Download INFORMATION LEAFLET Arrhythmogenic right ventricular

INFORMATION LEAFLET
Arrhythmogenic right ventricular cardiomyopathy (ARVC)
What is it?
Arrhythmogenic right ventricular cardiomyopathy (ARVC) is a heart muscle abnormality that can
lead to heart rhythm disturbances and alterations in the way the heart function.
How common is it?
ARVC affects between 1 in 2000 and 1 in 5000 of the population.
What symptoms might I get?
Many people with ARVC have no symptoms but in some it can cause symptoms such as
palpitation, collapse, ankle swelling and breathlessness. ARVC is a recognised cause of sudden
cardiac death in young adults and athletes.
What extra tests are required?
You may be recommended to have a cardiac magnetic resonance imaging (MRI) scan to look at
the heart in closer detail. Some patients require more invasive assessment of the heart’s
electrical system in a procedure called electrophysiological testing. Some patients require genetic
testing to identify a gene abnormality that may have caused the condition.
Will I need treatment?
ARVC is not curable. You may be recommended to take medication such as a beta-blocker to
reduce the likelihood of abnormal heart rhythms. In some patients with ARVC, a device called an
implantable cardioverter defibrillator (ICD) is implanted to help protect against more dangerous
heart rhythm changes. Patients with ARVC are recommended to avoid strenuous exercise and
most competitive sports.
Is it hereditary?
ARVC can be inherited from either your mother or father but some times it occurs spontaneously.
For this reason it is usually recommended that your parents and any of your brothers or sisters
be screened for the condition.
Does this affect my life expectancy?
ARVC is a recognised cause of sudden death and heart failure but with drug therapy and / or ICD
therapy, life expectancy should not be reduced.
© Heart for Life Ltd. What happens next?
If you have been diagnosed with ARVC then a consultation will be made with your local
cardiologist for you to discuss your condition.
Useful links
http://www.cardiomyopathy.org
http://www.arvd.com