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ECT Service Patient Information Booklet What you need to know about Electroconvulsive Therapy (ECT) Your Psychiatrist has recommended that you receive treatment with Electroconvulsive Therapy (ECT). ECT is a treatment performed under the direct supervision of a Psychiatrist. An Anaesthetist and a team of nurses assist the Psychiatrist. During ECT a small electrical current is applied to the scalp, which induces a seizure. The effectiveness of ECT in severe mental illness is recognised by the Royal Australian and New Zealand College of Psychiatrists and similar organisations in the USA, Canada, Britain and many other countries. The nature of this treatment, including the risks and benefits that you may experience, will be fully explained to you by your Psychiatrist. This information booklet is designed to provide you with a description of ECT, to assist your understanding of the procedure and to answer some of the questions you may have. When you are depressed it is often difficult to concentrate, don’t be concerned if you cannot read through the whole booklet initially. Just pick out the sections that seem important to you at the time, and come back to it later. You may wish to use it to help you to ask questions of your Psychiatrist, nursing staff or relatives. The ECT staff will be available to take you and your family to the Day Surgery Unit to assist in providing reassurance and answer your questions. Unfortunately ECT is portrayed inaccurately and stigma continues to be an issue. However, it retains an important place in the treatment of moderate to severe depression. As with many aspects of medicine, with ongoing research and technological development modern ECT is now a more complex and refined treatment with specific training required. To ensure that our practitioners possess the knowledge and skills required to provide safe and effective treatment Caloundra Private Clinic provides ECT training before psychiatrists are granted clinical ECT privileges. Our commitment to quality patient care and service is demonstrated by our full accreditation with ISO 9001:2008 Standards for Safety & Quality in Healthcare. Why is ECT used? ECT is a treatment for serious psychiatric conditions. It is important for you to understand that there may be alternative treatments for your condition, which may include medications and psychotherapy. Although there is a range of treatments, individuals will recover and respond in different ways and at different rates. Some people do not recover completely and others may take a long time to respond and recover. In severe cases of depression, mania and schizophrenia, ECT may be the treatment of choice and it can be life saving. ECT can work quicker and more effectively than medications for some types of mental illness. ECT will not cure you. ECT will help your current episode of illness and may help maintain improvement. Whether ECT or an alternative treatment is most appropriate for you is based upon a thorough physical and psychiatric evaluation and depends on your prior experience with these treatments, the nature of your psychiatric condition, your response to medication and other considerations. Your Psychiatrist has/will explain to you why ECT has been recommended for your specific case. How does ECT work? The brain is an organ that functions through complex electrochemical processes, which may be impaired by certain types of mental illnesses. Scientists believe ECT acts by temporarily altering some of these processes, thereby returning function towards normal. ECT artificially stimulates a seizure; but ECT-induced seizures occur under much more controlled conditions than those that are “naturally occurring” and are safe. In the early 1990s research showed us that the actual dose of electrical current used was critical to the success of the treatment and that doses needed to be individualised according to the patient’s seizure threshold. After finding the threshold the dose is increased for subsequent treatments. At the same time, electroencephalogram (EEG – measures electrical activity of the brain) monitoring of the seizure is used as a reliable guide to the quality of the seizure and therefore to its effectiveness. Evidence indicates that for uncomplicated cases of severe depression, ECT will produce a substantial improvement in at least 80% of patients. Can ECT cause brain damage? There is no evidence that ECT causes any structural cerebral damage. There are medical conditions (such as epilepsy) that cause spontaneous seizures that, unless prolonged or otherwise complicated, do not harm the brain. Studies have found no changes in brain anatomy with ECT, as measured by very sensitive scans of the brain using magnetic resonance imaging (MRI) equipment. Other research has established that the electrical current that actually enters the brain (which is only a small fraction of that which is applied to the scalp) is much lower in intensity and shorter in duration than that which would be necessary to damage brain tissue. What about pregnancy? The decision whether or not to treat pregnant women with ECT takes into account the risks associated with alternative treatments, the risks to the mother and foetus of withholding ECT and any complications of the pregnancy that may increase the risks of ECT or the anaesthetic. ECT may be used with confidence during the second and third trimesters. Little information is available for its use in the first trimester, so until further data is available, caution is advised during this stage. It does not produce abnormal uterine contractions and it appears to be safe even in complicated pregnancies. Foetal monitoring during ECT has not revealed any untoward effects. How will ECT help me? The potential benefit of ECT for you is that it may lead to improvement in your psychiatric condition. ECT has been shown to be a highly effective treatment for a number of conditions. However, not all patients respond equally well. As with all forms of medical treatment, some patients recover quickly, others recover only to relapse again and require further treatment, while others may fail to respond at all. Consent Mental health legislation determines that ECT may be performed in an approved facility, on a voluntary patient capable of giving written consent. Your Psychiatrist will explain the treatment, answer questions and request a written consent. A voluntary patient who lacks the capacity to give informed consent cannot be given ECT. A voluntary patient also has the right to refuse or consent to ECT. Before consenting to ECT, you have the right to obtain a second opinion from another Psychiatrist of your choice or one recommended to you. You can also seek legal advice and you have the right to be represented by another person of your choice before consenting. This representative is permitted to be with you when the Psychiatrist explains the treatment. Written consent may be withdrawn at any time. You should understand the risks of prematurely stopping ECT and be informed of other treatments. When ECT is stopped prematurely there is a high risk of relapse and likelihood that the entire treatment will need to be repeated. You should read any local information about your rights and discuss further concerns with your Psychiatrist. Written consent for ECT is required. In Queensland, written consent is valid for up to 3 months for acute courses and up to 6 months for maintenance ECT. The average number of treatments to recovery is about nine but commonly ranges from 6 to 12. Day patients will also be asked to sign a consent form authorising the collection, use and storage of information for your health care, in accordance with Ramsay Health Care’s Privacy Policy, and providing informed financial consent for the treatment on the day of your treatment. In-patients complete this paperwork on admission. What will actually happen to me when I have ECT? Depending on your prior experience with these treatments and the nature of your psychiatric condition, ECT can be performed as either an in-patient or day patient procedure. Generally, patients with no prior history of ECT commence treatment as an in-patient. Day patients please follow the ECT checklist detailed at the end of this brochure. ECT involves a number of treatments. The treatments are usually given in the morning, before breakfast. Because the treatments involve a general anaesthetic, you should not eat or drink from midnight before the treatment (fasting up to 6 hours before each treatment). You may be advised to take antihypertensive, reflux medication and/or respiratory medications 2 hours prior to your ECT treatment time. Guidelines of the Australian & New Zealand College of Anaesthetists recommend that smoking be ceased for 24 hours prior to having a general anaesthetic to minimise the risk of excessive bronchial secretions. As the anaesthetic required for ECT is short acting the Clinic strongly recommends that patients refrain from smoking at least 8 hours prior to having ECT. If you are not able to comply with this recommendation, the anaesthetist may decide to cancel your ECT on the day. Routine preparation for ECT also includes: • Washing your hair the night before your treatment • Wearing loose clothing during your treatment • Removing jewellery and nail polish •If you wear contact lenses or dentures, these need to be removed before your treatment, which can be carried out immediately prior to ECT in the ECT Procedure Room for your comfort. Before each treatment your pulse, oxygen saturation level, blood pressure and temperature will be checked and you should empty your bladder before going to the ECT Procedure Room. To receive each treatment the Registered Nurse will take you to a specially equipped ECT Procedure Room within the Day Surgery Unit. You will be introduced to the Psychiatrist and the Anaesthetist. Nursing staff will ensure you are comfortable and warm on the treatment bed. To prepare for the treatment a monitoring sensor probe will be placed on your finger, which will record your heart rate and blood oxygen saturation levels. Two monitoring electrodes are placed on your forehead and one on your chest, and one behind each ear. These help monitor and record the seizure using an electroencephalogram (measuring brainwaves). This is done to monitor your response to the treatment. These recordings involve no pain or discomfort. The Anaesthetist places an intravenous cannula in your arm or hand so that the anaesthetic can be administered. You will be given an injection of two medications, an anaesthetic that will put you to sleep for a few minutes and a muscle relaxant. The relaxant prevents excessive muscle contractions or movement during the procedure. The Anaesthetist will give you extra oxygen to breathe by mask just before the anaesthetic works. Stimulus electrodes with conductive gel will then be placed on your head held on by a rubber strap. While you are asleep, a small carefully controlled amount of electrical current will be passed between the stimulus electrodes that have been placed on your head. Depending on where the stimulus electrodes are placed you may receive either unilateral, bitemporal, bifrontal ECT or ultra-brief, unilateral or bifrontal ECT: •Unilateral ECT – both stimulus electrodes are placed on the same side of the temple area and crown of the head, usually on the right side or the non-dominant hemisphere. •Bitemporal ECT – one electrode is placed on the left side of the temple, the other on the right side. • Bifrontal ECT – two electrodes are placed on the forehead. •Ultra brief pulse stimulation is a new advance in electroconvulsive therapy and results in more focal stimulation. An ultra brief pulse given in the right unilateral position retains the high efficacy of standard electroconvulsive therapy for depression. When the electrical current is passed a generalised seizure is produced in the brain. Because you have been given a medication to relax your muscles, the muscle contraction is usually mild. The seizure lasts for approximately 10-60 seconds. Within a few minutes the anaesthetic medication will wear off and you will wake up within a few minutes after treatment, having experienced no pain or discomfort during the procedure and not remember anything about what happened after the anaesthetic. When you recover from the anaesthetic and are breathing spontaneously, you will be taken into the recovery bays. The nurse in the recovery bays will take your general observations and monitor your recovery. After about 20 minutes you will be transferred by wheelchair back to your own room, where the nursing staff will complete the final stage of ECT post recovery observations. In-patients are advised to rest in bed for an hour or two after treatment. Day patients will continue to be monitored in the recovery chairs by the recovery nurse to complete the four hours observations post treatment/ anaesthetic. You will also be given a breakfast tray and refreshments. Day patients will need to be picked up by a responsible carer when ready for discharge. Though the treatment itself only lasts a few minutes, the process of preparation for ECT through to recovery typically lasts 15 to 45 minutes. How many treatments will I need? The number of ECT treatments that you will need cannot be predicted ahead of time. The number of treatments will depend on your psychiatric condition, how quickly you respond to the treatment, and the clinical judgment of your Psychiatrist. Typically, an acute course of ECT can be 6 to 12 treatments. The average number of treatments to recovery is about nine. The number of ECT treatments depends on the progress of your recovery. While most patients start to improve after three to four treatments, some do not show a response until 10 to 12 treatments and occasionally some may need 20 to 25 treatments. Treatments are usually given two to three times a week, but this may vary depending on your response and your Psychiatrist’s recommendations. Some patients may require maintenance ECT to manage and stabilise their illness, preventing relapse. Maintenance ECT may be weekly, fortnightly or monthly depending on your condition and your Psychiatrist. Maintenance ECT may need to be continued for a period of time. Maintenance ECT can be performed as a day patient depending on your condition and recommendations from your Psychiatrist. What risks are involved? Like other medical procedures, ECT involves some risks. Your Psychiatrist will discuss these risks with you. When you wake up after each treatment, you may experience some disorientation or confusion; this usually goes away within an hour. Shortly after the treatment, you may have a headache, muscle soreness, nausea or vomiting. These side effects usually respond to simple treatment. It is important to relay these symptoms to your Psychiatrist and/or nursing staff. With modern ECT techniques serious medical complications are rare. As with any general anaesthetic procedure, there are risks involved. Patients can discuss this with the Anaesthetist prior to the treatment. As some medical conditions increase the risk associated with ECT, patients are carefully screened. The Anaesthetist will discuss your physical health with you prior to treatment. MALIGNANT HYPERTHERMIA occurs very rarely and is genetically inherited (runs in a family). It can result in a very high temperature and muscle rigidity developing during an anaesthetic that can be serious if not recognised and treated. If you have had a reaction under a general anaesthetic which had some or all of the features of malignant hyperthermia or if you have a family member who has been found to be susceptible to malignant hyperthermia your Anaesthetist may refer you for further tests before proceeding with ECT. While also rare, the most common medical complications with ECT are irregularities in heart rate and rhythm. Very rarely, myocardial infarction (heart attack), stroke, respiratory failure or kidney failure can occur. You may have a severe allergic reaction to the medications given during the anaesthetic. How can these risks be reduced? To reduce the risk of medical complications, you will require a medical evaluation prior to starting ECT. •Inform your Psychiatrist and Anaesthetist if you have had problems with anaesthetics, have diabetes or heart problems. •ECT does not normally affect cardiac pacemakers but some may need adjustment before treatment. You must tell your Psychiatrist if you have a pacemaker. •Your current medications will be reviewed. Most treatments for medical conditions should be continued. •If you have high blood pressure you should have your blood pressure stabilised prior to ECT. Medications for high blood pressure may be taken with sips of water 2 hours before morning ECT, as per your Psychiatrist’s / Anaesthetist’s recommendations. •Other medications and those that might interfere with ECT may be reduced and stopped. Antidepressants, benzodiazepines and anticonvulsant (when used as mood stabilisers) are usually reduced and stopped. Sometimes this has to occur during the early phase of ECT as abruptly reducing some medications can lead to serious withdrawal adverse effects. •You may need to have blood tests, an electrocardiogram (ECG) and chest X-ray, and computed axial tomography (CT) or other scans of your brain. •Some patients will need to have an electrocardiograph (ECG) performed. All patients over 60 years of age will require an ECG. •This physical examination will be required to be renewed every six months whilst undergoing ECT. •Day patients need to arrange for your GP to fax the results of the examination to the clinic (Fax. 5491 9107) 12 hours before your first treatment. However, in spite of these precautions there is a small chance that you may experience a medical complication. Should this occur, emergency medical care and treatment will be instituted immediately. What happens if a complication occurs? In the event of a medical complication, neither the Caloundra Private Clinic nor the treating physicians are required to provide long-term medical treatment. The patient would be responsible for the cost of such treatment whether personally or through medical insurance or other medical coverage. No compensation will be paid for lost wages or other consequential damages. Patients will be transferred to the appropriate medical facility for care. Are there any side effects? A common side effect of ECT is poor attention, concentration and short term memory functioning. The degree of disruption to memory is likely to be related to the number of treatments given and their type. However memory difficulties may also occur as part of your psychiatric and/or other condition/s or your treatment for these conditions. A smaller number of treatments are likely to produce less memory impairment than a larger number of treatments. Brief right unilateral ECT (stimulus electrodes on the right side of the head) is likely to produce milder and shorter-lived memory impairment than that following bilateral ECT (where one stimulus electrode is placed on each side of the head). The memory difficulties with ECT have a characteristic pattern. Shortly following a treatment, the problems with memory are most pronounced. As time from the treatment increases, memory functioning improves. Shortly after the course of ECT, you may experience difficulties remembering events that happened immediately before and during your ECT course. The loss in memory of past events may extend back several months before you received ECT, and in rare instances, for years. Some people who have undergone ECT recommend writing down passwords, pins, phone numbers and special dates and keeping them in a safe place in case they cannot be recalled after the treatment. Many of these memories will return during the first several months following the ECT course. However, you may be left with some permanent gaps in memory, particularly for events that occurred close in time to the ECT course. In addition, for a short period following ECT, you may experience difficulty in learning and remembering new information. This difficulty in forming new memories should be temporary and will most likely subside within several weeks following the ECT course. After effects of the treatment You may or may not experience some of the following, if you do or have any questions related to your treatment please discuss these with the Nursing staff: •Headache, nausea, general body aches are common experiences after this treatment. These are due to the treatment and the medications used by the Anaesthetist. They are only temporary, they can be minimised by rest and restricted activity during this period and relieved by a simple analgesic such as paracetamol. Take only as directed. •Sore muscles are not uncommon after the first treatment. Please let your Anaesthetist know. •Pain, soreness or bruising on the back of the hand or at the site of your injection may be noticed for some days after the anaesthetic. This is due to a reaction in the vein to the presence of the needles and the medications that were injected. •Individuals vary considerably in the extent to which they experience confusion and memory problems during and shortly following treatment with ECT. However, in part because psychiatric conditions themselves produce impairments in learning and memory, many patients actually report that their learning and memory functioning is improved after ECT compared to their functioning prior to the treatment course. A small minority of patients, perhaps 1 in 200, report severe problems in memory that remain for months or even years. The reasons for these rare reports of long-lasting impairment are not fully understood. Day Patient ECT Checklist Communicate with your Psychiatrist regarding your booked outpatient ECT treatment. The Clinic will telephone you by 11am on the day before your treatment advising you of your required arrival time. If you have not been a patient at Caloundra Private Clinic, you will need to bring photographic identification with you (such as a Drivers Licence) on your first treatment. A photograph will be taken to be used on your ECT treatment sheets. If you develop any illness, even a cold, you may not be able to have your treatment on the day as planned. Please ring your Psychiatrist if you are at all unsure about this and in the event that you are unable to attend treatment please phone the Clinic as soon as possible (Ph. 5492 0270). If you are unable to attend a scheduled morning ECT treatment for any reason, or if your Psychiatrist says your previously booked treatment is to be cancelled, you must advise Caloundra Private Clinic as soon as possible (Ph. 5492 0270). On the evening prior to treatment it is important that you do not have anything to eat or drink after 12 midnight. We most strongly recommend that patients do not smoke for at least eight hours prior to having ECT. If you are not able to comply with this recommendation the Anaesthetist may decide to cancel your ECT on the day. It is advisable to wash your hair the day before your treatment (not on the morning), as your hair should be clean and dry. Do not apply anything else to your hair after you have washed it. Any blood pressure medication, and /or reflux medications should be taken in the morning (2 hours prior to treatment) with a sip of water before you leave home. Respiratory medications may also be taken. Do not take any other medicines, prescription medications, over the counter medications, or any other agents from midnight the night before treatment. The one exception is if the Psychiatrist who assessed you for ECT specifically prescribed such medication. In the morning you may clean your teeth and/or rinse your mouth, but avoid swallowing water. Do not bring any valuables with you. Dress in loose clothing. Before your treatment you will need to remove all jewellery, nail polish and hairclips. If you need to keep any rings on they can be taped. Arrive at the Clinic no later than your requested arrival time. You must do this for each treatment. Report to the Mental Health Unit where the staff will greet you and complete your pre-treatment observations and documentation. If you wear contact lenses or dentures, these will need to be removed before you have your treatment. This can be done in the ECT Procedure Room. Ensure you empty your bladder before treatment and that you do not need a bowel motion. You are required to stay in the Clinic 4 hours after your treatment. When staff are satisfied that you have fully recovered from the anaesthetic you will be allowed to go home. You are not to drive for 24 hours following ECT treatment and will need to arrange for a friend or relative to pick you up from the Clinic. For the first 24 hours after your treatment you are advised NOT to: • Drive a car • Drive or operate machinery • Consume alcohol • Travel unaccompanied on public transport • Make important financial or life decisions If you require medication after your ECT treatment, bring your medication with you in its original packaging and hand it to the nursing staff for safekeeping. Your Psychiatrist must complete a medication order for you to take this medicine. The ECT Nursing Staff will give you the required paperwork to complete before you leave the Clinic. You may also be requested to report to the front office to complete other paperwork as required. If you have any concerns with regards to your treatment when you go home please call the Clinic and speak to nursing staff (Ph. 5492 0270). Summary • ECT is given for many reasons. •If you are not sure why you are being given ECT, don’t be afraid to ask. It’s sometimes difficult to remember things when you are depressed so you may need to ask several times. •ECT is most commonly used to treat severe mood disorder – either depression or mania. It can also be used to treat psychosis. •It may be helpful if you did not get better with anti-depressant medications. •It may help if you can’t take anti-depressant drugs because of the side effects. • It may help if you have responded well to ECT in the past. •It may help if you feel so overwhelmed by your depression that it’s difficult to function at all. •An ECT treatment involves having a short general anaesthetic. •Over eight out of ten depressed patients who receive ECT respond well, making ECT the most effective treatment for severe depression. • ECT is usually given two or three times a week. • ECT may also be given as maintenance treatment. •The effects of ECT will relieve the symptoms of your depression but will not help all your problems. •Your memory of recent events may be upset and dates, names of friends, public events, addresses and telephone numbers may be temporarily forgotten. •You can refuse to have ECT and you may withdraw your consent at any time, even before the first treatment has been given. Withdrawal of your consent to ECT will not in any way alter your right to continued treatment with the best alternative methods available. •You have the right to seek a second opinion about having this treatment. •You have the right to have your family/significant others informed and educated about your treatment. It is important that you do not make any important personal or business decisions during the ECT course or immediately following the course because of the possible problems with confusion and memory. This may mean postponing decisions regarding financial or family matters. After the treatment course, you will begin a ‘convalescence period’, usually for 1 to 3 weeks, but which varies from patient to patient. During this period you should refrain from driving, transacting business, or other activities for which impairment of memory may be problematic until so advised by your Psychiatrist. It is recommended that in the (24) twenty-four hours after treatment: • You do NOT drink alcoholic beverages • You do NOT drive a vehicle or operate machinery •You do NOT sign any legal documents or take full charge of another individual • You do NOT exercise excessively The Caloundra Private Clinic ECT Information Booklet is an attempt to be as comprehensive as possible but it cannot cover every eventuality or query as the circumstances of individuals and patients psychiatric treatment differ enormously. This material is not a substitute for advice from your Psychiatrist. More information Beyond Blue – ECT Fact Sheet 48. www.beyondblue.org.au Blackdog Institute Electroconvulsive Therapy Fact Sheet www.blackdoginstitute.org.au May 2014 Caloundra Private Clinic 96 Beerburrum Street Caloundra QLD 4551 ph: 07 5491 1522 – fax: 07 5491 9107 www.caloundraprivateclinic.com.au