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Providing Hospice
Care in a SNF/NF or
ICF/MR facility
Education program
Insert name of your
hospice program
Insert your
logo
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Objectives
• Review the philosophy of hospice care
and discuss what hospice care provides.
• Talk about comfort care as a hospice
care goal.
• Discuss principles of death and dying
and individual response to death.
• Review hospice patient rights at end of
life.
• Discuss the hospice – facility
partnership.
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
New hospice regulations
• On June 5, 2008, the Centers for Medicare and
Medicaid Services (CMS) published new
regulations for hospice care.
• The new regulatory language includes guidance
for hospice care for a patient who resides in a
facility. (418.112: Condition of participation :
Hospices that provide hospice care to residents
of a facility).
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
What is hospice care?
• Hospice care focuses on improving the quality of
life for persons and their families faced with a lifelimiting illness.
• The primary goals of hospice care are to provide
comfort, relieve physical, emotional, and spiritual
suffering, and promote the dignity of terminally ill
persons.
• Hospice care neither prolongs nor hastens the
dying process.
• Care is palliative (not curative) to control
pain and symptoms associated with the
terminal illness.
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
What is hospice care?
• Hospice treats the whole person, not just the disease.
• It focuses on the needs of both the patient and the family.
• Care is provided by an interdisciplinary team including the
physician, nurse, social worker, chaplain, nursing assistant,
and volunteers.
– Therapy and dietician services are provided per the patient’s
needs.
• Hospice addresses patient and family needs such as:
–
–
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pain and symptom management
Emotional, psychosocial, and spiritual support
Help with funeral planning and arrangements
bereavement for family/ caregivers after the patient’s
death
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Where is hospice care provided?
• Hospice care is a philosophy or approach to
care rather than a place.
• Care may be provided in a person’s home,
nursing home, hospital, or independent facility
devoted to end-of-life care.
• Hospice was originally designed to be a noninstitutional benefit. However, it is possible to
receive Medicare covered hospice care while
residing in a nursing home.
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
BASIC PRINCIPLES OF HOSPICE CARE
•
•
•
•
•
Affirms life
Regards dying as normal process
Neither hastens nor postpones death
Relives pain and other symptoms
Integrates medical, psychological, and spiritual
aspects of care
• Offers a support system to patients and
families
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Attitudes towards death and dying
• Each person has his or her own view of death
and attitude towards it
• Society as the main influencer has a huge
impact on people’s perception of death
• The attitudes of the society towards death have
been changing over the time
• Fear has always been one of the most common
attitudes towards death
• Attitudes towards death change over the lifetime
of the person
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Attitudes towards death and dying
• American society tends to deny the reality of
death.
– Previous experiences with death
– Circumstances of death
– Some medical professionals view death as a
failure
• Cultural factors can significantly influence
patients’ reactions to their illness and the dying
process.
• There are many different religions and belief
systems across the world. Each holds an
individual view of death and mourning.
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Patient rights under hospice
• Patient rights is a regulation for hospice providers under
the 2008 Medicare Hospice Conditions of Participation.
• Hospice providers must review the notice of patient rights
with patients/ family/ representatives at the time of
hospice admission and obtain a signature that they
received their notice of these rights.
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
When is Hospice Care Appropriate?
• A referral to hospice is appropriate when the
patient and family have opted for palliative
treatment for life-limiting or “terminal” illness.
• Medicare guidelines further require that the
physician has determined that life expectancy is
six months or less if the disease follows its
normal course.
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Hospice care diagnoses
• Hospice care is not just for patients dying of
cancer
• Other hospice diagnoses include:
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–
–
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End stage heart disease
End stage pulmonary disease
End stage renal disease
End stage liver disease
Dementia due to Alzheimer’s Disease and Related
Disorders
– HIV disease
– Stroke & Coma
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Payment for hospice care
• There is a Medicare hospice benefit for Medicare
part A beneficiaries
• All but one state (Oklahoma) have a Medicaid
hospice benefit
• Many commercial insurances also cover hospice
care as well
• Most hospices are committed to caring for all
patients, regardless of an individual’s ability
to pay
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
End of life symptoms
• Most patients and families who are living with a
life-threatening illness can expect to experience
multiple physical symptoms
• Some of these symptoms are related to the
primary illness, others are related to adverse
effects of medications or therapy or related
conditions.
• Hospice care manages a patient’s symptoms to
promote comfort and quality of life.
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Common end of life symptoms
• Pain
– Physical
– Emotional
– Spiritual
•
•
•
•
•
•
Shortness of breath
Nausea / vomiting
Anorexia / Cachexia
Weakness/ fatigue
Constipation
Delirium
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Hospice service period
• The patient’s primary physician and hospice
team evaluate the patient’s eligibility for hospice
care on a regular basis.
• The first and second certification periods are 90
days; subsequent periods are 60 days.
• If a patient no longer meets criteria for hospice
care, they may be discharged and readmitted at
a later date.
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Hospice core services
• Hospice core services must be routinely
provided by the hospice, and cannot be
delegated to the facility.
• Hospice core services include:
–
–
–
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Physician services
Nursing services
Social work services
Counseling services
• Bereavement and spiritual
• Dietary
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Who Are the Members of the Hospice Team?
• The hospice team is an interdisciplinary
team (IDT) and together, they coordinate
the patient’s plan of care.
• Members of the hospice team include:
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The patient and family/ caregiver
The patient’s primary physician
Hospice physician
Nurse
Social worker
Chaplain
Hospice aide
Volunteers
Bereavement counselor
Additional team members may include dietician,
occupational or physical therapist, pharmacist
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Bereavement after patient death
• Every hospice program offers bereavement
services to family and loved ones for a minimum
of 12 months following the death of a patient.
• Services can be:
– Phone contact
– Short-term counseling
– Assessment of need and referrals to community
resources
– Support groups
– Educational forums
– Written information on the grief process
– Memorial services
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Bereavement Services are available to:
• Resident’s roommate
• Family members
• Staff caregiver who experiences
grief from the loss of the patient
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
The hospice–facility partnership
• The nursing facility staff become part of the
interdisciplinary team when a facility resident elects
hospice care.
• Important for each provider to recognize each other’s
knowledge and remain open to two-way learning.
─ Nursing facility staff are skilled in meeting the clinical and
psychosocial, and spiritual needs of their residents.
─ Hospice staff are skilled at meeting the special clinical,
psychosocial, and spiritual needs at end of life.
• Combined expertise allows the nursing facility and hospice
to deliver the most comprehensive care patient/ family
possible.
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
The hospice–facility partnership
• Successful partnerships between a hospice
provider and a nursing facility include:
– Acknowledgement and respect for each other’s
regulations
– Developing an excellent communication process
– Consistent coordination of care by the hospice and the
nursing facility
– Identification of care plan in both the nursing facility
and the hospice medical record
• Consistent communication, coordination,
and documentation are keys for success!
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Partnership for patients
• The provision of high
quality coordinated
care end of life care is
a win-win scenario for:
– A patient and their
family
– A nursing facility and
their staff
– A hospice and their
staff
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
Patient &
family
Facility
& staff
Hospice
& staff
“Hope, Dignity, Love…It must be hospice”
National Hospice and Palliative Care Organization, 2009 All Rights Reserved
References
•
•
•
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The National Hospice and Palliative Care Organization.
– www.nhpco.org
EndLink - Resource for End of Life Care Education (Northwestern
University)
– http://endoflife.northwestern.edu/index.cfm
Centers for Medicare and Medicaid Services -42 CFR Part 418,
Medicare and Medicaid Programs: Hospice Conditions of Participation;
Final Rule ( Pgs. 32216-32217)
– http://edocket.access.gpo.gov/2008/pdf/08-1305.pdf
Attitudes Towards Death and Dying, Jeff Stats, APR, 2007.
– http://www.articlesbase.com/college-and-university-articles/attitudestowards-death-and-dying-139943.html
National Hospice and Palliative Care Organization, 2009 All Rights Reserved