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Focus Your magazine from Autumn 2015 Wiping out trachoma You’re part of the largest infectious disease mapping project in history River blindness You can help end this disease in the next ten years Thank you for all we have achieved Get involved With every share or retweet you can help us reach more people, raise more money and save more sight. Like us on Facebook SightsaversIreland I have been Chief Executive of Sightsavers Ireland for two years now. And I am so proud when I look at everything loyal Irish supporters have achieved in this time. On page 4 you can meet Nahbila, whose entire community has been protected from river blindness. While on page 6 you can read about the incredible opportunity we have to eliminate trachoma by 2020. Thanks to you, a world in which people are free from these terrible, blinding diseases is within our grasp. But your amazing generosity doesn’t stop there. Your continued donations to our A Million Miracles appeal have so far funded 12,281 sight-saving operations. On page 15 you can meet young Saif, whose life has been transformed. Although we still have many challenges ahead, I’m thrilled that together we’re achieving results. Thank you for the hope you give. Follow us on Twitter sightsaversIE Watch us on YouTube SightsaversTV Keep in touch We always like to hear from you, so please get in touch with your news, thoughts and feedback: email [email protected] (Monday to Friday, 9am-5pm) How we use your donations Autumn 2015 4 You can eliminate river blindness An end to this awful disease is in sight 6 The Global Trachoma Mapping Project Help us wipe the infection off the map 10 You are inspiring community change Promoting eye care in Guinea Bissau 12 Some of our amazing supporters Fundraising efforts from around the country 14 Junior painters Our schools competition has been a great success 15 A Million Miracles You’re making more miracles happen telephone 1850 60 20 20 Michael Marren Chief Executive, Sightsavers Ireland Focus write to inside this issue… 6 4 15 Sightsavers 70 Upper George’s Street Dún Laoghaire Co. Dublin And we’re proud that the vast majority of every €1 donated goes directly to our projects. 94.5c is spent on our vital work 5c grows awareness and helps raise the next €1 0.5c keeps us running Our cover shows trachoma screening in Sudan − Ophthalmic Medical Assistant Ahmed Elsheikh carefully checks a villager for signs of trachoma, as part of The Global Trachoma Mapping Project. On page 6 you can read more about the unique chance you have to be part of eliminating this painful and blinding infection in just five years. 2 Thanks for your support! www.sightsavers.ie Sightsavers is fully committed to The Statement of Guiding Principals for Fundraising and also fully adheres to the Dóchas Code of Conduct on Images and Messaging. Front cover image: ©Kate Holt/Sightsavers 10 Images clockwise from top left: ©Mike Goldwater/Sightsavers, ©Kate Holt/Sightsavers, ©Tim McDonnell/Sightsavers, ©Balla Musa Joof/Sightsavers 3 You can eliminate river blindness Your donations have brought us so close! Now we’re confident you can help wipe it out in just ten years “I hold my grandmother’s hand to help her because she can’t see. I like to fetch water for her to drink. When I grow up I want to be a farmer and work in the field. I am very happy to have treatment that will stop me going blind like my grandmother. If I was blind I know it would always be very dark and I would be frightened.” It’s not often you hear that a disease has been completely eliminated – it’s just not an everyday occurrence, not even a lifetime one! That’s why we’re so excited. You can help us eliminate river blindness. Not only that, we believe it can happen by 2025. Elimination is in sight! Caused by blackfly But there’s still a long way to go. While some regions are close to elimination, there are still many where the disease is rife. Your donations ensure more people like Julianna feel reassured that their children and grandchildren are protected from harmful diseases. River blindness is an infectious disease caused by blackfly that live by fast-flowing rivers. When a fly bites, it transmits tiny worms under the skin, causing intense itchiness. When the worms die they can cause inflammation around the body. If this happens in the eye it leads to blindness. Julianna is one of the 37 million people in the world already affected by this agonising disease. She lives in Bamenda, Cameroon close to her three children and twelve grandchildren. We got to chat to Julianna, her son Buma and her six-year-old granddaughter Nahbila to see how river blindness has affected them. With your continued support the elimination of river blindness is achievable. Working with partners around the world, we’ve already managed to eliminate the disease in many regions of Uganda, Nigeria and Mali. River blindness causes intense itching and inflammation, which can lead to blindness “I have been sick for more than twenty years,” Julianna told us, “I have been having pains all over and my whole body is itching. I first had problems with one eye and kept going to see an eye doctor but my eyes were not good. I have been completely blind for seven years. The night and day are the same. I can’t tell the difference. All I know is the pain in the skin.” Julianna’s family protected We know how to treat it, we just need help getting the treatment to those who need it most and with your support, we can reach elimination – and you can be part of history! So watch out river blindness, we’re coming to get you! Read more about river blindness at sightsavers.ie Globally, 120 million people are at risk of contracting river blindness and 37 million are already infected Thanks to your support, Nahbila is protected every year against river blindness All images: ©Mike Goldwater/Sightsavers 4 Nahbila leads her grandmother Julianna by the hand to travel around their village Because of donations like yours, there is now treatment available in Julianna’s village, which means her children and grandchildren are protected from river blindness. This treatment is called Mectizan®, and distributing it in the village has stopped river blindness in its tracks. The infection can be treated with a single tablet, taken once or twice a year for 10-15 years. It costs just 8c per person to distribute. Being so close to her grandmother, Nahbila knows how important her own sight is. 120 million Nahbila, Buma and Julianna outside their home in Bamenda, Cameroon “I am very angry about losing my sight. I used to be a farmer, but now I can’t do anything.” The Global Trachoma Mapping Project You’ve been part of the largest infectious disease mapping exercise of all time Wiped off the map Trachoma is an incredibly painful bacterial infection and the world’s leading infectious cause of blindness. It is spread by flies, touch and clothing. The disease is especially common in areas with little or no sanitation. Since 2012, the mapping project has been trying to identify where in the world trachoma is most prevalent. This ambitious task involves a huge collaboration of organisations such as Sightsavers, World Health Organization, ministries of health, academics, scientists and disease experts. The project involved training health workers to gather data using smartphones. We’ve already logged nearly 1,400 districts in 22 countries – a unique and significant achievement in itself. Dr Elkhair’s team Dr Bilghris Elkhair is the national coordinator for trachoma mapping in Sudan. She explains how the work is carried out. “In every village we select 30 houses neighbouring each other. We examine every household member except for babies under one year old. If we find any signs of Repeated infections cause scarring that makes the eyelashes turn inward. They scrape the eyeball painfully with every blink, eventually causing blindness. More than 21 million people suffer from trachoma. But due to out-of-date or non-existent data, many more have remained unidentified – until now. trachoma we assess how advanced it is and either provide ointment or refer the person for treatment. We also check for other eye conditions such as cataract. All the information we collect is sent for data analysis as part of the mapping project.” ✁ € (please enter own amount) ............................................................................................................ Postal Order If you would like to receive occasional updates from Sightsavers please provide your details below. We will not share your data with any other organisation and you can unsubscribe at any time. (made payable to Sightsavers) Or: Mastercard Visa Amex Card No: Expiry Date 2.1 million Email................................................................................................. Phone............................................................................................... / Sightsavers is fully committed to The Statement of Guiding Principals for Fundraising and also fully adheres to the Dóchas Code of Conduct on Images and Messaging. Name on Card Signature Name................................................................................................. Address........................................................................................... 2 Payment method: Cheque We know where help is needed. With the information we’ve gained we’re more determined than ever to meet the World Health Organization goal of eliminating trachoma by 2020. Donations like yours were such an important part of this mapping project – now you can help wipe trachoma off the map completely. ANM151 3 About me: 1 Here is my donation of: Date Please return your completed form to: Sightsavers, 70 Upper George’s Street, Dún Laoghaire, Co. Dublin Please allow 14 working days for processing of donations and issuing of acknowledgements. Your donation will be used to support our work wherever the need is greatest. Company registered number 377692 and registered charity number CHY 15437. An elderly woman has her eyes checked for signs of trachoma, as part of The Global Trachoma Mapping Project you’re supporting The mapping project is due to complete in October 2015. It gives us an amazing opportunity to provide treatment more efficiently and effectively than ever before. But we urgently need to reach communities before the information we’ve gained goes out of date. Please will you donate whatever you can today, to help free people from this terrible disease? Dr Bilghris Elkhair leads the trachoma mapping team in Sudan Yes, I want to help wipe trachoma off the map All images ©Kate Holt/Sightsavers “Our biggest challenge in Khartoum is reaching rural communities living on the outskirts. Some places are four hours away. But the people are very supportive and keen to help. It feels good that we’ve nearly finished mapping the Sudan. It’s a very big country so it’s an important job done.” Islam Mohamed Mosa, who is part of one of the trachoma mapping teams, sends recorded data, gathered on a smart phone, directly back to the data collection centre By February 2015 we had examined 2.1 million people – more than one every minute 7 You’ve given hope for generations Before he caught trachoma, 82-year-old Issa Dawood was a farmer and taught religious studies to local children. Today he’s no longer able to work and relies on his wife and children. As well as destroying his sight, the infection has caused scarring to his eyelids. This makes his eyelashes turn inwards and scratch painfully with every blink. Thankfully Issa is now receiving treatment. The Trachoma Mapping Project has given him hope for the future, as he knows his children won’t suffer the same fate he did. “I’m very happy that trachoma mapping is happening, because my children won’t suffer as I have done” ©Kate Holt/Sightsavers You are inspiring community change In Guinea Bissau, your donations are working in unusual ways to help inform communities about good hygiene and trachoma prevention Battling infectious eye disease is as much about prevention as treatment. Regular hand and face washing can make a huge difference. We use donations like yours to fund the Guinea Bissau Trachoma Elimination project. As well as providing treatment, the project finds innovative ways to share the importance of good hygiene with local people. Posters put up in communities are of little use if you can’t read. Instead our partners in Guinea Bissau have been getting creative. Their solutions include: Promoting eye health •Local drama group performances are conducted in local languages. The plays reinforce messages about good hygiene and encourage community discussions Guinea Bissau is one of the poorest countries in the world. 69% of the population live below the poverty line. The impact of diseases such as trachoma can be devastating. They prevent people from working and trap them further in poverty. One of the challenges in our work is creating positive messages about eye health, screening and treatment. With low adult literacy rates, this is often difficult. •Weekly radio programmes on two popular national stations are reaching thousands of people. Listeners can phone in and have their concerns about eye care and treatment answered •Training community members such as teachers, journalists and community volunteers. This helps raise awareness about trachoma and inspire more people to seek eye care An estimated 700,000 people so far have received information about trachoma because of these measures. And the project doesn’t stop there. Improving sanitation access Members of the regional health team in Biombo region assess a faulty water point. The project is supporting local management committees to maintain their own water points. 10 Your donations are having a huge impact and changing the lives of whole communities. In a few years from now, together we could be celebrating the elimination of trachoma from Guinea Bissau! Both images: ©Balla Musa Joof/Sightsavers In endemic areas, the construction of toilets is vital in tackling trachoma. Last year we exceeded our target of building 15 latrines and 15 water points in schools and local communities. We also trained people and encouraged them to form water management committees. A volunteer community drug distributor measures children to confirm the correct dose of Zithromax® treatment in the Biombo region of Guinea Bissau. Your donations are used to train these volunteers to spread the word about good hygiene and eye health. 11 Some of our amazing supporters Sightsavers Marmalade We’re extremely grateful to the Rotary Club of Dublin Central for their generous donation of €1,224 to our A Million Miracles appeal. Each member of the 34-strong Rotary Club supported one sight-saving cataract operation, giving a total of 34 people the miracle of having their eyesight restored. A huge thank you to Mrs Rosemary Bond, who supports Sightsavers each year by selling her homemade marmalade and jams in her local area of Sandymount. In March 2015, her delicious fruit preserves raised a sweet €160! This was such a simple and powerful idea that the Rotary Club of Limavady decided to do the same, donating £1,000 towards A Million Miracles. If you think your club, society or workplace would like to do something similar, then please get in touch with Head of Corporate Fundraising, Noel Keogh, on 01 2710234 or [email protected]. More big-hearted sight savers are raising funds to help ensure our work continues. Thank you! €1,240 Rotary Clubs of Dublin Central and Limavady First Year students of St Michael’s College, Ballsbridge, with their €1,000 cheque for Sightsavers St Michael’s College, Ballsbridge St Michael’s College has a proud history of supporting people in need in developing countries. This year, the First Year classes elected Sightsavers as their annual charity and raised an impressive €1,000. Events and Schools Co-Ordinator, Teresa Murray, visited the school to speak to the students about Sightsavers, letting them know of the real and measurable impact their fundraising has on people’s lives. A sincere thank you to these compassionate young students. 2FM DJ Rick O’Shea enjoying a blindfolded Wine and Dine to raise awareness for Sightsavers Bijou Wine and Dine in the Dark Thank you! In your spring issue of Focus we told you that we’d teamed up with Torres Wines for a number of Wine and Dine in the Dark events. The first took place on 5 March at Bijou Bistro in Rathgar, Dublin and was a great success! Bijou and Torres crafted an unforgettable experience with a menu designed specifically for the night, matched perfectly by a selection of Torres wines. All of the blindfolded guests had a fun and enjoyable evening, including 2FM DJ Rick O’Shea, and learned about Sightsavers’ invaluable eye health programmes in the developing world. A huge thank you to all our loyal fundraisers for their creative ideas and hard work! If you’re thinking of organising your own fun event to help Sightsavers, please contact Damien Cronin at [email protected] or 01 2710236. The evening ended with the announcement that all proceeds would be donated to the A Million Miracles appeal – a fantastic €1,240. Thank you to everyone who made the night such a success and keep an eye on our Facebook and Twitter pages for the next Wine and Dine in the Dark! 12 A Transition Year student from Falcarragh Community School spinning hard to raise funds Spin cycle €546 Well done to Tim Runge and the Transition Year students from Falcarragh Community School, Co Donegal, for doing a sponsored spin cycle on 17 April in aid of Sightsavers. Their efforts raised an amazing total of €546 and clocked up the equivalent of 180km! Sightsavers’ Noel Keogh with Matt Porter, President of Dublin Central Rotary Club, who recently supported A Million Miracles St Brigid’s Crosses St Brigid’s Day occurs on February 1 and heralds the arrival of spring. This year €2,864 saw the arrival of another outstanding donation from Mrs Patricia Cooney, who makes St Brigid’s Crosses from local rushes and sells them around the parishes of Co Cavan. Sales this year amounted to a massive €2,864. Our thanks to Mrs Cooney and to everyone who purchased a beautiful St Brigid’s Cross. May it take pride of place and protect your homes for the rest of the year! 13 A Million Miracles The Junior Painter Awards are a fun highlight of the year, as our office becomes an art gallery of colour! We can’t begin to tell you how delighted and grateful we are at your response to our A Million Miracles cataract appeal Sightsavers’ Junior Painter Awards invites primary school pupils to paint a picture that expresses a positive message about sight, encouraging them to explore and appreciate this precious gift. Irish supporters have raised enough money so far to fund 12,281 sightrestoring operations for people living in some of the poorest parts of the world. So thank you, your support will transform so many lives! This year’s judges were Padraig Naughton, Director of Arts & Disability Ireland, and Alan Nolan, Illustrator in Residence for Children’s Books Ireland. They were so impressed with the high standard of entries that they awarded 17 highly commended certificates in addition to the 15 regional winners. TV3 Presenter, Sheana Keane announced the national winners at an awards day in Dublin’s Science Gallery. The children took to the stage, accompanied by their teachers. Their schools all received cash prizes from The Irish Times. Saif’s eyesight saved Ella Kiely, Munster Regional Winner in the 1st/2nd Class category, and her classmates in St. Joseph’s, Charleville, Co Cork Art of understanding There’s a thought-provoking side to the Junior Painter Awards too. We visit many schools, talking to students about work you’re helping to support in developing countries. They learn about the difficulties people have in accessing care to avoid or cure eye conditions that no longer cause blindness in Ireland, and the challenges facing those who have lost their sight in gaining support and education. Through the Junior Painter Awards we’re able to encourage and praise talented young artists – and raise awareness about the need to help people get the kinds of eye care and support we so often take for granted. Well done to everyone who took part this year. 2015 National Winners: Cian Mangan (Cloghan’s Hill NS), Overall national winner with “I want you to see books fly” Katie O’Brien (Holy Family NS, Swords) and Ryan Buckley (Belclare NS), with TV3’s Sheana Keane The regional winners were presented with arts and crafts prizes from The Art Materials Company by Sightsavers’ Michael Marren. 14 ©Tim McDonnell/Sightsavers Junior painters You can view all the award-winning paintings, as well as some photos from school visits and our awards day, on www.sightsavers.ie/ schools/junior-painter-gallery This competition is kindly supported by The Art Materials Company and The Irish Times. In your spring issue of Focus, you may remember reading about Winesi March, who received the first A Million Miracles operation. Winesi lives with his family in Malawi. Since then we’ve been to Bangladesh to see more miracles happen, such as that of little Saif. Nine-year-old Saif was playing outside with friends when a stone accidentally hit him in the eye. He was given treatment locally, and his parents, Jasim and Hunufa, assumed all was fine. It was only when Jasim noticed that his son was closing his eyes against the light and having trouble reading and writing that he became worried. Then Saif told them everything had suddenly gone dark in his right eye. Jasim took Saif to Comilla Hospital, where he was diagnosed with cataract in both eyes. In some cases, cataract appears gradually, but it can be caused by an eye injury. Saif’s eyesight was deteriorating rapidly and he needed urgent surgery. Thanks to you, he got it. As Saif opened his eyes after his operation, a huge smile broke out on his face and he was soon playing and laughing with other children on the ward. For Saif and his family it was a miracle. Thanks to you, Saif got his cataract operation and can enjoy going to school and playing with his friends again A mother says thank you “The doctor told me that the surgery would not be difficult and afterwards, Saif would be able to see again. But I was very afraid for my son before the operation. I cried a lot and could not sleep when he was in hospital. Now I am very happy. He is free. Thank you to everyone!” 15 What does your Will say about you? You could be a part of history and free Nahbila’s generation from river blindness. Forever. But because of donations like yours, everyone in their village now receives treatment from Mectizan®, to protect them from this terrible disease. If you share our vision of a world in which no child should live in fear of blindness, please consider leaving a gift to Sightsavers in your Will. In doing so, you can enable us to plan ahead and with continued donations from our supporters, the elimination of river blindness for all of Nahbila’s generation is possible in the next ten years. A gift in your Will, no matter how big or small, could ensure we reach this goal and your impact on the world will change history forever. Best Will in the World Week 2015 From 19 to 23 October, solicitors across the country offer Will consultations for a flat fee of just €50. Best Will in the World Week was created by MyLegacy.ie to highlight the importance of having a Will and the lasting difference legacy gifts have on the work of Irish charities. We understand that your loved ones come first, but if you do wish to leave a legacy to a charity, please remember Sightsavers. If you would like more information about leaving a gift in your Will, please contact Jenny Douglas on 01 6637666. Thank you. ©Mike Goldwater/Sightsavers On page 5, we feature the story of Julianna from Cameroon. Having lost her sight through river blindness, if Julianna wants to go anywhere, her six-year-old granddaughter Nahbila has to lead her by the hand. Seeing how blindness affects her grandmother, Nahbila is scared of losing her own sight.