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Camden cancer campaign – Saving lives in your community Brief A – Lead community partner peer education service spec Issue Date: 3 January 2014 ____________________________________________ This is the lead community partner service specification for the peer education component of the social marketing campaign to improve early diagnosis of cancer in Camden and, thereby, cancer survival in the borough 1 1. 2. 3. 4. 5. 6. 7. Contents Invitation to submit proposals Introduction Background Service specifications – lead community partner General principles Overall objectives 12 month deliverables Co-creation process Eligible organisations Selection criteria Funding Overview of brief grass-roots community partners Target communities Key principles Plurality of providers Payment model that rewards results Selection criteria Appointment process and timeline Appendix A - Lead community partners proposal template, including detailed service specification Page 3 3 4 5-6 6 7 8 9-13 For more, please contact Hannah Burleton, Project Manager London Cancer, 170 Tottenham Court Road, London, W1T 7HA [email protected] Date of Issue 3 January 2014 2 Improving cancer survival in Camden - Peer education service specification – lead community partners 1. Invitation to submit proposals Organisations with excellent project management and community engagement credentials are invited to submit proposals to lead peer education interventions in the London Borough of Camden, designed to promote the early diagnosis of cancer. The initial 12 month contracts – the first phase of a concerted three year programme to reduce avoidable deaths from cancer –will commence at the beginning of April 2014. Prospective partners are encouraged to attend a workshop on the morning of Wednesday 29 Jan 2014 at the London Cancer offices (Boardroom, 3rd Floor, 170 Tottenham Court Road, W1T7HA). Please note: Submissions must follow the template provided in Appendix A. The deadline for full submissions is Friday 14 February 2014 at 12pm (see page 8 for full schedule). The total investment in the initial 12 month peer education contracts will be £73,000 (see page 7). Social marketing materials and channels will be provided at no additional cost. 2. Introduction The NHS in Camden (Camden Clinical Commissioning Group) has commissioned London Cancer1 (part of UCLPartners) to undertake a concerted three year programme to reduce avoidable deaths resulting from the late diagnosis of cancer in the borough. Community engagement/peer education via small groups and one-to-one conversations will be a crucial part of the overall programme. The peer education service specification and payment model in this document are designed to incentivise the participation of grass-roots community groups within a strong management and governance framework. The intervention will initially focus resources on achieving minimum 12 month deliverables within two sub segments of the broader target groups. These interventions will be subject to separate contracts. While the early warning signs of cancer will be promoted consistently throughout the programme, specific cancers will be prioritised on an annual basis. Target populations and cancers in the FY 2014/15 The Bangladeshi community – targeting all 7,700 adults to reflect the potential influence of younger family members on their older relatives. The initial focus will be common cancers, including bowel and lung cancer. Residents aged 50+ in the most deprived communities – targeting 10,482 people aged 50+ in the four most deprived wards – those with the highest proportion of residents in the two most deprived quintiles - St Pancras and Somers Town Ward (89%), Kilburn Ward (85%), Cantelowes Ward (83%) and Haverstock Ward (77%). The initial focus will be bowel cancer. 1 London Cancer (part of UCLPartners) has been commissioned by the CCG to deliver the three year programme, in close partnership with the CCG cancer lead, Lucia Grun and the LA public health team. London Cancer was launched in 2012 as one of two Integrated Cancer Systems serving the capital. It represents a new way of organising cancer care in north central and north east London, and west Essex, bringing together the region's primary, secondary and tertiary care providers in a formal governance structure, which also harnesses the expertise of leading cancer academics, patient representatives and charities. 3 Targeting the Bangladeshi adult population Targeting residents aged 50+ in the most deprived communities These two priority groups are considered to be at greater risk of cancer and/or later diagnosis of the disease. Almost nine out of ten cancers occur in people aged 50 and over, and deprived and BME communities (of which the Bangladeshi community is the largest in Camden) are less likely to be aware of the signs and symptoms of cancer. How the peer education interventions will be managed – overview ‘Grass-roots community partners’ will be ‘licensed’ and coordinated by a ‘lead community partner’ contracted to London Cancer to coordinate the intervention within one or both of the 2014/15 priority communities. Reflecting this, a fixed fee management contract will be awarded, alongside multiple local peer education ‘licenses’. Lead community partners will receive support from London Cancer to recruit grass-roots community groups. Licensed grass-roots community partners will be eligible for funding designed to reward achievement of minimum 12-month deliverables, agreed with the lead community partner. Success will be measured using awareness of the campaign and its key messages, and a reduction in perceived barriers to seeking help from a GP, within 20% of the target populations. Residents engaged directly will be encouraged to share potentially life-saving information with friends and loved ones, thereby extending the reach of the campaign within these target communities. The combined local knowledge of the lead partners and grass-roots community groups will enable highly tailored community engagement, which is likely to vary significantly from one intervention to another. Prospective partners will be encouraged to submit proposals that detail the activities they feel will engage with and influence the target community most effectively. 4 3. Background Cancer survival in the UK continues to lag comparable countries With the exception of breast cancer, improvements in UK cancer survival are not closing the gap with comparable countries. Today, most early stage cancers are survivable, but too many people still present when the cancer has reached an advanced stage, when it is difficult, if not impossible, to cure. If British cancer survival rates equaled those of Sweden, the best in Europe, up to 11,5002 cancer deaths would be avoided each year, primarily through earlier diagnosis3. Cancer accounts for 35% of premature deaths in Camden and the toll is disproportionately high among women and deprived communities 775 new cases of cancer are diagnosed in Camden every year (2008-2010). 341 residents die from the disease (2009-2011), and it causes 35% of deaths in residents under the age of 75: 25% of male mortality and 45% female mortality. The toll of the disease is also disproportionately high among deprived communities. Treatment at an earlier stage of the disease would save many of these lives The three most common cancers – which account for over half of all cases – demonstrate how early diagnosis is so often the difference between life and death. Cancer Breast Late stage 5 year relative survival 13% Early stage 5 year relative survival 92% Lung – non-small cell 2-13% 58-73% (stage 1A) Bowel 6.6% 93.2% Programme context The peer education interventions are part of a wider social marketing campaign to promote early diagnosis of cancer. This is integrated with an education programme of professional development to improve GP referral of patients for investigation of symptoms. 4. Service specification – lead community partners a. General principles i. Overall objectives The overall objectives of the peer education programme are to: Increase early presentation to primary care with symptoms suggestive of cancer by raising awareness of cancer symptoms and reducing perceived barriers to seeking help from GPs Increase the uptake of national screening programmes in Camden Raise awareness of any service changes designed to promote early diagnosis ii. Minimum 12-month deliverables – FY 2014/15 Direct peer education of at least 20% of the target populations (5% by month 6 and 20% by month 12): o Bangladeshi adults (total population 7,700) 2 M P Coleman et al, The Lancet, 377: 9760; 127-138, 8-14 January 2011: if cancer survival rates in Great Britain matched the European average, then 6,000–7,000 deaths could be avoided each year. And if they matched the best, around 11,500 deaths could be avoided. 3 Richards M. The size of the prize for earlier diagnosis of cancer in England British Journal of Cancer 3 December 2009 5 o Target number: 1,540 (year-end), including 385 by month six Or Residents aged 50+ in four most deprived wards (10,482 ) Target number: 2,096 (year-end), including 524 by month six A total of 499 (aged 50+ in four boroughs)/361 (Bangladeshi adults) paper surveys will be undertaken during the course of the 12 months, including 232 (aged 50+ in four boroughs)/168 (Bangladeshi adults) at the beginning of the interventions – to set the baseline Average 30% improvement in symptom awareness and 10% reduction in perceived barriers among a sample of 35 (aged 50+ in four boroughs)/25 (Bangladeshi adults) surveyed immediately after a face-to-face peer education intervention over the course of the 12 months Average 5% improvement in symptom awareness and 5% reduction in perceived barriers among a sample of 232 (aged 50+ in four boroughs)/168 (Bangladeshi adults) residents in each target population surveyed 9-12 months after the start of the intervention (sample to reflect a 50:50 ratio of participants and nonparticipants in face-to-face peer education intervention) to assess the impact the intervention has had on the priority communities Minimum 12 month deliverables – summary table Peer education Population to receive direct peer education by month 6 Population to receive direct peer education by end of month 12 Paper-based surveys Start of intervention Months 9-12 During intervention immediately before and after peer education Bangladeshi population Residents aged 50+ in four most deprived wards 385 524 1540 2096 168 168 25 232 232 35 iii. Co-creation workshop – Wednesday 29 January 2014, 10:00am Prospective community partners – responding to briefs A and B – will participate in a co-creation workshop informing the development of their full proposals and the campaign materials they will use. Regular meetings and participation in social media discussions and events will then promote the sharing of learning and best practice. iv. Eligible organisations Proposals are invited from any organisation – public, private or third sector – which is able to demonstrate that it fulfills the contract criteria. Organisations can bid for more than one of the lead community contracts. NB: Funding will not be available for individuals or to subsidise the general costs of groups and organisations. 6 b. Service specification breakdown Lead community partners will be directly accountable to London Cancer for operations and performance – both directly, and on behalf of grass-roots community partners – in the domains set out in detail in Appendix A. c. Selection criteria Successful lead community partners will demonstrate: Experience and success relevant to each domain of the service specification Strong project management skills and demonstrable track record Empathy with grass-roots community groups A reputation as a trusted and effective manager of peer education interventions, including the testimonial of at least three previous clients Track record of success as an agent of change in influencing the target community, including working through existing community networks Track record of successful direct peer education Legitimacy and viability: o Registration with the Charities Commission/Companies House or other relevant registration body o Constitution or Terms of Reference o Financial statement for the previous year or audited accounts and a copy of the organisation’s financial protocols. Recently established organisations may provide a recent bank or building society statement and financial protocols. d. 12 month funding Fixed fees of £20.5k (Bangladeshi)/£28k (older people in most deprived wards) will be payable over the initial 12 month contract (50% payable on commencement and 50% at the end of the 12 months, on achieving the 12 month minimum deliverables) In addition, a total fund of £10.3k (Bangladeshi)/£14k (people aged 50+ in the four most deprived wards) will be available to the grass-roots community partners, at the end of year one, on achieving their agreed minimum 12-month deliverables. These funds will be paid to grass-roots community groups by London Cancer 5. Overview of brief for grass-roots community partners (see Brief B for full details) a. Target communities Grass-roots community organisations and groups in the London Borough of Camden will be invited to submit proposals to plan and implement a programme of community engagement targeting one or both of the Y1 priority groups. They will be accountable to the lead community partner. b. Key principles Plurality of providers The closer the organisation to the target community, the more insight and knowledge they will have, and the more effective they are likely to be in reaching and influencing the residents most vulnerable to late presentation. This is the great strength of peer education/community engagement, and it is why the number of peer education partners for each intervention is unrestricted. As long as a local group can demonstrate that it meets the agreed criteria, it will be eligible to participate in the programme. 7 All grass-roots community partners commissioned to undertake the intervention will be ‘licensed’ by the lead community partner as part of an approved provider framework, setting out obligations, including engaging/surveying agreed numbers of the target populations, recruitment of volunteers, training of staff/volunteers, use of approved materials, adherence to approved messages and messengers, governance and support for the lead community partner to fulfill the terms of their contract. Payment model that rewards outcomes Grass-roots community partners will agree minimum 12-month deliverables with the lead community partner and, on meeting these targets, will receive an agreed share of a fund set aside for grass-roots community partners. Payments will be made directly by London Cancer. 6. Appointment process and timeline All prospective lead community partners are asked to note the following dates, and be available for: Co-creation workshop on Wednesday 29 January 2014 at 10 am Interviews on Wednesday 19 February 2014 (morning) If successful in the interview, to participate in the evaluation of submissions from grassroots community partners on Wednesday 26 February 2014 (morning). All meetings will be held at London Cancer, 170 Tottenham Court Road, W1T 7HA. The deadline for the submission of full proposals is noon on Friday 14 February at 12pm. Stage in process Potential lead and grass-roots community partners invited to submit proposals Workshop for all prospective partners to inform the development of full proposals. This will be an opportunity to ask questions, make connections and hear what has and hasn’t worked in previous early diagnosis peer education interventions Final deadline for the submission of full proposals by prospective lead community partners, and grass-roots community partners Evaluation of prospective lead community partner submissions by London Cancer and the London Boroughs of Camden and Islington public health team. Organisations informed of outcome Formal interviews of shortlisted lead community partner organisations Organisations informed of outcome Evaluation of prospective grass-roots community partner proposals (with selected lead community partners) Grass-roots community partners notified of outcome Licensing of grass-roots community partners by lead community partner(s) begins First training session for staff and volunteers Submission of full, consolidated engagement plans to London Cancer Community engagement commences Deadline 3 Jan 2014 29 Jan 2014 (10.00 12.30) 14 Feb 2014 (noon) 18 Feb 2014 19 Feb 2014 (am) 20 Feb 2014 26 Feb 2014 (am) 27 Feb 2014 28 Feb 2014 TBC Mar 2014 31 Mar 2014 1 Apr2014 8 Appendix A Lead community partner proposal template, including detailed service specification Please note: Deadline for submitting full proposal: Friday 14 February 2014, 12pm to [email protected] Maximum word count: 2000-2500 words Introducing your organisation Insert name and full contact details Insert purpose, mission, organisational objectives and how a contract to reduce avoidable deaths from cancer in Camden aligns with these priorities Insert which contract this proposal applies to (please submit separate proposals if you are applying to be the lead community partner for both contracts) How you plan to achieve the 12-month objectives (see summary table on page 6): Direct peer education of at least 20% of the target populations (5% by month 6 and 20% by month 12): o Bangladeshi adults (total population 7,700) Target number: 1,540 (year-end), including 385 by month six Or o Residents aged 50+ in four most deprived wards (10,482 ) Target number: 2,096 (year-end), including 524 by month six A total of 499 (aged 50+ in four boroughs)/361 (Bangladeshi adults) paper surveys will be undertaken during the course of the 12 months, including 232 (aged 50+ in four boroughs)/168 (Bangladeshi adults) at the beginning of the interventions – to set the baseline Average 30% improvement in symptom awareness and 10% reduction in perceived barriers among a sample of 35 (aged 50+ in four boroughs)/25 (Bangladeshi adults) surveyed immediately after a faceto-face peer education intervention over the course of the 12 months Average 5% improvement in symptom awareness and 5% reduction in perceived barriers among a sample of 232 (aged 50+ in four boroughs)/168 (Bangladeshi adults) residents in each target population surveyed 9-12 months after the start of the intervention (sample to be based on a 50:50 ratio of participants and non-participants in face-to-face peer education intervention) to assess the impact the intervention has had on the priority communities Insert details of the staff you plan to commit to the contract, their capacity and capability to undertake it, and how they will be supported and managed by the organisation. Insert details of how you plan to manage and support the grass root community partners. Also indicate the grass root community groups and organisations you believe are best-placed to deliver peer education with the target communities. Strengths, weaknesses, opportunities and threats Insert how you perceive these in relation to your ability to undertake the contract. 9 Domain A – Appointing and ‘licensing’ grass-roots community partners Participating in the evaluation of peer education proposals from prospective grass-roots community partners Appointing grass-roots community partners in partnership with London Cancer and the LB Camden and Islington public health team Agreeing the contribution each grass-roots community partner will make to achieving the overall targets – as the basis for payment Ensuring that they meet agreed standards and have appropriate skills to communicate effectively with residents in the target groups, including: o Cancer awareness/key messages o Communication skills (including dealing with sensitive subjects and managing anxiety) o The importance of collecting evaluation data and how to do it Working with grass-roots community partners to recruit and maintain an agreed cohort of trained peer education volunteers Booking all staff/volunteers who are going to undertake peer education onto approved training courses – in the pre launch phase and on an on-going basis – by agreed dates Ensuring that the required number of staff/volunteers attend each course Updating a London Cancer database of trained staff/volunteers Organising regular progress meetings and engagement events for peer education staff/volunteers Insert how you would manage this part of the contract and relevant experience. Domain B – Undertaking direct face-to-face peer education As well as supporting and managing the activities of grass-roots community partners, the lead community partner is likely to undertake direct face-to-face peer education, as set out in the grassroots community partner brief, Brief B. Insert how, where and how often you will undertake peer education directly, and how many residents you will engage face-to-face in this way over the 12 month contract. Insert relevant experience and track record in this domain. Domain C – Benchmarking and monitoring population awareness All payments will be contingent on the satisfactory and timely presentation of required monitoring information. Recording engagement with the target populations, including numbers, approximate age, gender and materials received Benchmarking awareness and barriers to help-seeking behavior, using supplied paper-based Cancer Awareness Measure (CAM)-style survey surveying 232 (aged 50+ in four boroughs)/168 (Bangladeshi adults) residents at the beginning of the interventions – to set the baseline Ensuring that surveys are undertaken by participants to agreed standards Inputting baseline survey results to the London Cancer Awareness Tracker Database Monitoring the quality of the intervention by surveying a sample of 35 (aged 50+ in four boroughs)/25 (Bangladeshi adults) immediately after a face-to-face peer education intervention over the course of the 12 months Monitoring the impact of the intervention on the target population at the end of the first 12 months by surveying a sample of 232 (aged 50+ in four boroughs)/168 (Bangladeshi adults) residents 9-12 months after the start of the intervention (sample to have a 50:50 ratio of participants and nonparticipants in face-to-face peer education intervention) 10 Insert relevant experience and track record in this domain, and indicate the support you can give to the grass-roots community partners to undertake the surveys. Domain D – Developing and implementing robust governance Developing and implementing systems and processes to assure agreed professional standards and controls Keeping records that demonstrate compliance Setting out the basis for allocating ring-fenced funds to grass-roots organisations on achievement of their agreed 12 month deliverables Taking up references and Disclosure and Barring Service (DBS)4 checks on all staff and volunteers, and providing them with appropriate training and continuous support Ensuring that any staff and volunteers who start without an Enhanced DBS check receive on-going supervision of an Enhanced DBS checked member of staff and do not have unsupervised contact with older and vulnerable adults NB Unannounced visits may be made to monitor standards. Following an unannounced monitoring visit, London Cancer will write to the lead community partner detailing any areas of concern and any further action required Agreeing in advance and funding incidental expenditure from lead community partner funding by peer education partners on engagement events, eg beverages and stall hire Organising regular (at least bimonthly) update/governance meetings with London Cancer Insert relevant experience and track record in this domain Domain E – Developing, maintaining and reporting a 12-month engagement programme Developing a stand-alone engagement proposal for submission by the 14 February deadline Consolidating this and the full proposals of successful grass-roots community partners into a single community engagement programme using the template provided by London Cancer. The full engagement plan will be held and updated on the London Cancer IT system Submitting monthly electronic activity reports to London Cancer by agreed deadlines using the template provided to track progress against the full proposal Submitting a full year-end report to London Cancer Sharing best practice and feeding back to London Cancer any issues with the campaign materials and key messages Insert relevant experience and track record in this domain Domain F – Project and performance management Ensuring that grass-roots community partners undertake direct peer education with the target number of participants to agreed standards and in line with their engagement programmes Ensuring that grass-roots community partners undertake the agreed number of benchmarking, quality and impact surveys to agreed standards Ensuring that grass-roots community partners fulfill the terms of their ‘licenses’, including recruitment of volunteers, training of staff and volunteers, use of approved materials, adherence to approved messages and messengers, governance and support for the community lead partner to fulfill the terms of the contract 4 Staff employed by the lead partner and grass-roots partners in connection with the provision of the service may be working with vulnerable people. The lead partner must ensure, throughout the contract period, that all staff have been subject to Extended Disclosure and Barring Service checks and that adequate disciplinary procedures are in place to protect older adults against any form of improper conduct by staff. 11 Insert relevant experience that speaks to strong project and performance management skills and track record Insert three references from past clients that demonstrate a reputation as a trusted and effective manager of peer education interventions Domain G – Working with community partners and targeting influential individuals Working with grass-roots partners to access the target groups through local authority and primary care organisations, and other local third parties Ensuring that the engagement programme is coherent across participating grass-roots peer education partners and within target localities – avoiding duplication Accessing the target populations through LB Camden teams such as housing, social care and health, and other community organisations such as residential and nursing homes Ensuring that local GP practices and pharmacists are aware of, and full partners in, the engagement of the target groups. This is likely to include speaking at practice and pharmacy team meetings Disseminating campaign materials through GP practices and pharmacies (following their agreement) Accessing and disseminating materials to the target populations through other local third parties such as mosques and other faith organisations, community centres, supermarkets, pubs, coffee mornings and bingo, sports, hobby and lunch clubs Working with grass-roots community partners to identify and target influential members of the target communities Specifically targeting individuals who are influential within the target community ‘Co-opting’ residents to engage with friends and relatives in the target groups who are unlikely to engage with the campaign directly, particularly ‘unconfident fatalists’ and ‘live for todays’, as defined by the Healthy Foundations life-stage segmentation model toolkit: http://www.cancerresearchuk.org/prod_consump/groups/cr_common/@nre/@hea/documents/genera lcontent/cr_045215.pdf Insert relevant experience in this domain, including track record of success as an agent of change in influencing the target community/working through existing community networks/targeting influential individuals Domain H – Disseminating information through communications channels, and supporting the central stakeholder engagement programme Disseminating approved information through the communications channels of grass-roots community groups Ensuring grass-roots community partners disseminate targeted, up-to-date and accurate information through their printed and digital communication channels, such as newsletters, social media forums, and websites Reporting coverage in the monthly management report Supporting the central media campaign Liaising with grass-roots community partners to identify opportunities for media coverage as part of the centrally coordinated campaign Reporting local media coverage in monthly management reports Supporting the central stakeholder engagement programme Organising and attending briefing meetings with key community stakeholders to secure their endorsement and access to their events and communication channels to promote the campaign and its key messages Promoting participation of grass-roots community partners and volunteers in a social media forum Orchestrating and participating in conversations among volunteers to support their engagement activities and to share learning 12 Ordering, holding and distributing campaign materials Managing support materials and ensuring that grass roots community groups and volunteers are supplied with what they need, when they need it Insert relevant experience and track record in this domain Additional informatiom Please provide the following details: Registration with the Charities Commission/Companies House or other relevant registration body Constitution or Terms of Reference Financial statement for the previous year or audited accounts and a copy of the organisation’s financial protocols. Recently established organisations may provide a recent bank or building society statement and financial protocols. Insert additional information in this domain Submit proposals and any queries to Hannah Burleton, Project Manager London Cancer, 170 Tottenham Court Road, London, W1T 7HA [email protected] Date of Issue 3 January 2014 13