Download Draft of constituent letter to MLA

Document 2 - DRAFT CONSTITUENT LETTER TO MLA - AB
Your Name & Address
Date
Your MLA’s Name & Address
Dear (fill in their surname of MLA - i.e. Dear Mr. Jones),
I am writing as a constituent of yours and as someone touched by pulmonary arterial hypertension
(PAH), a rare but very complex and serious lung disease, which is progressive and fatal. I would like to
meet with you to discuss PAH and more specifically, the Canadian Agency for Drugs and Technologies in
Health (CADTH) Therapeutic Review Recommendation Report of Drugs for PAH and the Opsumit
(macitentan) Common Drug Review (CDR) recommendation.
INSERT A BRIEF PARAGRAPH OUTLINING YOUR PERSONAL STORY AND THE LINK YOU HAVE TO A PERSON
WITH PAH.
It is estimated that more than 5,000 Canadians have been diagnosed with pulmonary hypertension (PH),
but as many as 10,000 may be affected by the condition. Patients with PAH, the most severe form of
PH, live an average of two to three years if left untreated, requiring specialized PAH physicians to have
the discretion to prescribe the treatments they believe will result in optimal outcomes.
The recently released CADTH Report seeks to severely restrict physicians’ ability at diagnosis to exercise
the individual clinical judgement essential to the proper treatment of PAH. I do not believe that Alberta
should implement this recommendation, but rather that all Health Canada-approved PAH therapies
should be accessible to PAH patients at diagnosis and beyond.
I am asking for the opportunity to meet with you for 30 minutes to discuss PAH and the need to
ensure access to appropriate medications to manage this life-threatening disease.
I will follow up with your office soon to schedule a mutually convenient time to meet. Thank you for
your consideration and your ongoing commitment to people living with PAH, their families and loved
ones.
Sincerely,
Your Name