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Community Participation Following Cerebrovascular Accident: Impact of the Buffering Model of Social Support Margaret Newsham Beckley This study examined data of older adults who had sustained a stroke and their ability to participate in the community following rehabilitation. There were 95 participants in this study to determine the interaction effect of functional limitation and social support on community participation. The findings indicate that for people who had sustained a cerebrovascular accident, community participation was more related to their ability to do for themselves, rather than the support that was available to them. The implications of these findings for future practice, programs, and research are discussed. Beckley, M. N. (2006). Community participation following cerebrovascular accident: Impact of the buffering model of social support. American Journal of Occupational Therapy, 60, 129–135. erebrovascular accident (CVA), or stroke, is a major cause of adult disability in the United States (American Heart Association, 2005). With almost 730,000 people now experiencing a CVA each year (National Stroke Association, 1999), more outcome studies are being undertaken to help in the development of rehabilitation services to support CVA survivors. Starting in the 1970s, health care researchers became interested in studies of social support outcomes. Until now, one of the main focuses of outcome studies on social support in CVA has been a person’s ability to carry out activities of daily living (ADL). Although this is often a prerequisite for discharge from hospital, it does not guarantee that a person will be able to participate successfully in the community. This study builds on previous CVA outcome studies by examining the impact of social support in a larger context, specifically testing the buffering model of social support on a person’s ability to participate in the community after CVA. C Literature Review Margaret Newsham Beckley, PhD, OTR/L, BCN, BCG, is Assistant Professor, The Ohio State University, College of Medicine and Public Health, School of Allied Medical Professions, 453 West Tenth Avenue, Columbus, Ohio 43210; [email protected] Social support has been found to have a positive impact on people’s health and well-being, as well as their ability to adjust to the trauma of illness or injury (Bisconti & Bergeman, 1999; Caplan, 1974; Cassel, 1974; Cobb, 1976; Hegelson, 2003; Lau & McKenna, 2001; Newsham, 1998; Tsouna-Hadjis, Vemmos, Zakopoulos, & Stamatelopoulos, 2000). A concept that emerged in the 1970s, social support has been described as the availability or provision of a relationship, information, or assistance that empowers a person to manage their day-to-day life effectively in the presence or absence of crisis (Newsham). The buffering model and the direct effect model are those models most frequently cited in the social support literature (Vaux, 1988). The buffering model rests on the hypothesis that an identifiable form of social support has a beneficial effect in the presence of stress. The direct effect model rests on the hypothesis that ongoing social support resources have a positive influence on health, whether stress is present or not. The buffering model of social support represents social support as a specific response to a stressor, with the purpose of counteracting or reducing the possibility of a negative outcome. Cohen and Syme (1985) report that the buffering model characterizes support as exerting beneficial effects in the presence of stress by The American Journal of Occupational Therapy 129 Downloaded From: http://ajot.aota.org/ on 07/28/2017 Terms of Use: http://AOTA.org/terms protecting people from the pathogenic effects of stress. In measuring support as depicted by the buffering model, one would assess the availability of resources that help a person respond to stressful events. Vaux (1988) reports the buffering model describes social support as acting to protect individuals from the effect of stressful conditions. “Generally, this has been interpreted to mean that the relationship between stressful life experiences and psychological distress on physical illness would be diminished under conditions of greater social support” (p. 92). Figure 1 (Newsham, 1998) is a representation of the impact of the buffering model of social support, incorporating the theoretical work of Cohen & Syme (1985) and Vaux (1988), with regard to stroke survivors. The independent variable, functional limitation, is the stressor. Health and well-being are represented by the dependent variable, community participation. The diagram shows that social support, by itself, may or may not be significant in regard to a stroke survivor’s ability to participate in his or her community. The second relationship on Figure 1 shows that functional limitation, by itself, may or may not be significant in regard to a stroke survivor’s ability to participate in his or her community. However, based on the buffering model, when social support and functional limitation interact with each other, there will be a significant relationship between this interaction and a stroke survivor’s ability to participate in his or her community (Newsham). The direct effect model and the buffering model are not the only models found in the social support literature; however, these models have guided most of the research on social support for the past 20 years. In this study, the buffering model is the model to be tested. The buffering model requires the identification of a stressor (functional limitation due to stroke) and the presence of social support to reduce the impact of the stressor on a person’s well-being (in this case, the stroke survivor’s ability to participate in his or Figure 1. Buffering model of social support and community participation related to stroke (Newsham, 1998). Based on the work of Cohen & Syme, 1985 and Vaux, 1988. her community). The premise of this study is that the influence of social support on functional limitation enhances the ability of a stroke survivor to participate in his or her community. There is an interaction between social support and functional limitation that reduces the impact of the limitation on the outcome. It is the interaction of the social support variable that distinguishes the buffering model of social support from the direct effect model. Social Support and Cerebrovascular Accident Social support is a multifaceted concept. As such, social support studies in stroke recovery have investigated different aspects of the social support concept, such as the types of support, the timing of support, and the structure of support. Although CVA research studies have only recently begun to include social support as a predictor variable, it has already been found to enhance CVA recovery (Colantonio, Kasl, Ostfeld, & Berkman, 1993; Friedland & McColl, 1992; Glass & Maddox, 1992; Lau & McKenna, 2001; Tsouna-Hadjis et al., 2000). In a longitudinal study (N = 44), Glass and Maddox (1992) found that different types of support influence rehabilitation outcomes in different ways. Multivariate analyses of variance indicated that patients with a high level of emotional support showed dramatic improvement in functional outcome, though they were often the patients with the greatest impairment at the start of rehabilitation. Instrumental support, provided in moderate amounts, was most closely related to positive outcomes. And informational support was found to be mediated by the severity of the stroke. The timing of the provision of social support has an impact in CVA outcomes (Helgeson, 2003). Social support intervention provided at an inappropriate time during the stoke recovery process may not have an effect on functional status (Glass & Maddox, 1992; Friedland & McColl, 1992). However, in a randomized trial with 48 experimental participants and 40 control participants, Friedland and McColl (1992) hypothesized that, to be most effective, social support needs to be provided as soon as a person is medically stable. Measures were taken at three points: entry into the study, immediately after intervention, and 3 months after intervention. No significant treatment effect was found and no significant differences between the groups regarding social support and outcome were reported. The investigators report that this lack of significant findings could have been due to the timing of the intervention, the high incidence of psychiatric symptoms found in the participants, the nature of the support given to the participants during the crisis period, or the older age of the participants. Another stroke study from McColl and Friedland 130 Downloaded From: http://ajot.aota.org/ on 07/28/2017 Terms of Use: http://AOTA.org/terms March/April 2006, Volume 60, Number 2 (1989) (N = 85) assessed the type of social support in rehabilitation and demonstrated that social support from personal sources accounted for 79% of total variance explained. The measures considered satisfaction and quality of support along with practical and descriptive aspects of support. In a prospective longitudinal study of 2,812 elderly participants (65 years of age and older) living at home, Colantonio and colleagues (1993) examined the structure of social support. The researchers found the social network index to be a significant predictor of institutionalization after CVA: The more securely an elderly patient was embedded in a social network before the stroke, the less need he or she had to live in an institution. Because the social support concept is multifaceted, the impact of social support in stroke recovery needs to be examined in order to identify the optimal type of support, the phase of recovery in which the support is provided, and the source of support. This will allow a more confident interpretation of the impact of social support on health outcomes and community participation. Methodology The purpose of this study was to examine the impact of the buffering model of social support on stroke outcomes. The specific aim was to test the impact of buffering model on reported functional limitation with regard to community participation 3 to 6 months posthospitalization for stroke. Based on the work of Cohen and Syme (1985), Newsham (1998), and Vaux (1988), the hypothesis for this study was that social support moderates the effect of functional limitation on community participation for CVA survivors who are 3 to 6 months post hospital discharge. Participants and Sample Size The study was undertaken via interviews in the homes of persons having a CVA and was conducted 3 to 6 months after discharge from the hospital by occupational therapists. Inclusion criteria were: (1) the CVA resulted from an ischemic or hemorrhagic event, and (2) cognitive status was such that participants were able to give informed consent to participate (capable of attending to task, comprehending questions or formulating appropriate responses, and understanding the purpose of the study). An exclusionary criterion was the presence of receptive or expressive aphasia. The sample size was 95 participants. Measurement of Variables Dependent variable. Community participation, the depen- dent variable, was measured with the Reintegration to Normal Living Index (RNL Index) (Wood-Dauphinee, Table 1. Variable Descriptions Participation Social Support Quality Quantity Instrumental Subjective Functional Limitation Gender Male Female Race Black White Monthly Income $0–$700 $701–$1,400 $1,401–$2,100 $2,101–$2,800 Over $2,800 Age N Mean SD 95 41.22 8.11 95 95 95 95 95 123.68 35.39 23.85 10.07 114.63 20.06 11.88 3.28 2.15 18.75 68.46 12.16 47 48 52 43 27 18 15 6 18 95 Opzoomer, Williams, Marchand, & Spitzer, 1988). It is an 11-item scale that measures managing in the home environment and community, such as the ability to move around living quarters and the community, being occupied in meaningful activity, participating in social activities, and dealing with life events. The response categories are on a 5point Likert scale, ranging from “strongly disagree” to “strongly agree.” Independent variable. Social support was measured with two different scales. The Social Support Inventory for People With Acquired Disabilities (SSIPAD) (Friedland & McColl, 1989) was used to measure the quality and the quantity of social support. The Duke Social Support Index (Hughes, Blazer, & Hybels, 1990) was used to measure instrumental and subjective support. The SSIPAD measures subscales for each of five sources of support (primary, family and friends, community individuals, community groups, and professionals) for overall quality of support. The quality measure consists of 25 items and the quantity measure consists of 10 items. For both scales, the greater the sum of scores, the higher the quality or quantity of support. The Duke Social Support Index (Hughes et al.) also measures multiple dimensions of support. This index is a compilation of four social support subscales: social network, social interaction, subjective social support, and instrumental social support. The two subscales used in this study were the subjective social support scale with 10 items and the instrumental social support subscale with 13 items. Functional limitation was recorded by asking the participants about their ability to perform specified ADL. The interviewer then rated their reported performance according to the level of assistance needed to complete the activities on a scale of 1 to 7. The nonstandardized inventory The American Journal of Occupational Therapy Downloaded From: http://ajot.aota.org/ on 07/28/2017 Terms of Use: http://AOTA.org/terms 131 included 18 items incorporating activities in the areas of self-care, bowel and bladder management, mobility, locomotion, communication, and social cognition. Control variables. Income level was included as a control variable because it is often associated with health status and social connectedness—the greater the income, the greater the potential for access to health care and social interactions (Altman & Taylor, 2001). Income was measured in dollars per month. The measurement of age—in years—was included because mobility, activity levels, and frequency of socialization can decrease as a person ages (Gallo, Reichel, & Anderson, 1995). Race was operationalized as white or black, as this urban population is predominantly white and black. Race was included because these two races have been shown to have different types of support systems (Dressler, 1990). Gender was included as men and women have differences in support and community participation (Treas & Longino, 1997). Analysis and Findings The hypothesis for this study was that social support would moderate the effect of functional limitation on community participation for stroke survivors 3 to 6 months posthospital discharge. The findings of this study partly supported the hypothesis. The interaction term that included subjective social support was found to moderate the relationship between reported functional limitation and community participation. This interaction effect means that the relationship between reported functional limitation and community participation depended on the level of subjective social support. The interaction terms that included instrumental social support, quality of social support, and quantity of social support were not found to moderate functional limitation on community participation. Another way to interpret the findings is that a stroke survivor’s ability to do for him- or herself was more indicative of participating in his or her community than the amount of support available to that stroke survivor. Analysis. The analysis included measures of central tendency and dispersion to determine the distribution of community participation and independent variables. A bivariate analysis was done to determine the relationship between community participation and the independent variables. Ordinary least squares analysis was used to determine the amount of variance the independent variables accounted for in the dependent variable, community participation, and was accomplished by regressing the dependent variable on the independent variables. The independent variables regressed on community participation included the interaction term (functional limitation * social support). The interaction term was entered to determine if a preexisting relationship between the two variables could account for additional variance in participation. It was entered last in the hierarchical model, so any variance explained was due to the interaction term only after the functional limitation and social support variables had been included as main effects. Because there are four different aspects of social support to evaluate, four separate equations were used, each being identical except for the social support variable (quality, quantity, subjective, and instrumental) and the interaction term that included the social support variable [(functional limitation * subjective social support), (functional limitation * instrumental social support), (functional limitation * quality of social support), and (functional limitation * quantity of social support)]. To counteract problems of multicollinearity with the regression models incorporating the interaction terms, the independent variables were centered before using them in the interaction terms. The variables age, gender, income, and race were included as control variables in each equation with regard to the dependent variable community participation. The variables functional limitation and social support were entered after the control variables as the main effects on community participation. The interaction terms for each equation were entered last in the hierarchical model. Because of this procedure, any variance explained was due to the interaction terms. Findings. The findings of the statistical analysis for this study and the relationship among the variables are presented as follows: univariate, bivariate, and multivariate statistics. The univariate results are presented in Table 1 and include the number of participants (N), the mean, standard deviation, skewness, range of values, and the percentage of participants included in the analysis for each variable. Bivariate results are presented in Table 2 and include the correlation coefficient, standard error, and probability level for each independent variable and the dependent variable Table 2. Bivariate Results GLM Procedure: Participation With Each Independent Variable Independent Variable Age Gender Income Race Functional Limitation Subjective Social Support Instrumental Social Support Quality of Social Support Quantity of Social Support Correlation Coefficient (r) Standard Error p value .071 .099 .001 .044 .570 .024 .387 .114 .176 0.07 1.72 0.56 1.75 0.04 0.42 0.25 0.04 0.07 .51 .36 .99 .69 .001 .82 .0002 .29 .09 Note. GLM = General Linear Model procedure is used to regress the dependent variable on the independent variables and is used when there is only one dependent variable. 132 Downloaded From: http://ajot.aota.org/ on 07/28/2017 Terms of Use: http://AOTA.org/terms March/April 2006, Volume 60, Number 2 was a normal distribution of the error term. Plots of predicted values versus error terms supported assumptions of homogeneity and linearity. All of these analyses indicate that the variables and equations used in this study were sound, allowing for confidence in findings of the study. The significant interaction term (functional limitation * subjective social support) (p = .008) means that subjective support was found to moderate the effect of functional limitation on participation. The model had an R 2 of 0.33, accounting for 33% of the variance in community participation. The interaction terms (functional limitation * instrumental social support), (functional limitation * quality of social support), and (functional limitation * quantity of social support) were not significant with regard to participation. community participation. Correlations among the independent variables are presented in Table 3. The multivariate results are presented in Table 4 include the percentage of variance explained (R 2) and the significance of the model (F value) with the corresponding probability level. These tables also include measures of standard error, probability level, and the increment to the R 2 for each variable and the interaction term in the model. The hypothesis for this study was that social support moderates the effect of functional limitation on community participation for CVA survivors 3 to 6 months after hospital discharge. Regression diagnostics show that the assumptions of regression were not violated. Multicollinearity among the variables did not exist, as all tolerance values of significant variables were above 0.76. There Table 3. Correlation Matrix of Independent Variables Pearson Correlation & Probability Age Functional Limitation Age Gender Race Income 1.000 0.0 –0.05116 0.6439 1.0000 0.0 0.12587 0.2539 –0.2370 0.03* 1.0000 0.0 0.21593 0.0485* –0.37120 0.0005* 0.49345 0.0001* 1.0000 0.0 Gender Race Income Functional Limitation –0.14932 0.1752 –0.00876 0.9369 0.10398 0.3465 0.10108 0.3603 1.0000 0.0 Quantity of Social Support Quantity of Social Support Quality of Social Support Subjective Social Support 0.00409 0.9705 –0.3228 0.7707 0.03472 0.7539 –0.08847 0.4235 –0.00894 0.9356 1.00000 0.0 0.5825 0.5986 –0.5667 0.6087 –0.07728 0.4847 –0.15098 0.1704 –0.03041 0.7836 0.89402 .0001* 1.00000 0.0 –0.7264 0.5114 0.11966 0.2783 –0.35229 0.0010* –0.00551 0.9603 0.18271 0.0962 –0.02523 0.8198 0.06241 0.5728 1.00000 0.0 Quality of Social Support Subjective Social Support Instrumental Social Support Instrumental Social Support –0.09484 0.3908 0.00499 0.9640 –0.16748 0.1278 0.03450 0.7554 0.24350 0.0256* –0.13623 0.2166 –0.02821 0.7989 0.48812 0.0001* 1.00000 0.0 * significant relationships (p ≤ .05) Table 4. Results of Ordinary Least Squares Procedures Ordinary Least Squares Procedure With Interaction Term Functional Limitation * Quality of Social Support on Participation Ordinary Least Squares Procedure With Interaction Term Functional Limitation * Quantity of Social Support on Participation 0.32 5.02 .0001 0.35 5.72 .0001 R2 F value Probability Value Independent Variable Age Gender Income Race Functional Limitation Social Support Functional Limitation * Social Support Ordinary Least Squares Procedure With Interaction Term Functional Limitation * Subjective Social Support on Participation Ordinary Least Squares Procedure With Interaction Term Functional Limitation * Instrumental Social Support on Participation 0.33 5.30 .0001 0.31 4.82 .0002 Standard Probability Increment Standard Probability Increment Standard Probability Increment Standard Probability Increment Error Value to the R 2 Error Value to the R 2 Error Value to the R 2 Error Value to the R 2 0.06 1.6 0.6 1.67 0.03 0.04 0.001 .77 .32 .81 .34 .0001 .03 0.47 .004 .0106 .0031 .0028 .2480 .0457 0.06 1.5 0.57 1.64 0.03 0.06 .0047 0.002 .81 .26 .83 .47 .0001 .006 0.65 .004 .0106 .0030 .0028 .2480 .0778 0.059 1.55 0.59 1.83 0.03 0.03 .0018 0.001 The American Journal of Occupational Therapy Downloaded From: http://ajot.aota.org/ on 07/28/2017 Terms of Use: http://AOTA.org/terms .96 .19 .30 .13 .0001 .22 0.008 .004 .0106 .0031 .0028 .2480 .0101 .06 1.56 0.59 1.7 0.03 0.03 .0522 0.001 .67 .23 .79 .68 .0001 .05 0.54 .004 .0106 .0031 .0028 .2480 .0384 .0035 133 Again, the findings partly support the hypothesis that social support moderates the effect of functional limitation on community participation for CVA survivors 3 to 6 months after hospital discharge. The interaction term that included subjective social support was found to moderate the relationship between reported functional limitation and community participation. More specifically, with every unit increase of subjective social support, the parameter estimate of functional limitation increased by 0.003. The other interactions terms that included different aspects of social support did not support the hypothesis. Limitations of the Study One of the limitations of this study is that it cannot be generalized, neither to other diagnostic populations nor to the stroke population overall. As a result, it may be that the findings are unique enough to these particular participants that they may not provide accurate implications for other populations. The study population had a mean reported functional limitation score of 114.6 out of a possible 126. The study population therefore represented approximately 40% of the overall stroke population (Ryerson, 1995). The restricted range of reported functional limitation most likely influenced the results of the study. The participants that met this criterion not only reported being able to perform ADL with a fairly high degree of independence, but they also had the necessary support at home to compensate for what they were unable to complete for themselves. Therefore, this study should not be generalized to stroke survivors with lower functional limitation scores and different levels of support in the home. The measurement of social support may be another limitation. The Duke Social Support Index (Hughes et al., 1990) and the SSIPAD (Friedland & McColl, 1989) were used to measure instrumental and subjective social support and the quality and quantity of such support, respectively. Although these scales have been shown to be appropriate for measuring specific components of social support, these specific components constitute only four aspects of the multifaceted social-support concept; other aspects of social support were not captured. Also, as noted previously, McColl (2005) has shown that subjective criteria are used in measuring social support. This is implicit in measuring a concept that has both tangible and nontangible components. A third limitation of this study is the attempt to capture aspects of a complex concept, participation, with a single measure. In this study the outcome scores, as measured by the RNL Index (Wood-Dauphinee et al., 1988), were favorable (mean score 41.22 out of a possible 55). The results indicate that the participants were found to be capa- ble of community participation. Over the course of the interview however, participants often reported that they were avoiding these activities for reasons such as “not feeling normal,” “not looking right,” feeling that “people don’t want to be bothered,” and “feeling blue.” In considering this discrepancy (participants reporting to be capable of performing the community participation tasks, yet not performing them), the initial positive appearance of the study results may not be a reality in the participants’ day-to-day lives. There appear to be other components of the participation process that were not captured with the RNL Index and that may as a result limit applicability of these findings. Implications for Practice, Programs, and Future Studies The findings of this study partly support the hypothesis that social support moderates the effect of functional limitation on community participation for CVA survivors who are 3 to 6 months post hospital discharge. These findings suggest the need for occupational therapy professionals to expand their practices to include the promotion of social support and, in turn, increase the stroke survivor’s ability to participate in the community. Intervention practices in rehabilitation programs will need to go beyond traditional clinical training and extend the focus of treatment to practices that foster social support and community participation. In addition, future rehabilitation studies would benefit from a focus on social support needs in discharge planning. Although the participants in this study reported to function at a fairly high level and had support available at home, they often reported that they didn’t want to participate in community activities. Examining factors other than functional level and support in the home may yield results that could eventually support people who want to participate in their community and, in turn, help occupational therapy professionals develop more comprehensive discharge plans. Finally, with almost 730,000 people now experiencing a CVA each year (National Stroke Association, 1999), future stroke outcome studies could build on the findings presented here to help in the development of occupational therapy services. Future studies could expand these current findings by including participants with varying levels of functional limitations, by initiating longitudinal studies over participants’ remaining life spans, by determining what types of support are most beneficial at each stage of rehabilitation, and by examining younger stroke survivors, who typically have different social support systems from the participants in this study. ▲ 134 Downloaded From: http://ajot.aota.org/ on 07/28/2017 Terms of Use: http://AOTA.org/terms March/April 2006, Volume 60, Number 2 References Altman, B. M., & Taylor, A. K. (2001). Women in the health care system: Health status, insurance, and access to care. MEPS Research Findings No.17. AHRQ Pub. No. 02-0004. Rockville, MD: Agency for Healthcare Research and Quality. American Heart Association. (2005). Heart disease and stroke statistics—2005 update. Dallas, TX: American Heart Association. Bisconti, T. L., & Bergeman, C. S. (1999). 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