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Women’s Empowerment Cancer Advocacy Network (WE CAN) 2014 East Africa WE CAN Breast and Cervical Cancer Advocacy, Education and Outreach Summit Allison Dvaladze, MPH Abstract code: #317 Disclosure of Interest: None Declared www.worldcancercongress.org Women’s Empowerment Cancer Advocacy Network (WE CAN) 2014 East Africa WE CAN Breast and Cervical Cancer Advocacy, Education and Outreach Summit 2014 WE CAN A+endee Affilia3on Advocacy organiza.on leader Community volunteer Government official Healthcare worker Background Breast and cervical cancer are the leading causes of cancer death for women in low-resource settings. This has been attributed to a lack of awareness, late stage diagnosis and limited access to care. In an effort to address this, WE CAN and the U.S. NCI Center for Global Health Women’s Cancer Program co-sponsored the 2014 WE CAN Tanzania Summit in Dar es Salaam. WE CAN has held 8 summits since 2003 Other Allison Dvaladze Melbourne, 4, December 2014 Women’s Empowerment Cancer Advocacy Network (WE CAN) 2014 East Africa WE CAN Breast and Cervical Cancer Advocacy, Education and Outreach Summit Aim • WE CAN aims to strengthen the global women’s cancer advocacy movement and to dispel damaging myths about cancer and influence social norm and public policy change to ensure progress toward reducing breast and cervical cancer-related mortality and morbidity in low-resource settings. Strategy • Provide cancer and advocacy education • Support growth of regional cancer survivor advocacy networks • Facilitate capacity building, knowledge transfer and sharing of best practices in cancer advocacy Hypothesis Allison Dvaladze • The power of individual survivor advocates is multiplied through regional networks that can be fostered through annual summits, increased communication, knowledge acquisition and sharing of best practices. Melbourne, 4, December 2014 Women’s Empowerment Cancer Advocacy Network (WE CAN) Par3cipant-‐reported knowledge acquisi3on “my knowledge of … increased” (%) Burden of disease/Risk Preven.on Early detec.on Strongly Agree Treatment Survivorship & pallia.ve care Agree Address barriers to care Neutral Advocacy Pa.ent support groups Disagree Interna.onal guidelines Strongly Disagree Engaging partners Professional/organiza.onal Public health policy 0 Allison Dvaladze 20 40 60 80 Outcomes & Lessons Learned 2014 East Africa WE CAN Breast and Cervical Cancer Advocacy, Education and Outreach Summit Creation of Malagasy Union Against Cancer Linkages between projects Increased participation of disenfranchised survivors 10 advocacy action plans Survivor stories captured for video HIV diagnosis preferable to cancer diagnosis Melbourne, 4, December 2014 Women’s Empowerment Cancer Advocacy Network (WE CAN) 2014 East Africa WE CAN Breast and Cervical Cancer Advocacy, Education and Outreach Summit Advocacy implementation “This was an eye opener. I have learned so much from others about cancer and survivorship.” -MD “Civil society and survivor advocacy groups need more support in work plan development and proposal writing” -health advocate Implement annual 9-month advocacy planning and implementation program Measure knowledge acquisition with pre- and post-tests Use stigma index to measure stigma reduction Sharing bestpractices Involve more primary care providers Stigma “There is a great need to educate nurses and doctors to deal with stigma“ -survivor advocate Develop Stigma Toolkit Allison Dvaladze Melbourne, 4, December 2014