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Lowell Smith Sr. Director, Business & Communication Research Administration Moffitt Cancer Center Jeanine Stiles Chief Administrative Officer Associate Director for Administration UC Davis Comprehensive Cancer Center Deidre B. Pereira, PhD Associate Professor Department of Clinical and Health Psychology College of Public Health and Health Professions University of Florida Open Discussion Distress Screening - identify psychosocial symptoms (e.g., depression, anxiety) to determine needs and offer appropriate levels of psychosocial care Survivorship - management of potential long-term and/or late effects of cancer and its treatment Quality of life - an assessment of a patient’s well-being or lack thereof including all emotional, social, and physical aspects of the individual's life Growing national interest and emphasis in area(s) Clinical & research areas include: Patient and family centered care Cancer care delivery research Health Care Reform Search for cost savings Precision medicine Emphasis on better outcomes Funding opportunities Patient-Centered Outcomes Research Institute (PCORI) ~$650M a year in funding Not limited to oncology Competitive How is research area organized at your Center? How integrated are your clinical and research areas? Recruitment - how challenging? Training how formal is training and education in this research area? R25/T32s? How has the Affordable Care Act impacted the research? Funding A research program by itself? Is it an aim? Subset of an aim/focus? Has the advent of PCORI funding impacted priorities for these program(s)? Are there other funding sources besides PCORI? Has anyone included distress screening or survivorship as research in the community? Others thoughts? Relationship between Clinical and Research Efforts Role of External Advisory Committee and other advisory groups Structure American College of Surgeons accredited Clinical – 2 separate departments Research – Integrated into one program (& department) Administration – Patient & Family Services Department Longstanding research in the area Growing emphasis on Cancer Care Delivery Clinical and Academic Department Includes Behavioral medicine Palliative care Integrative Medicine 10 physicians including Chair About half involved in research Currently no CCSG Members Clinical and Academic Department Includes Senior Adult Oncology (clinical program) Moffitt's Direct Referral Center (DRC) provides urgent care 10 physicians including Chair Less than half involved in research Currently 1 CCSG Member Academic Department Research Program 21 CCSG Members including Program Leader $5.8M current annual direct funding Rated “Exceptional” last CCSG review (2011) Involves research across the disease spectrum – from initiation, to detection, to treatment, and final outcomes Aims To understand the determinants of behaviors that can lead to prevention and early detection of cancer and develop effective methods of promoting those behaviors; 2. To understand and improve the quality of life (QOL) of patients and family members throughout the disease course; 3. To synthesize existing evidence and examine delivery of health services in order to improve the quality of cancer care; and 4. To understand and intervene upon the social, cultural, and behavioral determinants of cancer-related health disparities. 1. PCORI ACS “Navigator Guided e-Psychoeducational Intervention for Prostate Cancer Patients and their Caregivers” (Rivers) “Self-Administered Stress Management for Latinas Receiving Chemotherapy” (RSG, Jacobsen) “Behavioral and EmotioNal Impact of BRCA Testing in African Americans (BENITA)” (RSG, Vadaparampil) NCI “HRQoL Values for Cancer Survivors: Enhancing PROMIS Measures for CER” (R01, Craig) “Behavioral Oncology Education & Career Development” (R25, Jacobsen) “Internet-Assisted Cognitive Behavior Intervention for Targeted Therapy Fatigue” (R21, Jacobsen) “Sickness Behaviors During Chemotherapy for Gynecologic Cancer” (R01, Jim) Clinical setting vital for research Collaboration important, but Future plans rely on expanding this area Stick to stringent membership guidelines Strong aim(s) can exist without physician-scientists on CCSG Lots of competition for expertise Unlikely to develop into its own program New funding opportunities PCORI, like NCI, is very competitive How is research area organized at your Center? How integrated are your clinical and research areas? Recruitment - how challenging? Training how formal is training and education in this research area? R25/T32s? How has the Affordable Care Act impacted the research? Funding A research program by itself? Is it an aim? Subset of an aim/focus? Has the advent of PCORI funding impacted priorities for these program(s)? Are there other funding sources besides PCORI? Has anyone included distress screening or survivorship as research in the community? Others thoughts? Relationship between Clinical and Research Efforts Role of External Advisory Committee and other advisory groups
