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Cancer Registry
Cancer registries collect cancer data in the United States. The registries show new cancer
cases and death rates. Registries identify people who have gotten care at hospitals or other
medical care settings. The information helps guide cancer prevention and control programs.
The United States has cancer surveillance programs that help collect information on cancer.
The National Cancer Data Base (NCDB) is a program of hospital registries of the Commission
of Cancer and by the American Cancer Society. It’s a clinical oncology database getting
sources from hospital registry data that are collected from the Commission on Cancer
accredited facilities. The data is used to analyze and track patients with cancer, treatments,
and outcomes.
The Surveillance, Epidemiology and End Results Program of the National Cancer Institute is a
large population based registry. Information is collected from certain areas of the U.S.
population. The information that is collected is new cases of cancer, survival, and number of
people living with cancer during a time period. New cancer cases and cancer related death’s
data from the entire United States from the National Cancer for Health Statistics are
annually analyzed and published in the SEER cancer statistics review.
Population based cancer registries are supported by the National Program of Cancer
Registries (NPCR) of the Center for Disease Control and Prevention. Data is collected through
state populations. CDC provides funds to states to improve cancer registries, set up registries
that don’t exist, enhance success of registry operations, have standards for completeness,
timeliness, and quality, provide staff with the proper training, have computerized reporting
and a data processing system. Cancer registries in the state are computerized and have
Cancer Registry
public use. Cancer is monitored, patterns of cancer in different groups of people, cancer
control programs, research, and provides information of cancer for a national data base.
Information on all cancer cases in Maine are collected for The CDC Maine Cancer registry.
The Cancer Registry contains reports that provide the most frequently diagnosed cancer in
Maine. The information collected in the Maine Cancer Registry is based on the 2012 cancer
incidence and mortality data and was published May 2016.
During 2012, Maine had several new cancer cases. The types of cancer that are included are
tobacco-related (excluding lung) with the total 2,401 cases, lung and bronchus with the total
1,359 cases , female breast with the total of 1,109 cases, male prostate with the total of 860
cases, colon and rectum with the total of 662 cases, urinary bladder with the total of 488
cases, melanoma with the total of 409 cases, non-Hodgkin lymphoma with the total of 334
cases, corpus uteri with the total of 307 cases, kidney and renal pelvis with the total of 275
cases, leukemia with a total of 265 cases, oral cavity and pharynx with a total of 236 cases,
thyroid with a total of 209 cases, brain and other nervous system with a total of 120 cases,
esophagus with the total of 118 cases, myeloma with the total of 111 cases, liver and
intrahepatic bile duct with the total of 98 cases, ovary with the total of 91 cases, larynx with
the total of 76 cases, Hodgkin lymphoma with the total of 44 cases, testis with the total of 37
cases, mesothelioma with the total of 34 cases, and cervix uteri with the total of 31 cases. In
2012 Maine had a total of 8,417 all new cancer cases.
The Maine Cancer Registry (MCR) supervises cancer statewide. Cancer registration begins
with casefinding, or identifying patients with cancer. Information collected in the MCR are
Cancer Registry
newly diagnosed cancers in Maine residents. All hospitals, health care facilities, physicians,
and other providers who diagnose or treat cancer patients are required by law to report new
cases to the MCR. Information that is collected includes age, sex, race, residence,
occupation, which body part is the cancer located, how far has it spread, and treatment. The
information collected is used to monitor and evaluate cancer incidence in Maine.
Information will be used to have a better understanding of cancer, improve cancer
prevention, treatment, control, and identify areas in need of public health interventions.
Staff that are specifically trained to do the quality assurance work spend a lot of time on
making sure the information is complete and accurate through the MCR. All personal
information in confidential by requirements of federal and state law.
The types of data use for the Maine Cancer Registry are annual report, summary data
reports, identifiable data for research, local concerns about rates, and data submissions.
The annual report is used to answer the publics questions. The data users are public health
organizations, other state agencies, legislators, hospitals, universities, health insurance
companies, and private citizens.
The summary data reports are used for response to requests for aggregated data. The users
are comprehensive cancer planning initiatives, hospitals, universities, students, and state
agencies.
Identifiable data for research are used for cancer researchers and are used by researchers
and planners.
Cancer Registry
Local concerns about rates are used for investigation about cancer rates and are used by
state agencies, towns, and industries.
Data submissions are used for larger collaborative efforts. The users are North American
Association of Central Cancer Registries, National Program of Cancer Registries, and Central
Brain Tumor Registry of the United States.
The MCR’s data is used to analyze treatment results, evaluate the quality of care, and to
educate medical staff.
Maine’s leading cause of death is cancer. Deaths could be prevented through early
detection. Data from the MCR can be used to learn more about the causes of cancer, how to
prevent it, early detection for a better chance for a cure, concerns about higher rates of
cancer can be investigated further.
Cancer Registry
Division Of Public Health Systems
Maine Center for Disease Control & Prevention
A Division of the Maine Department of Health and Human Services
American College of Surgeons Cancer Programs. National Cancer Data Base (NCDB).
Accessed at www.facs.org/cancer/ncdb/index.html on March 19, 2014.
Centers for Disease Control and Prevention. National Program of Cancer Registries (NPCR).
Accessed at www.cdc.gov/cancer/npcr/about.htm on March 20, 2014.
Division of Cancer Prevention and Control, Centers for Disease Control and Prevention
Division Of Public Health Systems
Maine Center for Disease Control & Prevention
A Division of the Maine Department of Health and Human Services
National Cancer Institute. Surveillance, Epidemiology and End Results. Accessed at
http://seer.cancer.gov/index.html on March 20, 2014.
National Cancer Institute. Surveillance, Epidemiology and End Results. SEER training
modules: Cancer Registration. Accessed at http://training.seer.cancer.gov/registration/ on
March 20, 2014
http://www.maine.gov/dhhs/mecdc/public-health-systems/data-research/vitalrecords/mcr/reports/index.htm