-clinical, and the three team members are all Macmillan professionals with a variety of voluntary sector experience, including counselling, HIV charity work, and cognitive behavioural training (CBT), for example. Patients aged over 18 with any cancer type in Tower Hamlets, City and Hackney, Newham and Waltham Forest can access the service by referral through community nurse, GP practices, hospitals and self-referral. The aim is to make it easier for healthcare professionals to refer patients to the right service for them. CHANGE FOR THE BETTER Laura Westwick, Macmillan social 10 JCN 2016, Vol 30, No 1 long-term condition and those living with cancer can face considerable practical, emotional and social issues. Pe op le ar e ‘More people are being diagnosed with cancer in the UK but more people are also surviving,’ she says. ‘To improve the quality and effectiveness of care and support of those living with and beyond cancer the follow-up pathway for many tumour types is moving towards a stratified model of care. This puts more emphasis on self-care and management and moves away from routine follow-up appointments.’ ‘We support patients with a wide range of issues or personal goals.’ ou nd One example of how collaborative working is benefiting patients ‘on the ground’ is an innovative new service that is helping cancer patients connect to local services in east London. The Bromley by Bow Centre and Macmillan Cancer Support have partnered to create a social prescribing service. The service helps people improve their wellbeing on a one-to-one basis and provides support from trained professionals to explore patients’ needs, set personal goals and access work and welfare advice, art classes, walking, gardening, and meditation groups. prescribing manager at the centre, says that the cancer picture is changing. C T oo often in health care we are guilty of working alone and not utilising colleagues and services around us, even though they may have expertise and experience that might help us do our jobs better. Lt d Getting patients to access the care they need is not always easy. Jason Beckford-Ball spoke to Laura Westwick about one project in east London that is connecting cancer patients with local services... Patients who use the service come from a wide background, with recent cases including an elderly woman with bowel cancer who had developed low confidence as a result of her stoma and the effects of cancer treatment. She wanted to socialise but didn’t know how to start. She met the team and was referred to an appropriate physical activity programme and now takes regular exercise classes. Another patient needed to get back to work after cancer treatment, while others undergoing treatment have wanted to build their confidence in talking about their diagnosis — the team can connect them with psychology workshops, for example, which help them learn to discuss treatment and side-effects. Similarly, the team can provide Macmillan literature on subjects such as poor sleep and loss of appetite. Healthcare services are increasingly seeing cancer as a Westwick says high levels of deprivation in east London further compound these issues, particularly for those who feel isolated and new to the country, and who do not speak English as a first language. ‘The time spent in hospital and in appointments with health professionals represent only a small amount of patients’ time,’ she says. ‘It is vitally important that people are connected to resources and support in their community that can keep them well.’ POWER TO THE PEOPLE Westwick says that data on the first four months of the service have shown a high proportion of people in their 50s accessing the service, with a general age range of 50–80. A large percentage are black and minority ethnic, which reflects the population of east London, with large proportions of Afro-Caribbean and Bangladeshi people, in particular. ‘We support patients with a wide range of issues or personal goals,’ Westwick says.‘The support is led by the patient but the focus of our support to date has been largely around physical activity — action planning and identifying local community-based exercise programmes, breaking down social isolation, welfare and finance issues, and emotional wellbeing.’ She adds that a large part of the team’s role is in stress management and confidence building. ‘’ Lt d The more patients we see, the more the service develops... Pe op le PROBLEM-SOLVING Westwick says that setting up the service was not without problems. ar e within the excellent care and support provided by healthcare professionals, such as community nurses.’ In short, the aim is to work together to achieve better quality of life for patients. But has the service been a success? W ou nd Building relationships and knowledge of community-based services across four heavily populated and diverse east London boroughs is a particular challenge, especially given the changing nature of services. The team from the Bromley by Bow Centre. From left to right, Bav Chandegra, Laura Westwick and Anny Ash. C ‘Navigating the world of primary, secondary health care alongside staying closely linked with voluntary and community-based services can be a challenge,’ she says, ‘but is also an incredibly valuable perspective and insight to have. Particularly given a patient’s journey and interaction with these varied sectors.’ © 20 16 ‘We know that for patients with the lowest levels of self-efficacy “local” is important, so the scale of mapping and understanding is considerable,’ she says. ‘We have made huge headway in this area and the networks and services we can call on for patients continue to grow.’ The overall aim of the service is to improve the quality of life of people living with and beyond cancer, with a focus on personcentred care. This means ensuring that patients can focus on their wellbeing and that they know what local activities and community resources are available to them. ‘We also have to support the integration of healthcare and voluntary sectors,’ Westwick says. ‘We are trying to embed the service ‘After our scoping work we are delighted to have a service up and running and to be supporting local people,’ Westwick says. ‘Seeing patients build their confidence, tackle issues, take control of their health and wellbeing is really satisfying. It has also been gratifying to see professionals from different backgrounds working together. ‘We have a really dynamic group of healthcare professionals to support the development and delivery of the project,’ Westwick says. ‘This includes clinical psychologists, clinical nurse specialists such as cancer nurses, GPs, and ward nurses.’ Westwick adds that these relationships with other professionals have been invaluable. ‘The more patients we see,’ she says, ‘the more the service develops as we build our knowledge of the diverse local services and support people need to move forward.’ Finally, is there anything that the team could have done differently? ‘That is a good question,’ Westwick says, smiling. ‘There is always tweaking and improvement work we need to do, as well as further knowledge, learning and relationships to build. But would we have done it differently? No, so far it looks like we have got the service about right.’ Whatever the future holds for people with cancer living in east London, having a dedicated service funded by Macmillan that seeks to improve the link between healthcare services such as community nurses and patients, can only be a good thing. JCN Find out more... To learn more about the centre, its partnership with Macmillan, as well as the wellbeing service, visit: www.bbbc.org.uk. Here you can also find useful resources for you and your colleagues, such as: GP/practice nurse referral form Community organisation/non health professional referral form Hospital referral form. JCN 2016, Vol 30, No 1 11