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Stanford Chronic Disease Self-Management Program Kate Lorig, RN, DrPH  Joined Stanford in 1979 as a Cal Public Health graduate student  Developed the Arthritis SelfHelp Course  Directs the Stanford Patient Education Research Center Original Research 1991-1996  RCT funded by Agency for Health Care Research & Policy and CA Tobacco Money  Purpose: To develop and evaluate a community-based, self-management program that assists people with chronic illness Tested Program Features  Based on self-efficacy: the confidence one has that he/she can master a new skill or affect one’s own health  Workshop content was derived from focus groups of people with CI Tested Program Process  17-hour program taught by a team  CI Content: • Manage symptoms • Adhere to medication regimens • Communicate with providers • Maintain functional abilities Tested Outcomes  Health Status  Health Utilization  Self-efficacy  Self-management behaviors Original Study Results at 6 Months  Increased Exercise  Better Coping Strategies and Symptom Management  Better Communication with Physicians  Improved Self-Rated Health, Disability, Social & Role Activities and Health Distress  More Energy, Less Fatigue & Decreased Disability  Fewer MD Visits and Hospitalizations Original Study Results at 1 Year  Significant improvements in energy, health status, social & role Activities and self-Efficacy  Less fatigue or health distress  Fewer visits to the ER  No decline in activity or role functions Original Study Results at 2 Years  No Further Increase in Disability  Reduced Health Distress  Fewer Visits to MDs and ERs  Increased Self-Efficacy Original Study Demonstrated Cost Savings  Reduced hospitalizations, hospital days, ER visits and MD visits resulted in reduced health care costs  Program costs = $70 to $200 per person  Program savings = $320 to $520 per person CDSMP Outcomes Outcome Category Self-efficacy Psychological Health Status Physical Health Status Health Behaviors Healthcare utilization Health Outcome Greater self-efficacy Improvements in C1 self efficacy Better psychological wellbeing Improvements in mental stress management Improvements in frequency of cognitive symptom management Greater energy Lower health distress Considerably greater health-related quality of life Significant improvements in mental stress Significant improvements in shortness of breath Significant improvements in pain/physical discomfort Significant improvements in activity limitation Improvement in disability Improvement in depression More exercise and relaxation Significant improvements in eating breakfast Significant improvements aerobic exercise Fewer hospitalizations Fewer days of hospitalizations Fewer visits to physicians and ERs Self-rated health Significant improvements in self-reported health Social role / limitations Fewer social role limitations Better communication with physicians Improved participation in social/role activities Greater partnership with clinicians Stanford Chronic Disease SelfManagement Education Programs  Chronic Disease Self-Management Program  Diabetes Self-Management Program  Arthritis Self-Management Program  The Chronic Pain Self-Management Program  The Positive Self-Image Program  Spanish language programs Delivery of CDSMP  Program is scripted and delivered by trained leaders T-Trainers Master Trainers Program Leaders CDSMP “HEALTHIER LIVING”: About the Program  Designed to help people better manage chronic health conditions and live a happier, healthier life  Six-week workshop  Highly scripted and structured to protect fidelity  Group format–typically led by 2 peers Workshop Overview  Managing symptoms  Dealing with difficult       emotions Improving communication Relaxation techniques Tips for eating well Effective problem-solving Develop a tool box Setting weekly goals Supports “Healthy Behavior” Change  Make the new behavior as easy to do as possible and help participants develop individualized action plans or routines  Provide structured reinforcement to monitor (and celebrate!) progress  Provide support through group and facility-based programming  Use peers to help reinforce desired behavior Thanks to Dr. Rachel Seymour for permission to use slides Participants Learn and Practice Action Planning  Something YOU want to do  Reasonable  Behavior-specific  Answer the questions: What? How much? When? How often?  Confidence level of 7 or more Program Tool Box        Physical Activity Better Breathing Medications Managing Fatigue Problem Solving Planning Using Your Mind Managing Pain Communication Healthy Eating Understanding Emotions  Working with Health Professionals     Participants Learn How to Manage the Symptom Cycle Fatigue Shortness of Breath Poor Sleep SYMPTOMS A Vicious Cycle Physical Limitations Pain Stress/Anxiet y Depressio n Difficult Emotions CI Symptom Management Techniques  Relaxation  Changing their diets  Managing sleep and fatigue  Using meds correctly  Exercise  Communication with health providers Other CDSMP Content  Sexual Relations  Advance Directives  Nutrition  Pain Management  Text: Living a Healthy Life with Chronic Conditions CDSMP Covers Multiple CI  Focuses on common problems  Coping Strategies: • Action planning & feedback • Behavior modeling • Problem-solving techniques • Decision-making Problem Solving 1. Identify the problem 2. List ideas to solve the problem 3. Select one method to try 4. Check the results 5. Pick another idea if the first one didn’t work 6. Use other resources 7. Accept that the problem may not be solvable NOW Decision-Making Tool Pro Total Points Rating Con Rating