Survey
* Your assessment is very important for improving the work of artificial intelligence, which forms the content of this project
* Your assessment is very important for improving the work of artificial intelligence, which forms the content of this project
VISION AND PRINCIPLES FOR THE WORLD’S BEST CHILDREN’S HOSPITAL THE NEW JULIANE MARIE CENTRE. VISION AND IMPLEMENTATION. CONTENTS I N T RO D U C T I O N . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6 - 7 1 VISION. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8-11 2 D E S I G N P R I N C I P L E S. . . . . . . . . . . . . . . . . . . . . . . . . . 1 2 - 1 5 3 B A C KG RO U N D. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 6 - 1 9 4 P R E R E QU I S I T E S . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2 0 - 2 7 5 ACTIVITIES. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 28-35 6 P RO P O S A L S F O R T H E F U T U R E . . . . . . . . 3 6 - 4 3 7 PAT I E N T PAT H WAY S .. . . . . . . . . . . . . . . . . . . . . . . . . 44-49 8 T E C H N O L O G Y.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 0 - 5 5 9 A RC H I T E C T U R E . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 6 - 6 1 10 S U S TA I N A B I L I T Y . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6 2 - 6 5 11 WO R K I N G E N V I RO N M E N T . . . . . . . . . . . . . . . 6 6 - 6 9 12 A E S T H E T I C S.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7 0 - 7 3 13 O RG A N I S AT I O N . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7 4 - 7 9 IT IS THE PRESENT GENERATION THAT WILL DECIDE THE FUTURE OF THOSE TO COME. 6 - The Juliane Marie Centre for Children and Families is one of Rigshospitalet’s best – and worst. Professional competency, research and patient treatment are already world-class, but the facilities leave much to be desired. Ten clinics, four Global Excellence centres, ten cross-disciplinary units and five Knowledge Centres are housed in nine different buildings. Patients and staff strive to provide coherent patient treatment and security in run-down buildings that are hopelessly outdated in terms of technology and logistics. This book, the result of a one-year preliminary analysis, documents the feasibility of creating a new, world-class hospital complex founded on professional competency, human values and technological excellence. We have examined children’s needs, absorbed the very best knowledge and practices from hospitals around the world and are now in a position to build a hospital that integrates play throughout the treatment process. Children find peace and security through play. Like their healthy peers, children and adolescents who are hospitalised for long periods develop their social and motor skills through learning and play, enabling them to return more quickly to daily life following recovery. This report documents how and why we can offer a far superior service – but as always, it is the present generation that will decide the future of those to come. Bent Ottesen, Project Director - 7 1 3 - O R G A N I S AT I O N WE HAVE AN EXTREMELY GRAND VISION. 8 - 1 - VISION 1. V I S I O N. Our vision is simply to create a hospital for children and families that sets new standards in two key areas – patient care and the interplay between architecture, organisation and operations. The new hospital will accord equal focus to treatment, research and training while striving to be the best in all three. We will establish an Academy where the hospital can share its professional competencies with educational institutions, research departments and the wider business community. We will invent and introduce a new continuity of patient care, bringing specialists to the patient rather than the other way round. We will make the hospital accessible to the outside world. In short, we will enhance the quality of Denmark’s best specialised hospital for children and family members a hundredfold. A grand ambition perhaps, but this book offers a more detailed basis for decisionmaking. So let us begin with the three main focus areas: Family, Technology and Effectiveness. - 9 FOUR MAIN FOCUS AREAS. 10 - 1 - VISION Family. Technology. Effectiveness. Research. The goal is to revolutionise the patient’s hospital experience before, during and after treatment, which also means taking into account the wider family experience. In addition to feeling secure, welcome and involved in the treatment process, families must help to shape, design and develop a hospital with a community focus. Emotional well-being is only part of the picture. The new hospital complex will implement the highest technological standards – future-proofing them for generations to come. Coordinated patient and medicine scanning, electronic medical records, electronic wayfinding and continual monitoring of individual bed locations are just some of the options already included in our planning. Logistics. Bed days. Incorrect treatment. Naturally, it would be self-defeating to create a hospital project of this calibre without enhancing treatment effectiveness. A key part of our vision is to revitalise and develop the entire Danish health service, pioneering new, more effective working procedures that can be adopted elsewhere. At the new hospital, we will create true synergy between treatment, research and education; a hospital where new knowledge about diagnostics procedures and treatment is created and shared with a view to achieving scientific breakthroughs. For this reason, education and research must be an integrated part of day-to-day clinical work. - 11 1 3 - O R G A N I S AT I O N WE WILL PROVIDE OUR PATIENTS WITH THE WORLD’S FINEST CARE. 12 - 2 - DESIGN PRINCIPLES 2. DESIGN PRINCIPLES. The patient comes first. Always. For many years, our guiding tenet has been “It is the outcome for the patient that counts.” While this will continue to be true, our goal is to revolutionise the patient’s experience before, during and after treatment. Using our vision of the project as our point of departure, we have implemented a process of innovation in close collaboration with patients, families, managers and staff. The innovation process has identified several fundamental design principles for all hospital construction – and several principles specific to family hospitals. Our ambition is for these principles to be embedded throughout the building and organisation. - 13 2 - DESIGN PRINCIPLES Five specific design principles The world’s best hospital for children and families Integrated play The world’s best hospital Designed for daily living See me, ask me, let me The good journey Clear zones The diagram illustrates general design principles for user-based hospital architecture and specific design principles for the family hospital. 14 - 2 - DESIGN PRINCIPLES Integrated play. Children do not stop playing simply because they fall ill. Play must therefore be an integrated part of design, life and experience. This entails not only providing play areas and playtime, but ensuring that play is fully integrated into the entire treatment process. Play can help the child accept illness and treatment, for example, if the child is allowed to treat another person or a toy animal. Play must be a common thread running through the entire stay in hospital. We intend to take play seriously. The Academy will conduct research into – and providing training in – the link between play and recovery – with staff, families and patients. Designed for daily living. Daily life is the basis of our reality. Hospitalisation must not lead to a sense of stagnation. The world inside and outside must be in harmony. Family wards make it possible to pursue daily routines and activities. The family can prepare and eat food, watch a film in the cinema or simply relax in a sofa and watch television together – simple activities that combine to give a sense of daily life and thus reality. See me, ask me, let me. Children and adolescents need recognition as much as adults. The ability to influence one’s own circumstances can and must be encouraged in as many areas and ways as possible. It is a question of strengthening and supporting the patient’s own resources and abilities. We will, therefore, incorporate input from patients and families into the building planning phase. That said, their involvement does not stop there. During the project design and construction phase, we will consult patients and their relatives and use their insights to validate solutions in an ongoing process of dialogue. General design principles for hospital construction: The good journey. clinics, centres and sectors. Coherence and coordination must be a recurring feature of the new hospital complex. The building must not only reflect groundbreaking architecture, but also new standards of logistics and functionality. The aim is to create individual and intelligent patient care for every single patient – child, adolescent and adult. Clear zones. A building whose intuitive layout, architecture, technology, materials and colour scheme tell you what is required of you and what you are allowed and not allowed to do. We believe that architecture is created from within, that architects must embrace co-creation – working with those who literally have their finger on the pulse, those who lack a quiet space in which to get to know their vulnerable child and those who know when a sudden change of scene is needed when complications arise during birth. The first five minutes must be the best five minutes. Patients must experience coherent, coordinated treatment devoid of problematic transfers between sections and - 15 1 3 - O R G A N I S AT I O N BACKGROUND – OR HOW WE ENDED UP HERE. 16 - 3 - BACKGROUND 3. B A C KG RO U N D. With the exception of death, illness is the one human condition we have the greatest difficulty accepting. Sooner or later, we will either experience illness ourselves or someone close to us will fall ill. For children and adolescents, the experience is shocking. However, it does not have to be traumatic. With a serious illness, the initial contact point for the child is in its meeting with the healthcare system, which can be a highly formative experience. If the experience is negative, chaotic and painful, it will not only hamper treatment of the actual illness but affect the person for the rest of their life. The same mechanism applies if the experience is positive – albeit with the opposite result. - 17 3 - BACKGROUND From the most professional hospital – to the world’s best. For several years now, the Juliane Marie Centre has prioritised professional competence, and today, it offers the most highly specialised treatment programmes for children and pregnant women. Pregnancies with the most severe complications are treated at the centre, which is the only one of its kind in Denmark offering treatment for the unborn child – e.g. blood transfusions and surgical procedures. Despite a large number of pregnant women with medical conditions such as diabetes or heart disease, the number of Caesarean sections is low and on the decline. The survival rate for premature babies continues to improve, the risk of children born with spastic paralysis in East Denmark is falling, while family involvement from the first critical days is now a standard feature of treatment. The children’s cancer ward is a leader in new treatment initiatives and the increasing survival rate of these children is a great source of optimism. Today, it tends to be the rule rather than the exception that children and adolescents 18 - suffering from cancer survive and go on to lead normal adult lives. This positive professional trend is the result of the centre’s focus on three core areas: patient treatment, education and research under the motto: “It is the outcome for the patient that counts.” Our excellent treatment results and level of patient satisfaction reflect our success in living up to this motto. The rise in external research funding, the increasing numbers of research publications and research staff all reflect the positive development in this area. Finally, the centre provides a wide range of basic and further education programmes as well as new research-based training of the highest international standard. Simulation-based training is a focus area which, among other things, is dedicated to educating obstetricians, midwives, neonatologists, nurses and paediatricians. The Juliane Marie Centre has reached a professional standard that puts it on an equal footing with the international elite. The centre has also seen a substantial development in clinical activity – partly as a result of the hospital service’s consolidation of several small units into a few larger ones. However, in consequence, the existing physical facilities pose a barrier to continued development. For many years, the centre has therefore sought to establish a new, purpose-built hospital for mothers and children that can house the professional activities and provide a new, exciting framework for continued development. Treatment and care facilities currently based at many different locations and addresses can be brought together under one roof in a building whose exceptional ground-breaking architecture is in keeping with the Juliane Marie Centre’s fundamental principle – namely that the health service of the future must be developed through a focus on education research and patient involvement. A feasibility study has examined the possibility of establishing a new, worldclass hospital for mothers and children. 3 - BACKGROUND The feasibility study includes: • Mapping of 100 courses of individual patient pathways and the design of future patient pathways based on four archetypes. • Task groups numbering more than 200 staff have made recommendations for the future paediatric intensive care unit, surgery unit, bed unit, outpatient unit, home treatment, laboratory unit and the integration of treatment, education and research. • Visits to all of Denmark’s quality foundation hospitals to exchange experience. • • Study trips to a total of 21 hospitals in Scandinavia, Europe, Canada, the USA and Australia result in reports highlighting areas that can make the future hospital for mothers and children wholly unique. Participation in the international conference on hospital architecture and design in November 2014 in San Diego, USA. A summary report of the 53 different sessions that the project team covered during the four days of the conference has been prepared. • Design of future user experience in close collaboration with patients, families and staff. • ‘User camp’ organised for 25 patients, relatives and staff. Report published in book form – ‘Børneriget’. • Screening of the market for short-, medium- and long-term technological solutions. • ‘Building camp” attended by 130 patients, relatives and staff who designed sections and rooms. • Involvement of patients, families and relatives in all phases of the feasibility study from initial steering committee meeting to individual activity planning, including establishing a permanent user panel. This feasibility study provides the basis for the project content and design. - 19 1 3 - O R G A N I S AT I O N WE RESERVE THE RIGHT TO GET SMARTER. 20 - 4 - PREREQUISITES 4. P R E R E QU I S I T E S . We will build the hospital of the future for families and children, secure in the knowledge that all we can say about the future is that we know very little. Needs in 2023 may differ vastly from our current predictions and we intend to use this insight in our planning. While our hospital complex will give unprecedented focus to the needs of patients, their relatives and treatment, it will also incorporate the greatest degree of flexibility to embrace the needs of the future. We can calculate spatial requirements, treatment activity and budgets and we know that flexibility will require the skills of an unusually gifted architect – and that is no bad place to start. - 21 4 - PREREQUISITES What we know – and what we can calculate. The projected treatment activity is based on the Capital Region of Denmark’s general capacity calculation model extrapolated from 2015 to 2025 figures: Demographic development. Population projections from Statistics Denmark from mid-2014 show a 17 per cent increase in Rigshospitalet’s catchment area, which includes a sharp rise precisely in the number of families with children due to higher influx and birth rates. Age limit changes. The Danish Health and Medicines Authority has decided to raise the paediatric age limit from 15 to 18 as of 1 January 2016. In future, a larger group 22 - will therefore be classified as children. Thus, the 15-18-year-olds will move from the adult wards to the children’s hospital. The basis for calculating treatment capacity in 2025 is based on the following capacity utilisation: Grouping children and adolescents. • The feasibility study has revealed that a third of all children and adolescents are currently being treated in Rigshospitalet’s adult wards. If we are to follow the professional recommendations for improving treatment quality by grouping all children and adolescents in the hospital in a combined child, adolescent and maternity ward, we will need to expand the area with a children’s operating wing, adding a combined paediatric intensive unit with more beds and outpatient facilities. Beds are calculated on the basis of 7-day beds at 85 per cent capacity. • Outpatient clinics are effectively utilised for 7 hours a day, 245 days a year. • Operating theatres are effectively utilised for 7 hours a day, 245 days a year. 4 - PREREQUISITES - 23 4 - PREREQUISITES Areas. Area standards. Spatial requirements are calculated on the basis of several general prerequisites established by the feasibility study steering committee. An area standard includes the area of the actual room itself, e.g. a bed room as well as the necessary secondary rooms associated with the given function – e.g. staff workrooms, depots, toilets for patients and staff and waiting and common rooms for patients and families. Gross/net factor. The gross/net factor indicates the relationship between gross and net area. The net area includes the sum of the interior areas in all functional areas, i.e. the so-called ‘carpet area’. Traffic, technical facility and construction areas are not included. The gross area includes the net area and corridor, other traffic and construction areas, including connecting corridors and tunnels. The area programming assumes a gross/net factor of 2.0. 24 - 4 - PREREQUISITES - 25 4 - PREREQUISITES Standard catalogue, intensive care, children and adolescents. The calculation of the different functional areas is based on an outline of the type of rooms in each and the location of the 26 - individual rooms in relation to each other to ensure smooth working procedures for staff and optimal treatment care for patients. 4 - PREREQUISITES Economy. Standardkatalog intensivsenge børn & unge NB: Not all small rooms are shown! An intensive care unit, children & adolescent, 24 beds An intensive unit Medicine Single bed ward Depot cabinet Work station Single bed ward Depot cabinet Niche Work station Niche Central Depot equipment Depot exit Depot clean Depot unclean K Central Common to the floor Medicine Single bed ward Single bed ward Outpatient room F offices Offices Reception Staff room Depot cabinet Work station Niche Depot cabinet Work station Niche Interview room Common room Scullery Primary function: single bed ward Secondary rooms/rooms in addition to primary function Air tube system Training: single bed ward with bathroom Access to garden Public zone Stairs Lifts Example of a diagram outlining room requirements and relative room proximity in a paediatric intensive care unit. - 27 2 - F O RU D S Æ T N I N G E R COMMUNITY. 28 - 5 - ACTIVITIES 5. ACTIVITIES. It is about bringing people together to create focus. Bringing patients together in order to concentrate the professional focus. The new hospital will offer patients and relatives a secure environment with seamless continuity of care. For doctors and staff, the new complex holds the promise of a new level of integration and synergy. - 29 5 - ACTIVITIES The human life cycle as an architectural principle. The current Juliane Marie Centre treats children, adolescents and pregnant women. In addition, the new hospital will bring together all children and adolescents from throughout all of Rigshospitalet, thus accommodating every area of specialisation associated with the human life cycle. The new building. The new building Adult Children/adolescents Children/ Children/ adolescents adolescents bed ward From pregnancy and birth to the treatment of illness in all life’s chapters. The individual departments and areas of specialisation will be logically situated in relation to patient care. Intensive PICU HOT Adult bed unit Maternity section HOT outpatient Intensive NICU Adult outpaitient Professional floor Surgery Diagnostics Children/ adolescent outpatient Training Remainder of the third floor Grouping/desire for organisational proximity Primary proximity Secondary proximity Arrival 30 - Family centre 5 - ACTIVITIES The Department of Paediatrics and Adolescent Medicine (BUK). Specifically, the new hospital will house the following departments: • • • • • • • • • • • • • • • • Paediatrics Neonatology Paediatric intensive care Obstetrics Paediatric Surgery Anaesthesiology and Surgery Clinical Genetics Growth and Reproduction Psychology, Play Therapy and Social Counselling Orthopaedic Surgery Ear, Nose & Throat Surgery Eye Diseases Occupational and Physiotherapy Lip and Cleft Palate Plastic Surgery and Burns Treatment Diagnostics The departments are spread across the following centres and clinics: The Department of Paediatrics and Adolescent Medicine comprises numerous areas of subspecialisation that deal with the specialised treatment of heart disease (cardiology), diseases of the nervous system (neuropaediatry), cystic fibrosis, chronic lung diseases, kidney diseases (nephrology), blood disorders and oncological malignancies (haematology/oncology), bone marrow transplantation, protection against antigens and microflora (immunology), diseases of the liver (hepatology), arthritis and other disorders of the joints, muscles, and ligaments (rheumatology) , infectious diseases, semi-intensive therapy, adolescent medicine, nutritional therapy, gastroenterology (diseases of the stomach and intestine), social paediatrics, sexual assault on children and adolescents and international paediatrics. The Centre for Paediatric Oncology and Hematopoietic Stem Cell Transplantation (POST) is the largest children’s cancer unit in Scandinavia. POST treats children and adolescents with cancer, serious blood and immunodeficiency disorders and children and adolescents who are to undergo stem cell transplantation. POST’s overriding goal is to improve the cure rate of children and adolescents with cancer and improve treatment and rehabilitation so that children and adolescents who have returned to health can quickly resume a normal life. Treatment is coordinated with other child cancer units in Denmark, Scandinavia and Europe. The centre has an outgoing function that takes care of certain treatments in the home. The Paediatric Oncology Research Laboratory, Bonkolab, is the research laboratory for the Paediatric Oncology Unit at Rigshospitalet. The laboratory, which mainly conducts research into blood disorders and oncological malignancies, offers routine and research analyses for patients with benign disorders who receive chemotherapy for other diseases. The primary research domains are the etiology of childhood leukemia, individualised therapy based on pharmacogenetics, pharmacokinetics, and monitoring of minimal residual disease, as well as late effects of anticancer therapy. The Pediatric Respiratory Physiology Laboratory (DBRFL) exists as a fully integrated part of the Danish Paediatric Lung Centre (DBLC), where treatment, development, research, and training in children with chronic lung diseases goes hand in hand with focusing on developing new and suitably establis-hed sophisticated methods for measuring different aspects of physiology and lung disease at various levels in the lung in infants, toddlers and children and adolescent pulmonary function. DBLC receives diagnostic referrals from all over the country and the laboratory performs more than 3,000 specialised examinations every year. Integration ensures direct, effective interaction between analysts, clinicians and researchers. DBRFL also houses the National Laboratory for the Diagnosis of Primary Ciliary Dyskinesia. The Children-Youth Programme is a cross-disciplinary unit whose function is to ensure a high level of quality in paediatric and adolescent patient care across the hospital’s departments. Emphasis is given to the following focus areas: research and development, communication and information, social activities, creating a child-, adolescent- and family-friendly hospital environment as well as providing cultural experiences for children and adolescents. - 31 5 - ACTIVITIES The Neonatal Intensive Care Unit (NICU). The Neonatal Intensive Care Unit is a highly specialised department that treats premature babies, children with congenital deformities, heart disease, neurological conditions, surgical diseases and children after the neonatal period and up to two years requiring intensive care. The majority of patients are premature babies who, for a time, often need intensive care, including life support on respirators and long-term hospitalisation. The unit is responsible for treating extremely premature babies (born before week 28, often weighing less than 1,000 grams) from the whole of eastern Denmark. The intensive care unit is also the national centre for paediatric ECMO care. ECMO treatment comes into play when there is a need to support both heart and lung function in critically ill children. In certain cases, this expertise is used to treat children from other Nordic countries. The Neonatal Intensive Care Unit plays a central role in the treatment of newborns 32 - with congenital deformities requiring immediate surgery and the department therefore works closely with paediatric surgeons, paediatric heart surgeons and neurosurgeons. Paediatric Intensive Care Unit (PICU). The unit treats critically ill children, some of whom are children in postoperative recovery. In addition to providing respirator treatment, the unit also treats children transferred from other hospital departments around the country by NICU’s transport team. Department of Obstetrics. The department provides pregnancy care, midwifery and maternity care for the local hospital catchment area, but is also responsible for the most complex treatments which in Denmark are only performed at Rigshospitalet – among these the treatment of pregnant women with heart, lung and liver transplants, pregnant women with severe fetal anaemia (immunisation against the foetus’ blood cells or blood platelets) and pregnant women expecting a child with deformities and requiring treatment during or immediately after birth. The department is among Denmark’s busiest maternity wards, dealing with more than 10% of the country’s births. Centre of Fetal Medicine and Pregnancy is the centre for invasive treatment of fetuses, e.g. in the form of fetal blood transfusions, advanced and invasive fetal diagnostics. The centre performs a tertiary function for other maternity wards across Denmark and to a limited degree maternity wards from other countries. In addition, the department performs a high volume of routine scans. The Centre for Pregnant Women with Heart Disease functions as an integrated centre for the entire hospital, providing examination and treatment of pregnant women with heart disease. Diagnosis includes echocardiographic and MR scans. The centre receives pregnant heart patients from all over Denmark. Centre for Pregnant Women with Diabetes is Denmark’s largest unit of its kind for this type of patient. Staff includes numerous professional groups (obstetricians, endocrinologists, ophthalmologists, midwives, nurses, laboratory technicians, dietitians, secretaries) and the unit examines and treats pregnant women with diabetes, a patient group which traditionally has experienced an extremely high risk of developing serious complications. By virtue of its scientific research, the centre has for many years enabled women with diabetes to become pregnant and give birth. Department of Paediatric Surgery. The Department of Paediatric Surgery is responsible for paediatric surgery with diagnostic evaluation, care and treatment as well as the check-up of children with congenital abnormalities, acquired diseases and injuries in the oesophagus, the digestive tract, liver and biliary tract, pancreas, urinary tract and genital organs where surgery is or can be an important factor in treatment. 5 - ACTIVITIES Department of Anaesthesiology and Surgery. The Department of Anaesthesiology and Surgery provides anaesthesia, surgery and post-operative recovery assistance in connection with births and operations on children and adolescents. The departments also specialises in the acute pain management of children. The acute pain management unit provides treatment, research and development, and education and training in the acute pain management of children and adolescents. Department of Clinical Genetics. The Department of Clinical Genetics offers diagnosis, management and counselling in connection with genetic disorders, including prenatal diagnosis and diagnosis and treatment of congenital metabolic disorders and other rare diseases. The department is equipped with state-of-the-art technology for all forms of molecular genetic diagnosis and metabolic analyses. The clinic also houses a research unit which conducts research into molecular genetic and molecular biological disease mechanisms. Department of Rare Diseases. (CSS) is an outpatient department responsible for the diagnosis, treatment and genetic counselling of children with congenital diseases. Focus is on children with rare, congenital, complex and often multiorgan diseases requiring highly specialised and crossdisciplinary treatment involving numerous specialist units at Rigshospitalet. Centre for Congenital Metabolic Diseases (CMS) is a partnership between Metabolic Laboratory, Molecular Genetic Laboratory, the Department of Rare Diseases, the PKU Department, Department of Paediatrics and Adolescent Medicine, NICU and the Pediatric Nutrition Unit, but also involves the Department of Psychology, Play Therapy and Social Counselling, The Department of Occupational and Physiotherapy and several other departments at Rigshospitalet. - 33 5 - ACTIVITIES The centre has extensive experience in diagnosing and treating metabolic diseases caused by enzyme defects. The Kennedy Centre is home to the Centre for Fragile X Syndrome, the PKU Department (phenylketonuria or Følling’s Disease) and the Centre for Rett Syndrome. Department of Growth and Reproduction. The department’s outpatient clinic takes in children from all over Denmark with growth problems and hormonal diseases, and patients with medical diseases in the male reproductive organs, such as infertility and insufficient sex hormone production. Department of Psychology, Play Therapy and Social Counselling. The aim of the department is to treat patients experiencing psychological reactions and to provide social counselling in connection with serious illness and rare disorders. 34 - Department of Orthopaedic Surgery. Orthopaedic surgery is the surgical treatment of disease in and injuries to the musculoskeletal system. In addition to treating all paediatric conditions, the department offers spinal brace treatment and treats spinal deformities in children and adolescents. Such deformities include club foot, slipped hipped joints, fractures, congenital osteoporosis, spina bifida, curvature of the spine (scoliosis) and children with complications following cerebral palsy. Ear, Nose and Throat Surgical & Audiological Clinic. The Ear, Nose and Throat Surgical & Audiological Clinic treats acute and chronic medical and surgical conditions of the ear, nose and throat. The clinic possesses highly specialised expertise in treating patients with small, difficult airways, congenital head and throat anomalies, head and throat tumours and in providing life-prolonging nasal sinus revision of patients with cystic fibrosis and sensory defects, including in particular middle ear and inner ear disorders where the department’s doctors and audio therapists help deaf children to hear using cochlear implants, for example. The clinic also possesses special expertise in other areas such as obstructive sleep apnoea, vessel anomalies and genetic hearing disorders. In addition to clinical expertise, the department conducts extensive research into the above areas. Naturally, the clinic also participates in various multidisciplinary teams in the treatment of patients with syndrome diagnoses. The Eye Clinic. The Eye Clinic treats children with medical and surgical eye conditions, often those that are rare and serious. The medical conditions range from iritis in children with arthritis to extreme dry eye syndrome following bone marrow transplantation and monitoring procedures following cancer of the central nervous system. Surgical conditions include premature retrolental fibroplasia (also known as incubator blindness), congenital green cataracts, congenital cataracts, congenital blocked tear duct, squinting, sagging eyelids and traumas. In Denmark, the treatment of premature retrolental fibroplasia is centralised, only taking place at Rigshospitalet, where children are hospitalised in the neonatal clinic and treated at the eye clinic. Some rare deformities are operated on in collaboration with other departments – i.e. the department of plastic surgery. The eye clinic also has a major supervisory role for other departments at Rigshospitalet, as many diseases affect children’s eyesight. Measuring sight parameters and eye examinations are therefore important in the planning of the child’s treatment in general. Eye diseases in children severely affect the quality of life for both child and family. Treating eye disease entails frequent visits to the hospital and treatment at a specialised children’s hospital will only serve to improve the quality of treatment and provide greater security for children and families. 5 - ACTIVITIES Department of Occupational and Physiotherapy. The department treats and rehabilitates hospitalised patients. Physiotherapy and Occupational therapy function as crossdisciplinary units throughout the entire hospital. Department of Plastic Surgery, Chest Surgery and Burns Treatment. The department deals with highly specialised treatment and care of children, specifically lip-gum-cleft palate and craniofacial deformities that are performed in very close cooperation with several other areas of specialisation within surgery, severe ear deformities (including delayed ear development), congenital melanocytic nevus syndrome (children born with extremely large birthmarks covering large areas of the body), facial paralysis, congenital or acquired, requiring microsurgery (moving free tissue on blood vessel stems from one area to another), major peripheral vascular deformities, including haemangiomas, are treated in close collaboration with diagnostic radiology and dermatology, major reconstructions in the form of assistance to other operations in other areas of specialisation, cancer, e.g. sarcomas and traumas. Often the department performs major reconstruction procedures using microsurgery as well as treating major burns. At regional level, the department is responsible for treating children with melanoma, neurofibromatosis and other benign tumours as well as closing defects following spina bifida operations The Diagnostic Centre. An international leader encompassing several inter-disciplinary areas of specialisation, The Diagnostic Centre performs laboratory tests, diagnostic tests, procures donor blood and manufactures blood products as well as providing medical counselling. - 35 25 - F AO KT RU I VDI STÆ ETN ER INGER PROPOSALS FOR THE FUTURE. 36 - 6 - PROPOSALS FOR THE FUTURE 6. P RO P O S A L S F O R T H E F U T U R E . Our proposal is to consolidate all child patient care at Rigshospitalet in an area dedicated to children aged between 0 and 18. Maternity wards and beds for pregnant women and women in labour are to be grouped together in order to achieve logical treatment synergy and exchange of experience. This will make Rigshospitalet an international centre of excellence, drawing patients and qualified staff from the whole of the Nordic region. - 37 6 - PROPOSALS FOR THE FUTURE Future paediatric intensive care. Four centres are currently involved in treating critically ill children – with intensive treatment taking place in five different sections. The sections are organised partly according to medical specialisation and partly according to patient age. At Rigshospitalet, the different departments offering paediatric intensive care work together. Thus, it is not unusual for a child at Rigshospitalet to be hospitalised in two or three different intensive therapy units during treatment. Grouping all children into a paediatric intensive care centre will mean Rigshospitalet can treat the most complex patient types because all specialities will be represented – both paediatric specialists and basic specialists – while maintaining close links with the adult specialities in the main hospital. It will also mean that families will experience simpler patient care because the specialists will come to the child and not vice versa. Rigshospitalet will thus contribute towards more structured and specialised training, developing the various areas of 38 - specialisation and expert education in the paediatric intensive field. Future Neonatal Intensive Care Unit (NICU) – newborns. An intensive unit for newborns encompassing several different patient types – both premature babies requiring proximity to a maternity ward and critically newborns with serious illnesses. Towards 2025, the number of patients and bed days is expected to rise within the neonatal field. Treatment duration will also increase because developments in the areas of specialisation will determine the point at which treatment must be abandoned. Future Pediatric Intensive Care Unit (PICU) – children aged 0-18. The basis for establishing a PICU at Rigshospitalet will be supported by the proposed centralisation of paediatric intensive therapy with only two or three PICUs in Denmark. Depending on the degree of national coordination of paediatric intensive care, the need for a paediatric transport scheme will increase and the PICU function will thus require a transport scheme that includes a 24-hour decision support function. Overall, we expect a growing need for intensive care in 2025 based on the expectation that hospitals, in future, will seek to prolong treatment and that treatment will become more comprehensive than that offered today. Future Paediatric Surgical Anaesthesiology Unit at Rigshospitalet. Four centres currently deal with children undergoing surgical procedures and sections are divided into medical specialities. The proposal is to group all children at Rigshospitalet in a dedicated paediatric surgical unit aimed at children aged between 0 and 18. This will pave the way for Rigshospitalet to become an international centre of excellence, drawing patients and qualified staff from the whole of the Nordic region. It will also mean that Rigshospitalet can treat the most complex patient types because the unit will represent all specialities and thus provide easy access to all specialists. Families will experience simpler patient care because the specialists will come to the child and not vice versa. In a unit dedicated to children aged between 0 and 18 it will be possible to tailor layout and design to the needs of children and families. The unit must be child-friendly without being child-ish. All children will have at least one parent with them in the surgical unit to ensure family involvement before, during and after the surgical procedure and it must be easy for parents and staff to contact each other. A further important consideration for the operating unit is to offer ways of distracting children to prevent them from becoming anxious in unpleasant situations. The aim is to avoid having to restrain the child. Future Paediatric Bed Unit at Rigshospitalet. In relation to bed planning, children are currently hospitalised at the Centre of 6 - PROPOSALS FOR THE FUTURE Head and Orthopaedics, the Heart Centre and the Juliane Marie Centre. The proposal is to group all beds for children and adolescents in the new hospital to give families the best possible means of providing support to a sick child. Being able to include elements from daily life is an important part of this – just as it is important to create greater cohesion between the hospital and the world outside to ensure that the patients can continue to develop as children and adolescents within the context of their families. Normal life takes on a special significance when someone in the family becomes so ill that they require hospitalisation. In the hospital of the future, patient wards will be established on the principle that patients should be moved as little as possible and that instead staff should be brought to the patient. • Increased home treatment and home monitoring. Future Bed Unit for Pregnant Women at Rigshospitalet. Delivery rooms and beds for pregnant women and women in labour will be grouped together in the new hospital. The perception of birth as a natural part of life will generally lead towards shorter stays in hospital. On the other hand, the incidence of pregnant women with chronic medical conditions such as obesity, diabetes and high blood pressure is expected to rise, thus increasing the activity level of Rigshospitalet’s highly specialised unit. From a purely demographic standpoint, the birth rate for Copenhagen as a whole is expected to rise. Unit activity will therefore depend on the hospital plan and thus Several factors will cause bed capacity requirements to fall in coming years: Reorganisation of surgical procedures to outpatient and day surgery. Increased outpatient diagnostic activity. • • - 39 6 - PROPOSALS FOR THE FUTURE Rigshospitalet’s catchment area. Activity over the past ten years has varied greatly and the new hospital will therefore need to exhibit a high degree of flexibility. This requirement can be met by placing the bed wards close to the delivery rooms – bed wards that can easily be adapted to delivery rooms. Future Paediatric Outpatient Care at Rigshospitalet. In relation to outpatient treatment, children are treated in all centres at Rigshospitalet. The proposal is to combine all out-patient functions for children and adolescents in order to give families the opportunity to support their sick child. Grouping all children in an outpatient wing will allow Rigshospitalet to treat the most complex patient types because all specialities will be represented, thus ensuring easy access to all specialists. Families will also experience simpler patient care. An outpatient wing designed for children 40 - and adolescents demands a design that supports play. Children must be able to enjoy an uninterrupted play flow – even during visits to the outpatient unit. There must be ample opportunity for staff and users to give and receive training and adolescent needs must be incorporated into patient care on an equal footing with those of the other age groups. Outpatient care will be based on a pit-stop approach, where all specialist consultation is coordinated and handled in a streamlined flow. Staff come to the patient – not the other way round. General trends: Outpatient treatment, same-day surgery and home treatment are on the increase. The trend in society and IT development together with video-based consultation mean that chat, e-consultation and question times etc. will largely replace traditional consultation methods. Advances in equipment also mean that more examinations – e.g. CTG – will take place in the home. In line with shorter hospitalisation there will be a need for expanded outpatient capacity. In addition to the • • • need for more outpatient follow-up, earlier discharge will result in a trend towards more home treatment. Future Outpatient Care for Pregnant Women. Today, pregnant women are offered outpatient care at several locations. In future, all check-ups will be centred at the mother and child hospital – with the exception of a single midwifery centre in Østerbro in accordance with the Capital Region of Denmark’s maternity plan. This will ensure a coherent flow for families and that the necessary expertise is on hand. The pit-stop principle will be the same as in the paediatric outpatient centre: it is the experts who come to the patients. Thus a pregnant woman with heart disease will be examined by several experts at her first consultation: an obstetrician, a heart surgeon, an anaesthesiologist and a thoracic surgeon. This team can then plan and inform the patient about monitoring and any precautions in the ongoing treatment process. It is our vision to provide patients with the best possible care in the least invasive way – including the offer of home treatment when applicable. Our guiding principle is, therefore, that the hospital should provide only treatment and care that cannot take place in the home. Technological development and the advent of technological aids in the home are expected to increase exponentially. This will pave the way for a wide range of home-based monitoring and treatment options. Presumably, the sky is the limit. Examples include monitoring at-risk pregnancies in the home, foetal monitoring and blood sampling. 6 - PROPOSALS FOR THE FUTURE - 41 6 - PROPOSALS FOR THE FUTURE Future integrated treatment, research and education. The idea is obvious: to learn from all diagnostic procedures and patient treatments. To merge research and education with clinical practice. To share our knowledge and inspire each other in achieving the highest professional standards possible. Research, development, innovation Our research vision is to create better treatment and patient care. More patients must be cured or enjoy improved quality of life with their illness. Digital technologies have revolutionised our societal infrastructure. The biotechnological revolution will revolutionise our ability to integrate clinical practice with research and education. Essentially, it is about the new possibilities of mapping the human genome on an individual patient basis. Only a few years ago, the cost of such mapping ran into six figures. Today it can be done in a few hours at a fraction of the cost. We will routinely be able to map the genomes of all future children at 42 - an early embryonic stage. A simple blood test will enable us to diagnose a long list of embryonic genetic deformities which were previously impossible to detect until considerably later. In other words, we will be in a position to dramatically leverage our knowledge and options. Rigshospitalet’s maternity unit will be at the forefront of this development, developing both ethical and educational standards for managing this new knowledge. The new knowledge about the individual patient’s genome will also revolutionise future medical treatment in the form of customised treatment and dosages. In Denmark, we have unique conditions for linking environmental and genetic data with new knowledge about the incidence of disease, and thus new possibilities for preventing such diseases. Biotechnological advances and the ability to map the molecular structure of a wide range of diseases will result in the development of biological drugs targeting unique cellular functions. This will create a huge need for phase 1 and phase 2 biological drugs testing, which in the case of paediatrics is hampered by the extremely low incidence of the diseases. Rigshospitalet has established the first units in Denmark for testing such drugs for children with cancer (the only unit of its kind in Scandinavia) or children with congenital metabolic disorders. At the new hospital, phase 1 and phase 2 will be organisationally consolidated into a single unit, exploiting its knowledge to include patients from the other areas of specialisation in paediatrics. This will also enable us to treat patients from the rest of the country as well as those outside Denmark – and from a European standpoint, the unit could function as an important and highly attractive collaborative partner for the pharma industry. The specialist floor – the Academy. We will establish research and educational facilities in all clinical departments, simultaneously establishing an entire floor dedicated to scientific research. The floor will feature research laboratories, meeting rooms, offices, guest laboratories and guest offices. Our ambition is to stimulate synergy between research environments across disciplines and areas of specialisation, and attract the finest talents in the field. Excellent facilities that support research and development will make it an attractive environment in which to take breaks and hold meetings. In short, we will create an innovative hub where numerous specialist areas can interact. Education Our vision for education and training is that learning must be supported in all procedures and that everything that can be trained– must be trained. We will continue to focus on this area, strengthening research-based educational efforts, integrating training and learning in our daily work routines with an emphasis on patients and their families. We will conduct research into learning methods and monitor derived learning in order to assess the quality of our clinical work. We will establish a framework in which education is an integrated part of operations on equal footing with patient treatment, ensuring that education and learning are present for all professions in outpatient units, 6 - PROPOSALS FOR THE FUTURE treatment rooms, surgical wards, etc. Education of the future must include learning facilities that ensure learning – both with – and without patient involvement. In other words, teaching facilities that facilitate different types of training, and clinical facilities that support learning, supervision and feedback. From an education standpoint, there will be a need for hands-on learning, with easy access to areas where supervisors and students can review training material and have feedback discussions. In future, relational learning will play a major role, and areas devoted to scenario training of interprofessional communication with patients and families will not only be necessary, but will also be given priority. Clinical teaching will be largely based on training in close proximity to the patient, affording an increasing degree of student autonomy and peer-to-peer training under competent supervision. Outpatient training Developments in medicine and treatment technology will result in shorter periods of hospitalisation and thus more training via outpatient care and day surgery. Outpatient units must support video supervision, enabling observation without the need for the consultant to be physically present. Outpatient units must provide extra room for students and independent work in adjacent rooms under close supervision (e.g. so-called backup outpatient function). Simulation-based training Shorter and more effective healthcare training and patient safety requirements mean that training must increasingly be simulation-based, with an emphasis on learning – as opposed to patient treatment, which must always prioritise the patient. There will be a growing need for individual and team-based simulation-based training targeted at a wide range of professions and levels of experience. Looking to the future, healthcare personnel can expect more stringent formal requirements with regard to mastering high-risk procedures such as surgical interventions prior to such procedures being carried out on patients. This will require the establishment of simulation-based training facilities and the redesigning of operating theatres, maternity units, neonatal wards and wards that are well suited to simulationbased learning and competency assessment. New technologies We will integrate more active participant training. It will require hybrid courses that integrate physical courses with online courses. All rooms must be transmission-enabled with a view to teaching, learning, supervision and feedback. technologies must support teaching and reflection close to patient areas. Patient involvement In this context, patient empowerment means that the active involvement of patients and families in their own treatment can provide students with a direct understanding of the patient’s perspective on their own illness. Teaching situations must offer the possibility for national and international input and feedback. Increased digitisation will offer the possibility for log books for all students. Log books can be linked to operation lists or patient ward rounds, for example. Digitisation will also mean that knowledge will be updated more speedily, which in turn will necessitate increased access, user-friendly instructions and online guidelines. IT - 43 251 3- F A-O KOT RRU IV EAR IT NG ER GDIASTÆ NE ITSN IO N CREATING CONTINUITY. 44 - 7 - PAT I E N T PAT H WA Y S 7. PAT I E N T PAT H WAY S . Patients must experience coherent, coordinated treatment without problematic transfers between departments and clinics, centres and sectors. Coherence and coordination must be a recurring feature of the new hospital complex. The building must reflect not only ground-breaking architecture, but also new standards of logistics and functionality. The aim is to create individual and intelligent patient care for every single patient – child, adolescent and adult. - 45 7 - PAT I E N T PAT H WA Y S Expertise with a human face. The first five minutes must be the best. Patient care must be one continuous flow – one is almost tempted to say painless. From the initial contact by phone, letter or email to completed treatment and potential follow-ups. The first meeting is crucial to the overall impression and its design – whether written or spoken – must put people at their ease. Paradigm shift: the experts come to the patient. The feasibility study has mapped 100 courses of individual patient pathways. See the example on the right: Figure: Illustrates a patient care flow. In between the two bold lines we see the patient’s many different contact points with the hospital. 46 - 7 - PAT I E N T PAT H WA Y S Patient carecare flowchart Patient flowchart The Department of Paediatrics and Adolescent Medicine, acute, congenital, chronic blood diseases, 15-18 patients/annually Consultation Administrative procedures Diagnosis and treatment + follow-up care Referral from own GP/hospital Samples (sent) BAS test analysis UL dept., RGT. Thorax Images etc. (patient transfer) Continue in JMC until they are approx. 18. Transition to adult haematology Walks home Other bed wards in clinic Own outpatient Hospitalised for OP Hospitalised for blood transfusion Own bed ward Preliminary consultation in 5002 5002 Walks home Other depts. at RH Walks home BAS test analysis to Herlev, Clinical biochemistry, Microbio., Blood bank Consultation by other clinical depts. Other collaborative units Echocardiogram 5003 BAS test analysis to Clinical biochemistry and Blood bank Hospitalised for blood transfusion Walks home Follow-up x2 Follow-up Walks home Other sections in JMC Hospitalised for blood transfusion Walks home Follow-up x2 Operation or Port A Kath Recovery Ophthalmologist 2061 Ophthalmologist 2071 GR dept. 5064 Blood pressure 5002 Clinical biochemistry and Blood bank Blood pressure 5002 Days 1-2 Annual follow-up – possibly half-yearly follow-up Echocardiogram Audiometry Eye Clinic GR dept. MR scan, brain/liver? Flow cerebrum UL abdomen Interpreter Social counsellor Social worker Medical educator/school teacher/hospital ward instructor throughout patient care Hospitalised for blood trans. every 3-4 weeks. In between: (clinical follow-up) + blood samples x 2 months in outpatient in 5002. Blood bank Day 3 Interpreter assistance for ?% of patients Timeline Day 28 Neurological dept. BBH. Central. Blood/? Day 21 Day 28 Herlev MR scan/Heart/Lung BBH: Neurological Herlev: MR dept. From 3 months - 47 7 - PAT I E N T PAT H WA Y S We have approved a paradigm shift, ensuring that in future the experts come to the patients. This reduces the number of patient visits to the hospital to consult a variety of experts for a diagnosis. This can now be dealt with at the initial consultation, as all the relevant clinicians are on hand and all examinations have already been planned. The diagnostic unit is located next to the outpatient and operating theatres, ensuring easy access and immediate diagnosis. The many follow-up consultations and some treatments can be replaced by home treatment and telephone consultations – once again easing conditions for patients and families. Figure: In the new hospital, pit-stop philosophy will be integrated into the design. Specialists will visit the patients so the diagnosis can be given at the initial consultation. 48 - Patient care flow/elective Patient care flow/elective Future patient care flow – the patient’s physical journey Clinic: The Department of Paediatrics and Adolescent Medicine Names of participants: Lise, Marie, Marianne, Inger, Anja, Susan, Jesper Patient profile: brief, difficult, complex process/elective Coordination of diagnosis/treatment/observation Home Consultation/treatment Referred by another hospital/known by BUK. Other hospital Own section Ordinary ward: At the quiet end. Same staff as before. Know the department. Shared with others Day hospital: In outpatient unit. Familiar staff. Have own room/ward. Other locations at RH Timeline Diagnostic Centre: Phys., Diet., Psych. Specialised examinations. Highly specialised examinations. Few days 7 - PAT I E N T PAT H WA Y S Patient care flow/acute Patient care flow/acute Future patient care flow – the patient’s physical journey Clinic: The Department of Paediatrics and Adolescent Medicine Names of participants: Lise, Marie, Marianne, Inger, Anja, Susan, Jesper Patient profile: brief, difficult, complex process/acute Arrival/diagnosis/treatment start Home Acutely ill. Known/ unknown diagnosis. Other hospital Acutely ill. Known/ unknown diagnosis Own section Shared with others Ongoing treatment Discharged home Acute ward: Close to PICU/NICU. Parent recess with dialogue. Advanced diagnostic imaging. Isolation doors. Antechamber with work station. Room for small sterile procedures. Telemedicine. Laboratory equipment. Referring unit of PICU staff. Moved after 24 hours. EEG, ECG, SAT, BT. Ordinary ward: Interview, staff Other locations at RH Timeline Max. 24 hours Days - 49 251 3- F A-O KOT RRU IV EAR IT NG ER GDIASTÆ NE ITSN IO N WE WILL GIVE THE WORD ‘HOSPITAL’ A WHOLE NEW MEANING. 50 - 8 - TECHNOLOGY 8. T E C H N O L O G Y. Not content to follow developments in healthcare technology, IT, functional design and sustainability we aim to lead development. We will embrace technological development, continually implementing and developing technology – an ambition and complexity made no easier by the fact that solutions must be robust in relation to future technological advances. But the goal is a simple one – to free up resources for the best treatment, education and research in the world. - 51 8 - TECHNOLOGY The technological part of the medical profession. In the years ahead (not to mention months) we will see the introduction of IT systems and software that can support patient care, regardless of whether the patient is in hospital or at home. Healthcare staff must therefore be trained to screen and identify the needs of patients and/or their parents’ resources in terms of home treatment. patients and the hospital always know where we are in the process and what lies ahead. Telecommunication with sound and images that enables face-to-face communication between nurses in the home and the primary department, between patient and the primary department and between the patient and health visitor or the interdisciplinary departments involved in treating the patient. The patient’s clinical state can also be monitored in the home. The common electronic medical record system and documentation program used by the entire healthcare system, including patients themselves – equipment, respirators, pumps etc. can be hooked up to the system and accessed by all parties, making quality assurance and treatment monitoring possible. Home treatment is rooted in the desire to return as much as control as possible to patients; we must view them less as patients. Patients will become introduced to teleconsultation during initial examination, e.g. recording of own medical history, monitoring or registering data in advance of clinical diagnosis (initial physical contact with the hospital). Home treatment and monitoring can occur throughout the patient care process in connection with both outpatient and hospitalised treatment. The type of home treatment will range from video consultations regarding own treatment and monitoring to home treatment by an outgoing function such as home nursing care. The patient’s physical contact with the hospital will to a large extent be replaced by electronic communication, something we are already familiar with from e-trading. To ensure secure, professional patient care we must be at least as good at managing our joint patients as e-trade is at managing our orders so that both In the coming years a significant and increasing number of patients will be found to have congenital diseases or disease with a genetic component. This finding is an essential and integrated part of diagnosis, treatment, prognosis and follow-up, including the possibility for family diagnosis and prenatal diagnosis. The possibility and need for tailored treatment will grow exponentially over the coming decades. This will affect analysis of the patient genome and tumour genome for cancer patients, medicine consumption and detailed registration of patients’ disease and sideeffect phenotypes. Going forward we expect an increased use of point-of-care monitoring (POC) and treatment. This will entail on-the-ward laboratory examinations and diagnostic imaging and that equipment such as respirators and dialysis equipment is brought to the patient rather than the other way round. 52 - Future Laboratories and Diagnostic Imaging. Diagnostic Imaging. When it comes to diagnostic imaging, Rigshospitalet already ranks among the world’s finest and the diagnostic imaging service will be both a focal point and the point of departure for providing the best patient care. The diagnostic imaging function will become a professional and technological spearhead unit which, by virtue of its palette of sophisticated modalities, will ensure world-class diagnostic imaging. X-ray and ultrasound examinations, PET-CT-scanning (positron emission tomography) for rapid cancer diagnosis, MRI scanning (magnetic resonance imaging) which uses a magnetic field and radio waves to display images of bones, sinews and muscles, CT scanners that can display 3D X-ray images and SPECT (single photon emission computed tomography) that can chart activity in the central nervous system. This unique service will require substantial capacity and focus and will need to be made a high priority. However, we firmly believe that the need for diagnostic imaging examinations will rise sharply in the coming years to ensure quick, targeted and accurate diagnosis – and thus swift treatment. 8 - TECHNOLOGY - 53 8 - TECHNOLOGY Breaking news – as late as possible. The feasibility study has categorised relevant healthcare technologies into three groups: immediately accessible, accessible within a five-year period and pipeline or drawing board technologies. Our conclusion is that the electricity grid must be dimensioned so that it is geared to all future technological solutions – “the cables can’t be thick enough” – but we must delay purchasing specific equipment as long as possible to ensure we have state-of-the-art technological solutions. We will ensure two-way communication in as many clinical workplaces as possible, paving the way for real-time communication with patients at home, collaborative partners at other hospitals, second opinion, training, supervision etc. Two-way communication will also help meet our demands for a high degree of flexibility and the integration of clinics, education and research, just as it will reduce the need for physical space for telecommunication. 54 - Technological development. Intensive wards of the future must be able to function as isolation wards, both to protect the patient from outside infection and to protect other patients. Bacteria and viruses of the future will continue to develop resistance, thus increasing the need for protection as well as for cleanliness and sterility. 8 - TECHNOLOGY - 55 25 - F AO KT RU I VDI STÆ ETN ER INGER PHYSICAL MANIFESTATION. 56 - 9 - ARCHITECTURE 9. A RC H I T E C T U R E . How competent can a hospital feel? Is it possible to imagine a building so manifestly well-conceived that its very design inspires hope and confidence? Where wards and departments are logically organised, providing users with a clear overview and sense of direction? Where the patient ward has a healing effect on both patient and family? Where you know – and can feel – that you are in the world’s best hospital? This is the hospital of our dreams – situated in the heart of Copenhagen. - 57 9 - ARCHITECTURE Building plot, landscaping, building and engineering. Building plot. Rigshospitalet’s plot is situated in the heart of the city in Copenhagen’s Østerbro district. Dating back to 1910, Rigshospitalet’s original building is located on part of Blegdamsfælleden – an open green area which still flanks two sides of the hospital grounds: Amorparken to the south west and Fælledparken to the north east. To the northwest, Rigshospitalet is encircled by an approach road to central Copenhagen, Nørre Allé, and to the south east by a building complex typical of Copenhagen on Blegdamsvej. The illustration shows the outline of the building plot situated in the western part of the hospital complex towards Amorparken and the skate park in Fælledparken. Henrik Harpestrengs Vej, an important bicycle thoroughfare spanning the city, intersects the plot. The road runs between the 1970s hospital and the recently built patient hotel on one side and the edge of the hospital complex towards the skate park and Amorparken on the other. 58 - Spearheaded by city architect Tina Saaby, City of Copenhagen is committed to creating a vibrant urban environment with ample urban spaces for its residents and visitors. The project group is in ongoing dialogue with City of Copenhagen regarding how the hospital complex can open itself to and act as a resource for the city. Landscaping. In addition, the garden and patio designs must underpin the three design principles – integrated play; see me, hear me, let me; designed for daily living – by providing: • • • The dialogue process has resulted in several focus points that are to be incorporated into the competition material: • The boundary bordering the patient hotel, a minimum of 15-20 metres separation distance depending on building height. Maintaining trees worthy of preservation towards Amorparken and Edel Sauntes Allé. The experience of Henrik HarpestrengsVej. Borders towards Rigshospitalet. Borders towards the city. • • • • The Municipal Plan Supplement suggests a maximum height of 60 metres. • • • • Direct access to the outdoor patios from the common areas. A clear view of the surroundings as part of the wayfinding strategy. Patios designed with integrated play in mind – with a design that appeals to all age groups. Patios technically equipped like the indoor common rooms with good Wi-Fi coverage, visible ‘displays/ number systems’ in the outpatient areas, staff intercom, etc. Recreational experiences and activities, outside as well as inside. Possibilities for year-round use. A choice of plants and surfaces that reflect the changing seasons. 9 - ARCHITECTURE Illustration of building plot. - 59 9 - ARCHITECTURE The building. Despite the size of the new hospital complex, the building must not feel overpowering. It must be clearly structured and divided into distinct zones, almost like a town with a main street (e.g. the public zone by the lifts and reception areas), side streets (the semipublic zone, common areas in the sections, for example) and private zones (bed rooms, for example). The zones must be clearly marked and distinguishable from one another – in terms of individual design and the design features that complement the building’s architecture and design. Furniture and equipment. The design of furniture and fixtures must enhance the experience of the three design principles – integrated play; see me, hear me, let me; designed for daily living – by: • • • Differentiating the design according to the zone you are in. Creating everyday experiences in the private zones and common rooms. Incorporating integrated play to stimulate curiosity. 60 - • • • • • Stimulating sensory experience through surfaces and textures. Creating tranquillity and coherence throughout the building. Fulfilling formal functional requirements. Supporting proper hygiene and a high degree of patient safety. Offering patients self-service options based on internet and mobile solutions. Automating large parts of the supply chain and ensuring sustainable and intelligent use of resources. • Architectural flexibility and robustness. Flexibility-flexibility-flexibility! A range of factors affect future requirements for a mother and child hospital: healthcare developments, technology, cultural trends, political initiatives, demographic changes, economic challenges, family constellations, epidemics, etc. Flexibility is therefore a fundamental requirement for the new hospital complex. Today, the individual clinics have a certain number of beds at their disposal; tomorrow, this number will presumably have changed. We will therefore group all beds together into areas where ownership between the clinics can change effortlessly in line with specific needs. Neighbouring wards can easily be merged with one another. The following are illustrative examples: Standardisation of all rooms. The new hospital must be able to meet extra capacity requirements related to healthcare developments. Outpatient clinics can be converted into wards, which can be converted into intensive wards, which in turn can be turned into operating theatres. Naturally, a simple outpatient room cannot be turned into a sophisticated operating theatre at the drop of a hat, but the general building construction – e.g. height of the individual floors – must support the ongoing adaptation of hospital functions. Future-proofed rooms. Operating theatres are dimensioned to accommodate future requirements for sophisticated diagnostic equipment and robot-assisted surgery. The diagnostic unit. The development in diagnostic imaging equipment is an area currently experiencing explosive growth. The new hospital will be equipped with state-of-the-art facilities. At the same time, the building will have a reinforced structure to accommodate future heavy machinery and equipment with easy access assured through the façade structure. Multifunctionality. Bed wards in the paediatric section will be designed as single-bed wards. That said, they will be able to accommodate two beds in the event of disaster or epidemics. Similarly, wards can easily be converted into isolation wards. IT. Wall cabling must be of a standard such that it can meet the demands of the future. Capacity. A description must be provided as early as the planning stage and in the architectural competition prospectus of how the finished building can subsequently be expanded. 9 - ARCHITECTURE Logistics. We envisage the following: The logical structure must ensure that clinical staff can focus on their core tasks: treatment, education and research. Internal and external zones must be clearly separated. Internally, delivery of equipment and goods to departments and units must be made efficiently without disturbing patients and families. • Logistics comprise: People flow. Goods flow. Equipment flow. Medicine flow. Waste management. • • • • • The new hospital must have a logistical infrastructure that supports ease of access and short distances throughout, with facilities locations that encourage labour-saving work processes and good operating economy – not to mention good working conditions for staff. Infrastructure and logistics must ensure a high degree of operational security of supply, optimal hygiene and working conditions as well as correct storage and transport standards that promote patient safety. A central goods reception area next to the Regional Sterile Centre. • • • Coordinated and automated distribution of goods, samples, linen and meals. Logistics and transport facilities based on an internal/external principle with separation of clean/ dirty and goods/patients/staff. An acute emergency lift to transport patients and staff between key units (ambulance entrance/diagnostics/ operating theatre/intensive delivery rooms/bed wards). The AGV system facilitates the reliable transport of goods and products, including food, textiles, central depot goods, sterile goods, laundry and waste. The AGV system will operate between the goods terminal, the Regional Sterile Centre, the main kitchen, the individual clinical areas and the rest of the hospital. We will subdivide the logistics/lifts into the categories: goods, ‘vulnerables’ (bedbound patients, acutely ill patients) and everyone else – staff and relatives. The logistical solutions in the new complex must match our vision to become the world’s best children’s hospital and as well as streamlining work procedures, the introduction of AGV (automated guided vehicles) will also significantly improve the working environment by reducing heavy goods handling. - 61 25 - F AO KT RU I VDI STÆ ETN ER INGER A HEALTHY BUILDING. 62 - 1 0 - S U S TA I N A B I L I T Y 10. S U S TA I N A B I L I T Y. While a building of this size and with these functions cannot be climate neutral, it can point towards a future where sustainability is not simply incorporated into projects of this size but is a natural prerequisite. - 63 1 0 - S U S TA I N A B I L I T Y The minimum is the most sustainable. Both internally and in terms of energy production, the complex offers potential for incorporating heating pumps, solar heating and solar cells in the power supply strategy. The hospital is equipped with district heating and district cooling systems, the most sustainable alternative to own-energy production for Copenhagen hospitals. The emphasis is on sustainable construction and the building will be dimensioned according to the Danish Building Regulations 2015, energy class 2020, which require the building’s energy characteristics and indoor environment to be monitored and analysed throughout the project period so that all decisions are well-informed. In terms of the indoor environment, the goal is to create a healthy building with a pleasant indoor climate (thermally, atmospherically, acoustically and visually) incorporating all parameters affecting comfort and health. The daylight and artificial light in the building must combine to provide a good overview of the surroundings, effective use 64 - of daylight and artificial light not to mention optimum light quality with minimal glare. 1 0 - S U S TA I N A B I L I T Y - 65 251 3- F A-O KOT RRU IV EAR IT NG ER GDIASTÆ NE ITSN IO N WE WANT TO CREATE A WORKPLACE TO BE PROUD OF. 66 - 1 1 - S A F E T Y, H Y G I E N E A N D T H E W O R K I N G E N V I R O N M E N T 11. S A F E T Y, H YG I E N E A N D T H E WO R K I N G E N V I RO N M E N T. The new complex stands on the strongest foundation imaginable – namely professionalism. It is also the most relevant foundation for patients and society as a whole. However, professionalism as a foundation has an added dimension. Professional challenges are crucial for attracting the best minds – just as job satisfaction is key to retaining them. At the new hospital we aim to create a working environment where commitment and professional development are inextricably linked. We will integrate treatment, education and research in constant interaction with patients, healthcare professionals and working environment specialists. - 67 1 1 - S A F E T Y, H Y G I E N E A N D T H E W O R K I N G E N V I R O N M E N T The key words are safety, hygiene and working environment. Safety. The demand for single-bed wards reduces the risk of infection and the spread of infection among patients. Single-bed wards also reduce noise and disturbances, thus promoting faster recovery and confidentiality between patient, relatives and staff. The option of having relatives with you in a single-bed ward not only promotes the patient’s sense of security but simultaneously reduces the risk of mix-ups and dispensing errors. Good physical working conditions, including ceilingsuspended lifts on the wards, will further reduce sickness absence due to lifting injuries. Design must also take into account possibilities for staff to monitor individual patients. In terms of patient safety, we will focus on patient, staff and supplyrelated factors. Hygiene. “We must make it hard to make mistakes.” Better hygiene reduces staff sickness absence, periods of hospitalisation and the number of readmissions. 68 - Simply establishing single-bed wards significantly reduces the risk and spread of infection. Hygienic, behaviour-regulating solutions must also be built into the building structure – both technological solutions and specific solutions such as easy access to wash basins and hand disinfection – one of the most important ways of promoting good hygiene. Cleaning is paramount. It is important that the building design accommodates preventive measures in terms of behaviour, layout and choice of materials. For example, the regular use of strong cleaning agents must be possible without damaging hospital surfaces or materials. In this context, waste management focuses on removing waste immediately and minimising contact with the surrounding area. Working environment. Safety and working environment considerations must be of the highest order during the construction phase, the operational phase and during subsequent conversions. We must ensure that the working environment and patient safety – two priority focus areas during the programme phase – continue to enjoy top priority. A good working environment also means ensuring that rooms are located with proximity in mind so that work tasks can be performed where staff work and that hospital functions are planned in such a way as to avoid worry and stress. To the greatest extent possible, the new complex must be the workers’ hospital – the best workplace to be. Exciting work offering international and professional development opportunities for all staff is only part of the strategy. We will also promote staff health by providing the best possible physical and psychological working environment. Ensuring that the guidelines of the Health and Safety at Work Act, including daylight for permanent workplaces, are observed at all times is a minimum requirement. The working environment must have a holistic, systematic, preventative and health promoting focus. Working environment conditions must be incorporated into priorities and solutions for the complex throughout the construction phase. However, the working environment must first and foremost support the hospital’s core ambition to become the world’s best treatment, education and research centre. We must create an environment that stimulates integration between different professions and specialities in order to strengthen working relations that result in cooperation of the highest order. The new hospital building should inspire movement – e.g. by means of attractively designed and highly visible staircases. 1 1 - S A F E T Y, H Y G I E N E A N D T H E W O R K I N G E N V I R O N M E N T - 69 25 - F AO KT RU I VDI STÆ ETN ER INGER CAN YOU BE CURED BY THE DEEPEST BLUE? 70 - 12 - AESTHETICS 12. AESTHETICS. Aesthetics as in ‘realisation through sensory experience’ is not simply a question of taste but a healing potential that we should take every bit as seriously as all other kinds of treatment and medicine. Healing architecture is based on the concept that aesthetics and physical surroundings directly and indirectly affect people’s physical and mental health and general well-being. We have considerable expertise in this area. We know how to design the optimum surroundings using tools like light and shade, light design, art and colours. We know how texture and sensuality affect people’s experience of quality and competence. We also know how little this knowledge is put into practice in times of fiscal constraint. It is difficult to fund a beautiful colour scheme in the face of public cut-backs. However, the overall economy of faster recovery, with fewer days in hospital and fewer complications is a strong financial argument in the case for a beautiful colour scheme. - 71 12 - AESTHETICS Can you use something that isn’t 100 per cent proved? Clinically randomised, double-blind, controlled trials are few and far between in the design world. However, that should not stop us from using evidence-based design as a basis for building a new mother and child hospital. Plentiful daylight is important – all day. The blue morning light resets our circadian rhythm and boosts our activity level while the red light towards the end of the day prepares us for the dark of night and sleep. We acknowledge that aesthetics and design influence human well-being and physiology. While aesthetics alone perhaps cannot cure, daylight, atmosphere, rooms, colours and sound can unequivocally aid the patient’s healing process. As important as light is during the day, so is darkness equally important at nighttime. Lower levels of lighting at night give children and premature babies longer sleeping periods and deeper sleep with less movement. A marked difference in lighting levels during the day and at night increases the activity level of premature babies. A good night’s sleep aids recovery. This is a rapid developing area, and the design of the new hospital must be based on the latest and most relevant insights. Which colours calm children best during examinations and consultations and what can we do to help women in labour better focus on their breathing rhythm. Light. If we could only choose one tool as a foundation for healing architecture, it would be light. All forms of light and colours: daylight, artificial light and the absence of light – administered as precisely as hospital medication. 72 - Nothing new there – light during the day, darkness at night – but in a hospital environment punctuated by bells, alarms and constant activity, achieving this can be a major challenge. In the new hospital, we will create a homely environment in the wards, using glass to ensure a plentiful source of light. We will use artificial light that mimics natural light, combining the necessary night activities with as much darkness as possible for the patient. Wayfinding. People will have a multitude of reasons for visiting the new hospital. Often, they will be affected by the situation and feel more or less out of control. The new complex will support the feeling of security and control over one’s own situation by making it as easy as possible to navigate around the building. The design must be rooted in evidence-based wayfinding research, with a clear overview of north, south, east and west, fewest possible options and clear landmarks. Gardens and nature. Numerous studies support the positive effect of visual or physical contact with nature. While the best option is ‘real’ nature, other options can be equally viable. Studies show that the more we mimic nature by means of long sightlines and scenic 3 D objects such as trees and varied terrain, the greater the effect. The garden elements that exert a positive effect on mood are trees, plants and elements involving sound, smell and sense of touch – smells, absence of noise, birds, sunlight and shade. Adults want to sit and relax in the sun while children want to play, explore and discover. The new hospital will be equipped with well-situated, accessible patios that are connected to what is going on in the building and geared to all age groups. In other words, gardens and garden access must be clearly indicated, and people must be encouraged to use them. Art. The new building will feature art. More specifically, art to the tune of 1.5 per cent of the total labour budget. Art must give pleasure, inspire curiosity and offer distraction to the more than 2,400 people who will use the new hospital daily – patients, relatives and staff. Art must be visible in the public zones, reception areas, gardens and corridors as well as the less public areas such as common rooms and bed wards, outpatient units and offices. Art in the bed rooms or other more private rooms must be adaptable to the person using the room. Adults and children. In other words – dynamic art. 12 - AESTHETICS When we think of art, we do not envisage framed art works hanging on the wall. We see art as an integrated part of the building, incorporated into the building’s very DNA and uniquely created for the hospital project. We also hope that art can be used to support one or more of the new building design principles: integrated play; see me, hear me, let me; designed for daily living. We would also like to see art moved outside as an integrated feature of the natural experience landscapes of the building’s gardens (roof gardens). - 73 25 - F AO KT RU I VDI STÆ ETN ER INGER AND HOW EXACTLY IS ALL THIS GOING TO BE ORGANISED? 74 - 1 3 - O R G A N I S AT I O N 13. O RG A N I S AT I O N. By now, the attentive reader has probably deduced that the new hospital building is a complex project of epic proportions requiring stringent management. That said, the building must be nothing less than a textbook example of competent management and organisation. In connection with the decision to build the new hospital, a project organisation has been set up and is described in the following pages. - 75 1 3 - O R G A N I S AT I O N Responsibility and management. The client function is organised under the executive board for Rigshospitalet, with the hospital director acting as the project manager responsible for overall project development and implementation. Daily project management is anchored in the project organisation headed by the project director. It is the responsibility of the project organisation to ensure a systematic, well-documented implementation process that creates value. Organisation 1. Steering committee, where the group managing director is the chairman and the foundations are active participants. Steering committee Chairman Group Managing Director Jens Gordon Clausen 2. The project steering committee, where the hospital director is the chairman and where the centre management, the two foundations and the project director are active participants. Project steering committee Chairman Hospital Director Per Christiansen 3. Daily project management/project organisation, where the project director is responsible. The project organisation will participate in several networks and partnerships across newly built hospitals for women and children – both those in Denmark and those in the rest of the world. We are already partnering with 20 internationally recognised mother and child hospitals in the USA, Canada, Australia, Europe and Scandinavia. The project is organised in much the same way as quality foundation construction with three administrative decision-making levels: 76 - Project organisation Project Director Bent Ottesen Building Byggeri Redesign and transformation Børneriget – the Academy 1 3 - O R G A N I S AT I O N Following an EU tender, the engineering firm NIRAS was chosen in November 2014 as the chief client consultant with C.F. Møller acting as sub-consultant. The chief client consultant is tasked with assisting the client in preparing and implementing the overall project. The goal is to create ground-breaking new knowledge that can underpin evidence-based design in the new hospital complex. The project organisation’s competencies are rooted in three main tasks: • • • Construction. Redesign and transformation. The Academy. The three main tasks are seen as integrated, and the challenges and solutions in the three task areas will have mutual effects. For example, patient care where specialists come to the patient and not vice versa, places entirely new demands on work procedures and work planning (redesign and transformation), which in turn place new demands on building and interior design (construction), which must be supported by new technologies (the Academy). At the same time, our ambition is to generate new knowledge about organisation, management and operations through various research projects. - 77 1 3 - O R G A N I S AT I O N The goal. Similarly, our ambition is to establish research projects dealing with children, play and recovery that can generate new knowledge about children and disease and describe how we can safeguard children’s natural development despite chronic or acute illness. We will set a precedent for patient and family-based treatment at home and abroad. This will include individual, targeted information to patients and relatives, patient networks and knowledgesharing in connection with highly specialised treatments. The established user panel must be involved in selecting innovation areas, research areas etc. and participate in the construction, redesign and transformation processes. We will open our doors to the other hospitals currently being planned and built and share our work and new insights with one and all. 78 - Innovation & development •Research • Collaboration with industry, • educational institutions, international research environments Organisational development •Communication • User involvement • Training – both patients • and staff processes • Work of occupancy • Planning and relocation – physical building • Architecture and design •Competition Project design •Tender •Demolition •Construction •Initialisation •Occupation • BørneRiget – The Academy Redesign and transformation Construction 1 3 - O R G A N I S AT I O N The Academy – a partnership. The new hospital is committed to partnering with private and public companies on an unprecedented scale. The building will therefore have an entire floor dedicated to new ideas, innovation projects, education and research. partnership with Philips that enables us to influence this research and development, participate in scientific studies and test out new ideas. Our philosophy is to bring together passionate souls from many fields and areas of interest to create a hotbed for ongoing development. This will guarantee not only that we create the world’s best hospital during the project phase but that continued cooperation and openness help the clinical departments maintain an international standard of the highest order. The firm Tobii has developed a set of glasses that can register what the eye is focusing on. The technology is applied extensively in connection with marketing where it is used to assist shop design and layout, advertising designs and packaging illustrations – all with the aim of achieving optimum customer contact. Two examples: Health-related technologies. Intensive care of premature babies (Neonatal clinic). The Philips Group in Holland has established a research unit to develop health-related technologies. Future monitoring of premature babies is one of their projects. We have entered into a Eye tracking It may come as a surprise that we in the healthcare system have not adopted the same scientific approach to designing our hospital facilities and managing acute, life-threatening situations, etc. We have entered into a partnership with Tobii and are pilottesting the system. Initially, we have pilot-tested wayfinding at the hospital and the design and layout of medicine rooms. In both instances we have had encouraging results and will therefore continue working with the firm, applying the technology to life-threatening situations in emergency and delivery rooms, etc. Other collaborative partners include academic institutions such as CBS, DTU and the IT University as well as such companies as Radiometer, Epic, Blue Ocean Robotics, Storz, Experimentarium and the Blue Planet. The integration of research, development, patient care and education is not limited to the Academy located on the middle floor. It is also an integral part of the individual departments where specific areas are set aside to house these tasks – close to daily clinical activities. capacity and technology to provide scenario training in delivery wards, operating theatres, neonatal departments and paediatric and adolescent departments. It is important that staff training simulates reality as much as possible so we can optimise the competencies that enable us to take relevant action in rare but nonetheless life-threatening situations. The hospital will be designed with training and simulation in mind to ensure the integration of education, research and patient treatment. “Everything that can be trained, must be trained”. Technological development now enables us to utilise simulation-based training models. Currently, the new methods are being used to train obstetricians, midwives, neonatologists, paediatricians and nurses. A new hospital complex must therefore possess the necessary - 79