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MISSION We provide support by reducing and/or eliminating barriers to screening, diagnosis and treatment of cancer Founded in 2008 Sponsorship by the Kentucky Breast Cancer CoalitionEstablished as -Kentucky Pink Link- obtained 501 3c status 1st Grant from Susan G. Komen Lexington, KY Vision-Create a state-wide patient navigation program for breast cancer patients. 1 navigator Free-standing non-profit to serve the state of Kentucky Program Model Dr. Harold P. Freeman- 2008 – attended Dr. Freeman’s Patient Navigation Institute- NY The concept of patient navigation was founded and pioneered by Harold P. Freeman in 1990 for the purpose of eliminating barriers to timely cancer screening, diagnosis, treatment, and supportive care. A critical window of opportunity to apply patient navigation is between the point of an abnormal finding to the point of resolution of the finding by diagnosis and treatment. - Program Expansion 2008-2014 April 2009 April 2013 Added Cervical Screening navigation Added Colon Cancer screenings- FIT test Name change to Kentucky Pink Connection April 2014 – All Cancers Last and final name change Kentucky CancerLink, Inc. TODAY WE HAVE 6 NAVIGATORS 2 NAVIGATORS HEALTHCARE BARRIERS FOR UNDERSERVED EDUCATION TRANSPORTATION ACCESS FEAR FINANCIAL MISTRUST DISABILITY LANGUAGE CULTURAL POVERTY Screening services provided Provides access to no cost cancer screenings. Mammograms Cervical Screening In Home colon test kits Lung cancer screenings *new guidelines KCL NAVIGATORS PROVIDE APPOINTMENT SCHEDULING REMINDER CALLS/ ACCESS TO TIMELY APPOINTMENTS/ FOLLOW UP CARE OUTREACH AND EDUCATION PROGRAM COMMUNITY HEALTH EVENTS STATE-WIDE SPEAKING ENGAGEMENTS ONE-ONE INTERVIEWS MEDIA PRINT ADS/SOCIAL MEDIA NEWSLETTER WEBSITE FACEBOOK TWITTER PATIENT SERVICES PROGRAM Support for Cancer patients TRANSPORTATION CHILDCARE INTERPERTER MEDICATIONS WIGS/HEADWEAR MASTECTOMY SUPPLIES REFERRAL SERVICES TO OTHER SUPPORT SYSTEMS- FOOD, HOUSING SUPPORT GROUPS, SMOKING CESSATION CLASSES, LIVESTRONG KCL YEAR TO DATE ALL CANCERS Kentucky CancerLink Stats: January 1, 2015 — July 1, 2015 Quantity of Services: 2872 Number of clients: 1499 Counties served: 100 Gas cards ($25) provided: 855 Cancer screenings provided: 660 Colon Fit test completed 239 Mammograms navigated Number of gas card clients: 437 KENTUCKY CANCERLINK OUR LINKS…….. OUTREACH WEBSITE SELF REFERRAL KCL FQHC/FREE CLINICS COMUNITY HOSPITALS SOCIAL WORKERS How do we do what we do??? Grants-Events-Donations LET’S TALK ABOUT Community Services What is community service? Community Service refers to service that a person or organization performs for the benefit of his or her local community. TYPES OF COMMUNITY SERVICE WORKERS SOME ARE PAID, SOME ARE UNPAID THEY MAY BE CLASSIFIED AS ADVOCATES OR VOLUNTEERS LAY NAVIGATORS,AMBASSADORS, MEMBERS OR REPRESENTATIVES OF A CERTAIN CAUSE OR GROUP IT IS ALL IN THE NAME OF HEALTHCARE COMMUNITY HEALTHCARE WORKERS PATIENT ADVOCATE LAY PATIENT NAVIGATOR OUTREACH WORKER WHY COMMUNITY SERVICE WORKERS ARE SUCCESSFUL? FRONTLINE WORKERS WHO HAVE A CLOSE RELATIONSHIP WITH THE COMMUNITY LIAISON/LINK BETWEEN HEALTH/SOCIAL SERVICES FACILITATE ACCESS TO SERVICES WORK IN UNDERSERVED AREAS SHARED LIFE EXPERIENCES KNOW THE SYSTEM WHAT ARE THE ROLES OF COMMUNITY SERVICE WORKERS/NAVIGATORS/ADVOCATE • Creating more effective linkages between vulnerable populations and the health care system; • Managing care and care transitions for vulnerable populations; • Ensuring cultural competence among health care professionals serving vulnerable populations; • Providing culturally appropriate health education on topics related to chronic disease prevention, physical activity and nutrition, and cultural competence; • Advocating for underserved individuals to receive appropriate services; • Providing informal counseling; and • Building community capacity to address health issues. BARRIERS COMMUNITY SERVICE WORKERS FACE Transportation Available Services Knowledge Cost of Services Insurance Discomfort with Services Hours of Operation Legal Documentation Cultural Differences Language / Interpretation WHO IS DOING WHAT? NEED FOR COLLABORATION AND CERTIFICATION Training, Certification and Credentials Patient navigation/advocacy is a new undertaking that has really gained traction over the past five years. The key point is that there is no nationally recognized license, credential or certification at this point in time. Patient advocates are not regulated by states nor is there any credentialing requirement for someone to say they are a patient advocate or navigator. IT TAKES A VILLAGE! Most of us who do this work come to it through our own experiences dealing with the health care or elder care system (whether as a patient, caregiver, nurse, social worker, etc.) In most cases, there is no specific background or education that is required, except for clinicallybased positions. I have found that a passion for helping others, good research, communication, interpersonal and organizational skills as well as the ability to be creative in finding resources and solving problems are what it takes.
