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Dr Nesif Al-Hemiary MBChB – FICMS(Psych.) ARCPsych.(UK) • • The term illness behavior describes patients' reactions to the experience of being sick. Aspects of illness behavior have sometimes been termed the sick role, the role that society ascribes to people when they are ill. • • • • The concept of illness behavior was largely defined and adopted during the second half of the twentieth century. Broadly speaking, it is any behavior undertaken by an individual who feels ill to relieve that experience or to better define the meaning of the illness experience. There are many different types of illness behavior that have been studied. Some individuals who experience physical or mental symptoms turn to the medical care system for help; others may turn to self-help strategies; while others may decide to dismiss the symptoms Why hasn’t he consulted sooner? What made him consult now? Headache? Backache? Abdominal pain? Sore throat? Pain in chest? Familiarity Duration, frequency & intensity Perceived severity ◦ fear may delay consulting (eg Smith 2005) ◦ if symptoms perceived as mild patients may be concerned about wasting the doctor’s time…. “I was lucky, I didn’t have to go to my GP because I collapsed in church” Visibility Source of embarrassment ◦ Related to examination of private parts of the body eg rectum (Smith 2005) ◦ 34% men & 58% women reported a sexual problem but only 10% of men and 21% of women sought help Mercer et al, (2003) BMJ, 327, 426-427 Gender ◦ men more reluctant to consult (sign of weakness?) Patient beliefs and mood ◦ ◦ ◦ ◦ depression can be barrier to consultation stress can increase reporting of symptoms internal control knowledge eg help seeking for URTI Cues ◦ eg information, media etc Convenience of clinic/hospital ◦ Distance from home, waiting hours etc Past experience of consultation Gender of doctor ◦ doctor’s skills, empathy ◦ Men anxious about intimate examinations by male doctors Social and cultural context ◦ Family norms about consultation Legimisation of sick role ◦ Sick role carries rights eg exception from social responsibility (not everyone able or willing to give up occupational or family duties) ◦ Sick role also carries responsibilities eg expected to seek medical help and must want to get well. The sick role is a concept arising from the work of the important American sociologist Talcott Parsons (1902–1979) Thus Parsons was concerned with understanding how the sick person related to the whole social system, and what the person's function is in that system. Ultimately, the sick role and sick-role behavior could be seen as the logical extension of illness behavior to complete integration into the medical care system. Parsons' argument is that sick-role behavior accepts the symptomatology and diagnosis of the established medical care system, and thus allows the individual to take on behaviors compliant with the expectations of the medical system. • • Basically, Parsons defined the "sick role" as having four chief characteristics: First, the sick person is freed or exempt from carrying out normal social roles. The more severe the illness, the more one is freed from normal social roles. Everyone in society experiences this; for example, a minor chest cold "allows" one to be excused from small obligations such as attending a social gathering. By contrast, a major heart attack "allows" considerable time away from work and social obligations. • • • • Second, people in the sick role are not directly responsible for their plight. Third, the sick person needs to try to get well. The sick role is regarded as a temporary stage of deviance that should not be prolonged if at all possible. Finally, in the sick role the sick person or patient must seek competent help and cooperate with medical care to get well. This conceptual schema implies many reciprocal relations between the sick person (the patient), and the healer (the physician). Thus the function of the physician is one of social control. • • • The sick role can include being excused from responsibilities and the expectation of wanting to obtain help to get well. Illness behavior and the sick role are affected by people's previous experiences with illness and by their cultural beliefs about disease. The influence of culture on reporting and manifestation of symptoms must be evaluated. • • For some disorders, this varies little among cultures, whereas for others, the cultural mores may strongly shape the way the patient presents the condition. The relation of illness to family processes, class status, and ethnic identity is also important. • • The attitudes of peoples and cultures about dependency and helplessness greatly influence whether and how a person asks for help, as do such psychological factors as personality type and the personal meaning the person attributes to being ill. Some people experience illness as overwhelming loss; others see in the same illness a challenge they must overcome or a punishment they deserve. • • • • Prior illness episodes, especially illnesses of standard severity (childbirth, renal stones, surgery) Cultural degree of stoicism Cultural beliefs concerning the specific problem Personal meaning of or beliefs about the specific problem • 1. 2. 3. 4. Particular questions to ask to elicit the patient's explanatory model: What do you call your problem? What name does it have? What do you think caused your problem? Why do you think it started when it did? What does your sickness do to you? 5. What do you fear most about your sickness? 6. What are the chief problems that your sickness has caused you? 7. What are the most important results you hope to receive from treatment? 8. What have you done so far to treat your illness? clinical Intrapsychic • • • • Lowered self image ’ loss ’ grief Threat to homeostasis ’ fear ‘ Failure of (self) care ’ helplessness, hopelessness Sense of loss of control ’ shame (guilt)’ • • • • Anxiety or depression. Denial and anxiety. Depression , bargaining and blaming. Regression Isolation Dependency Anger Acceptance • • • People unconsciously use defense mechanisms to protect themselves from realities that cause conflict and anxiety. The patient’s use of defense mechanisms can act as a barrier to the physician in obtaining information and in gaining patient’s compliance. Two of the most common defense mechanisms used by people when they are ill are denial and regression. • • • In denial a patient unconsciously refuses to admit to being ill or to acknowledge the severity of the illness. This can be helpful initially because it can protect the individual from the physical and emotional consequences of intense fear. However ,denial can be destructive in the long term if it hinders the patient from seeking treatment. • • • The patient reverts to a more child-like pattern of behavior that may involve a desire for more attention and time from the physician. This can make it more difficult for the physician to interact with and treat the patient effectively. It can make the patient more dependent and less able to take decisions regarding his/her illness.