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Deciding to initiate gastrostomy feeding Dr Usha Krishnan Paediatric Gastroenterologist Sydney Children’s Hospital The decision to recommend the insertion of a gastrostomy should always be based on: Multidisciplinary team assessment Evidence based practice Clear communication regarding goals of treatment Ensure adequate resources are available for ongoing optimal support and management Indications for gastrostomy Need for prolonged enteral tube feeding (>4-6 weeks) Other causes of malnutrition/growth faltering (apart from inadequate intake) have been excluded by appropriate investigations Provision of gastric access for: Gastrointestinal decompression Hydration Administration of medication Selection of appropriate feeding route Potential benefits of a gastrostomy vs Naso-gastric/naso-jejunal tube Less tube displacement/re-insertion Reduced aspiration risk Better cosmetic appearance Safer, more reliable enteral access Optimises development of oral skills Larger diameter, shorter tube length: less blockage Cost effective longer term solution Less interference in daily activities, better quality of life Avoids nasal irritation/congestion/septal trauma Reduced anxiety at meal times, shorter feeding times Ethical Considerations Benefit to patient Will not cause harm Benefits outweigh risk of procedure itself Should never replace attempts to make oral feeding easier Challenging ethical decisions: terminal conditions stroke progressive dementia intellectual disability impaired neurological condition impacting on decision making ability persistent vegetative states Seek formal advice about ethical issues Living will/advanced care directives Informed consent should include information on insertion procedure and ongoing care Selecting appropriate gastrostomy device Patient factors Patient/carer preference Patient/carer abilities and support available Age of patient Anesthetic risk Risk of patient pulling device/tube out Patient mobility Need for concealment Access to services for tube/device replacement Insertion site (anatomical) Tube/device characteristics Size/diameter of device Low profile device or longer tube Balloon retention for ease of change or non ballooned/internal bumper device Availability of device and feeding adaptors Familiarity with device types Choosing an appropriate gastrostomy device Types of Gastrostomy tubes Types of Low Profile Gastrostomy buttons Insertion Methods Insertion Methods Referral Pathway Indication for gastrostomy Insertion date Pre assessment of co-morbidities, medications (anti coagulants) and prior surgery Pre procedure protocol (Anesthetic consult) Screening for MRSA as per local policy Informed consent Nutrition assessment Notification of appropriate staff to prepare for education and care of patient with new gastrostomy Education of carers/patients pre insertion on care of gastrostomy Ensuring equipment is in place ready to use Patient/Parent/Carer Education What is a gastrostomy device? Why it has been recommended and type of device recommended Whether oral intake is recommended in conjunction with tube feeding and whether any feed modification is recommended by the speech pathologist Oral desensitisation/stimulation as per speech pathologist in paediatric patients in whom oral intake is not recommended in the short term to avoid oral aversion Pre procedure review of bowel management, weight Procedure Medication management Education on: Basic device care Feeding regimens Equipment costs Plans for future feeding provisions: Supply of feeds Feeding equipment Case Study EP 3 months old Severe gastroesophageal reflux with vomiting On PPI and prokinetics Intolerance to to dairy and soy Failure to thrive Poor weight gain and episodes of vomiting/choking even on continuous naso-gastric feeds Dependent on continuous Naso-jejunal feeds of elemental formula Side effects of prolonged NJ feeds Oral aversion NJ tube displacement requiring repeated insertions under fluoroscopic control Case Study: EP Multidisciplinary team involvement Paediatrician Gastroenterologist: Gastroscopy and pH probe confirmed diagnosis of reflux and excluded conditions like eosinophilic esophagitis Dietician: Ensured adequate caloric intake and appropriate elemental feed also helped with mothers diet when mother was trying to breast feed EP and was on dairy and soy free diet Speech Pathologist: Assessed safety of swallow and performed Modified Barium Swallow to help exclude direct aspiration given history of choking with feeds. Also helped to minimise development of oral aversion when EP was on prolonged enteral feeds Social worker was of great help to family. EP was also diagnosed with neurodevelopmental delay Surgeon: performed fundoplication with gastrostomy Clinical nurse consultant: helped the mother decide on appropriate gastrostomy device and education on day-to-day care of gastrostomy and continuous pump feeds Weaning from tube feeds When a decision to insert a gastrostomy is made it should always be made clear from the outset whether the device is to be placed permanently or temporarily. If the device is temporary goals should be set by a multidisciplinary team (dietician, speech pathologist,paediatrician, gastroenterologist) to work towards its eventual removal once adequate oral intake resumes. This is especially important in paediatric patients In EP too the gastrostomy has now been removed at age 2 and she is now thriving on oral intake alone. Thank You