Download Thoracic NSSG Minutes Approved by Chair 13.01.16

Thoracic Network Site Specific Group Minutes
Thursday 10th December 2015
Strawberry Fields Conference Room, Lifton Farm, Lifton, PL16 0DE
This meeting was sponsored by Boehringer Ingelheim Limited.
Attendees:
Amy Roy, PHT (AR) (CHAIR)
Cyrus Daneshvar, PHT (CD)
Stephen Iles, RCT (SI)
Carolyn Devine, ND (CDe)
Liz Boylan, PCN (LB)
Tim Howell, PHT (TH)
Sarah Earl, PHT (SE)
Georgina Hands, ND (GH)
Julie Cunningham, PCRN (JC)
Mel Chandler, PCN (MC)
ACTION
1.
Welcome and Apologies
AR (Chair) welcomed members and noted apologies. (see Appendix A for full list of
attendees and apologies).
2.
3.
3.1
3.2
3.3
4.
4.1
5.
5.1
6.
6.1
Ratification of Minutes of previous Meeting held on 6th May 2015
The minutes of the last meeting were reviewed and accepted by the
meeting.
Matters Arising (Action Grid attached)
Chair – AR chaired this meeting as a one off and unwilling to take on the
role for three years until the Job Description has been reviewed and
recognition of time required is reflected in the Chair’s Job Plan. In the
absence of an elected Chair the Terms of Reference, Constitution and
Clinical Guidelines will be amended and approved at this meeting.
Action: LB to send Job Description for NSSG Chair to the members.
Funding for the NSSG – a bid for future funding to provide managerial and
administrative support for the NSSGFs is still awaiting approval by the
Peninsula trusts. SWAG, which covers the Somerset, Wiltshire, Avon and
Gloucestershire Site Specific Groups has had 5-year funding approved.
MDT Core Members
Action: Trusts to send names to LB/MC so that membership lists and
Constitution can be updated.
Action: Palliative Care Consultants and Specialist Nurses added as
extended members.
Terms of Reference
The Terms of Reference were approved by the group.
Action: MC to post on website
Clinical Guidelines
The SWAG clinical guidelines had been circulated with the agenda. These
were not considered acceptable to the group and it was agreed that the
NICE Lung Cancer Guidelines should be adopted. https://www.britthoracic.org.uk/guidelines-and-quality-standards/
Constitution
The Constitution was reviewed by those present and the following
amendments agreed.
Thoracic NSSG Minutes 10.12.15 draft v0.1
LB
ALL
LB/MC
MC
6.2
6.3
6.4
7.
7.1
8.
8.1
8.2
8.3
Patient Representation – It was agreed there would be engagement with
local patient support groups, e.g. the Roy Castle Foundation to provide user
and carer input to the NSSG.
Data Collection – All trusts have signed up to a National data set but the
main issue is how to get data entered correctly. Look at data collection
within network. Look & Learn between sites. Allocated data person to visit
other trusts (‘friendly peer visits’)
Action: LB to contact James Withers (Data Liaison Manager at Public
Health England) to see what assistance is available.
Action: Amend Patient Representative section in Constitution.
Improving Outcomes – Improve Access to SABR & microwave ablation.
Locally provided services wherever possible.
Constitution Sign Off – With agreed changes the group approved the
Constitution for Thoracic Oncology.
Action: Make amendments and post final signed off version on website.
Site Specific Pathways
The National Optimal Cancer Pathway consultation paper had been
circulated with a deadline date for comments of 4th December 2015. Each
trust to review locally and feedback for consultation. AR felt it was not
ambitious enough and therefore, should be shelved until national pathway
sent out.
2WW Referral Forms
TH felt that the new 2WW guidelines were very vague and not that different
to the previous ones but welcomed any changes that makes the job easier.
2WW clinics getting bigger and as a network it is something that we should
be speaking to the Commissioners about. If bounced back to GP then not
getting the tariff but doing work. Chest x-ray reporting involves massive
workload and anything that can be done as a Network to ease this would be
of benefit.
LB said the South West 2WW Proforma has been presented to
commissioners and GP’s. There is a telephone session scheduled for 18th
December but not sure who is going to be involved in this.
Action: LB to clarify with Jonathan Miller at the Cancer Network
Manager’s meeting on 11th December.
LB
MC
LB/MC
LB
9.
9.1
9.2
9.3
Audits
Two oncology registrars at PHT currently carrying out audits.
Action: AR to ask for an update
Access to Stenting – CD suggested a network audit on access to stenting
which can make an End of Life difference to the patient. Stenting is
recommended in the NICE Guidelines. A Registrar will be appointed to do
reading and advise on standards
Action: CD to engage his Registrar to commence audit
EBUS Data – To agree standard way of doing live data entry. Working as a
Network the problems can be solved simply. SI has two scientists who can
do the audit and he will give them the names of all those in the region who
do EBUS. The audit will extend from Truro to Cheltenham and look at best
practice, sensitivity and how things are done.
Action: SI to engage scientists at RCHT to commence audit.
Thoracic NSSG Minutes 10.12.15 draft v0.1
AR
CD
SI
10.
10.1
10.2
10.3
10.4
10.5
Research/Clinical Trials
JC explained the clinical trial recruitment stats to the group. JC wants to look
at other sites and compare observational and interventional trials. She is
looking at NIHR adopted trials and clinical studies. Data is uploaded in
trusts by R&D departments and captured on EDGE. We are currently ranked
15th in the UK. A copy of the updated presentation is attached to the
minutes.
CANDID trial now looking at Lung Cancer and Bowel Cancer. Is developing
biobank. Was open in Plymouth for both but Lung stopped due to lack of
space in the chest clinic. Still pushing in Primary Care, can do in Secondary
Care.
Mesothelioma - PHT will be first site open – initially for 4 patients for Phase
2. Hoping to open Phase 3 which will allow recruitment of more patients.
Action: AR will keep all trusts up-dated about trial availability.
JC is to meet with Petra Jankowska, the Sub-Speacialty Research Lead for
Thoracic Oncology, to discuss future trials available.
Action: Send out JC’s presentation to the group with the Minutes.
Action: JC to email AR direct with any future trials that she thinks may be
of interest.
AR
MC
JC
11.
11.1
12.
Any Other Business
There was no other business to be discussed and the meeting was closed.
Date of Next Meeting
Dates of next year’s meetings are:Monday 9th May 2016, 2pm to 4pm at the Lifton Farm Shop
and
Tuesday 8th November 2016 at the Lifton Farm Shop.
Thoracic NSSG Minutes 10.12.15 draft v0.1
LB
APPENDIX A
Lung NSSG Attendance List - 10 December 2015
Surname
Hands
Devine
Meller
Roy
Howell
Daneshvar
Waine
Earl
Syred
Iles
Kneller
Pascoe
Toy
Froeschle
Whitehead
Pope
Tapp
Powari
O Donovan
Grenato
Dorey
Medley
Cook
Farn
Isaacs
Jankowska
Cunningham
Boylan
Chandler
Forename
Georgina
Carolyn
Mark
Amy
Tim
Cyrus
David
Sarah
Katherine
Stephen
Paul
Sue
Liz
Peter
Tom
Sandra
Sally
Manish
Elizabeth
Felice
Nicole
Louise
Jennifer
Debbie
John
Petra
Julie
Liz
Melanie
Org
ND
ND
ND
PHT
PHT
PHT
PHT
PHT
PHT
RCT
RCT
RCT
RDE
RDE
RDE
RDE
RDE
RDE
RDE
RDE
SD
SD
SD
SD
SD
TST
PCRN
PCN
PCN
Thoracic NSSG Minutes 10.12.15 draft v0.1
Job Title
Consultant
Clinical Nurse Specialist
Consultant Radiologist
Lead Cancer Clinician
Consultant in Respiratory Medicine
Consultant Respiratory Physician
Consultant Respiratory Physician
Clinical Nurse Specialist
Consultant Histopathologist
Lead Cancer Clinician
Clinical Nurse Specialist
Clinical Nurse Specialist
Lead Cancer Clinician
Lead Thoracic Surgeon
Lead Respiratory Physician
Clinical Nurse Specialist
Clinical Nurse Specialist
Consultant Histopathologist
Consultant Radiologist
Consultant Thoracic Surgeon
Lead Cancer Clinician
Consultant Medical Oncologist
Clinical Nurse Specialist
Clinical Nurse Specialist
Consultant Radiologist
Clinical Research subspecialty lead
Peninsula Research Delivery Manager
Peninsula Cancer Network Manager
Network Admin Support
10/12/2015
Present
Present
Apologies
Present
Present
Present
Apologies
Present
Apologies
Present
Apologies
Apologies
Apologies
Apologies
Apologies
Apologies
Apologies
Apologies
Apologies
Present
Present
Present