Download Team HealthOwl

Michael A. Diefenbach, Ph.D. & Kevin Durr
Mount Sinai School of Medicine &
notsoldseparately.com LLC
An app designed to make cancer screening and its
decision-making process simple and reliable
Background
 Early detection is an important component to the
Nation’s cancer control efforts.
 However:
 Not every person benefits from screening
 Screening can be distressing
 Not all cancer screening procedures reduce Ca mortality
 Screening recommendations vary across organizations
 Thus, patients need to be
 informed about their options
 involved in the screening decision process
Aims of the App
 Provide tailored cancer screening recommendations based
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on recorded cancer family history and demographic
variables
Educate users about screening procedures & cancer
prevalance & mortality data by US state
Provides Pros and Cons of screening
Provide decision tool to aid in the decision making process
Testimonials from people who did/did not screen
Provide action plan to assist in identifing physicians,
communicating ones decision to provider, provide
information about screening for the non-insured
Provide reminders about screening appointments
Offers mental health resources for emotional distress
Theoretical Framework
 Self-regulation framework guides the development. SLR has
these key elements
 Cancer relevant expectations, beliefs, including self-efficacy
beliefs and beliefs about screening and treatment
 Cancer relevant affective states
 Perceived competencies
 The app will speak to each of these 3 key components, by:
 Addressing beliefs and expectations
 Providing reassuring messages and resources to cope with
distress
 Offering detailed action plans
Development of the App
 A prototype of the app will be shown to members of
the target audience via focus groups:
 Men and women eligible for prostate and breast cancer
screening
 Women eligible for cervical cancer screening
 We will invite a diverse group of men and women,
representing different ages, races, and socio-economic
backgrounds.
 Focus groups will be transcribed and coded.
 App will be revised based on focus group results.
Usability Testing of the App
 Men and women from target audience will be asked to
use the app
 Use talk-aloud method (i.e., ask users to describe what
they want to do with the app and record their
successes and failures while using the app)
 Revise app according to changes of usabiity testing
 Launch HealthOwl
HealthOwl on these Platforms
 The app will be available:
 on the web
 On mobile platforms
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iPhone, Android, Blackberry & Windows Phone 7 , and the
Web (Internet Explorer, Chrome, Firefox, Safari )
Use of public available data
 Screening recommendations and screening information
will be generated from NCI’s PDQ and Medline+.
 Prevelance data by state and county level for all major
cancers from http://statecancerprofiles.cancer.gov
Two ways to obtain tailoring data
 1) User input answering a few questions about
 Family history of cancer
 Sex
 Age
 Race/ethnicity
 Insurance
 2) Data input through EPIC. Connect the App via a
website to EPIC and relevant data will be transferred
into the program.
Simple User Input of Basic
Demographic Variables
Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype
Add Family History information
Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype
Summary of Family History and
Your Screening Options
Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype
The Prostate Cancer Screen
Prostate Cancer Screen:
• Learn facts about prostate cancer
• Know Pros and Cons of screening
• Rate the importance of Pros & Cons
• Receive a summary score of the
importance rating
• Read patient stories
• Find resources for emotional distress
• Find a health care provider for
screening
• Invite a family member to also get
screened
Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype
Prostate Cancer Facts
Here the user finds:
• Facts about the prostate and its function
• Information about screening procedure
and potential side-effects
•up-to-date prostate cancer prevelance and
mortality data for the user’s state from
http://statecancerprofiles.cancer.gov
Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype
Pros and Cons About Screening
 User can read Pros and Cons re
prostate cancer screening, e.g.,:
 PRO: Prostate screening can help
find prostate cancer at an early
stage. Then a decision has to be
made whether it should be
treated or observed.
 CON: Researchers have not
demonstrated that earlier
treatment prolongs or saves lives
Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype
Help with Decision—Value Clarification
 User rates each of the Pros & Cons according to their perceived
importance (1=not important; 5=very important)
 Users receive a summary score and an interpretative statement
about their screening intentions
Patient stories
 Based on our work with prostate cancer patients, these
stories represent aggregated opinions by men about
their experience with prostate cancer screening.
Coping with Uncertainties
 The goal is to provide reassurance about the screening
procedure and emotional support to those worried about
detecting cancer. Use of GPS to deliver tailored resources
Provide resources:
•Cancer Information Service (1800-4Cancer)
•American Cancer Society
(Man to man support group)
•State-specific resources:
e.g. for New York
www.newyorkprostate.com
Finding a doctor
 An action plan is an important factor in translating
intentions into screening.
 This pages helps patients find a physician who would conduct the
screening based on their health insurance.
 It also provides resources for those who are not insured.
Set a reminder for your screening appointment
 The unique part of HealthOwl
is the ability to set screening
appointments as recurring
events in the future.
 Create reminders to create an
appointment and for the
screening itself
 Prior to a scheduled date a
reminder email and/or a text
message will be sent to the
user.
Connecting to family members
 Share this app with family
members and friends or
email or text the link of
the HealthOwl site.
 This is a good way for
family and friends to learn
about cancer screening.
HealthOwl -Innovation through 4 “Firsts”
Informs patients about their screening options,
tailored according to their age, race, gender, and
family history of cancer;
2. Supports and assists patients in their cancer
screening decision making through information and
value clarification;
3. Identifies health care providers and facilities;
4. Provides reminders for current and future screening
events.
1.
Significance and Impact
 Proposed App
 Addresses important priorities within the cancer
continuum
 Theory and evidence-based
 Includes comprehensive disease and screening-related
information
 Lists of cancer related pros and cons
 Emotionally reassuring messages and resources for
those who are worried
 Action plan (find a doctor, regardless of insurance
status; get emotional support)
HealthOwl
Get Empowered. Make smart choices.
A proven team
Our team has worked together for over 5 years building interactive cancer education and
decision aids interventions
www.healthowl.org
Michael Diefenbach – Team Leader and co-founder
[email protected]
Kevin Durr – Senior Architect and co-founder
[email protected]
Mayr Budny – User Interface Director
[email protected]
Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype