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Name:__________________________________
Myelomeningocele Program Intake Form
MRN:___________________________________
(To be completed at first visit only)
DOB:___________________________________
Visit Date:________________________________
Child’s Full Name: ___________________________________________________
Date of Birth:________________________________ Gender:
Male
This Section for Office Use Only
Place Patient Label Here
Female
Parent/Legal Guardian Name:__________________________________________
Home Phone:______________________________________ Work/Cell Phone:___________________________________________
Primary Care Physician:________________________________________________________________________________________
Please list names of any other Medical Specialists that this child is currently seeing at Riley or elsewhere:
1._________________________________________________
3.____________________________________________________
2._________________________________________________
4.____________________________________________________
Maternal Health and Birth History
1. Was the child? 
Premature

3. Was there a prenatal diagnosis made?
Yes
3. Was there a prenatal repair performed?

Late
Yes
No
No If Yes, where:___________________________________________
5. How many weeks was baby in the hospital after birth? __________________
Hospital or Birth Center _______________________________________________

Home
Other:________________________________________________________
7. Delivery Method:

Vaginal
C-Section
8. Did the mother have a difficult labor?

Yes
Breech

Stuck in birth canal
Cord around neck
Other:___________________________________________
Forceps
No___________________________________________________________
9. Did the infant experience any of the following problems at birth?

2. Length of Pregnancy:____________________ weeks
4. Did you meet with specialists prior to birth?
No
Yes
4. Birth Weight: _________________________
6. Location of Delivery: 

Full -Term
Bruising
Breathing Problems
Jaundice
Seizures
Difficulty feeding
Birth Defects
Infection
Brain/Ventricle Bleeding
Other:__________________________________________________________________________________________________________________
10. Mother’s Condition: # Pregnancies______________
11. Mother’s Age: ______________
# Live Births__________________
12. Father’s Age:______________
13. Mother’s Health Conditions During Pregnancy (check all that apply):

Vaginal Bleeding
Thyroid Problems
Cigarettes (# of packs per day:________)

#Miscarriages___________________
Premature Labor
Hypertension
Vomiting

Diabetes

Recurrent Infections
Alcohol (# of drinks per week:________)
Drug Exposure
Toxemia
STD
HIV
Preeclampsia
Other:_______________________________________________________________________________________
13. Stresses During Pregnancy (physical and/or emotional):____________________________________________________________
14. Please list any medications taken by mother before and/or during the pregnancy:
Folic Acid
Prenatal Vitamins
Prescription:______________________________________________________________________________________________
Other_______________________________________:____________________________________________________________
Reviewed by: _______________________________________________________
A
Date: __________________________________
Rev. 4/8/11
Myelomeningocele Program
History of Present Illness
Place Patient Label Here
Name:_____________________________________
Person Completing this Form:
Relationship to Patient: 

Foster Parent
Hosp#:_____________________________________
Mother 
Father 
Legal Guardian
Grandparent
DOB:______________________________________
Visit Date:__________________________________
Other:
This Section for Office Use Only
What are your main concerns today?
Clinician Notes
For Office Use Only
Specific Concerns (check all that apply)?

Behavior Issues
Refills/Medications
Diet/Nutrition/Feeding
G-tube
Bowel/Bladder
Shunt
Tether Cord
School
Growth/Development 
Wound/Skin
HPI: EPF: 1 – 3, D: 4, C: 4+
Location, Quality, Severity, Duration, Timing,
Context, Modifying facts, Other signs & symptoms
Chief
Complaint:______________________________
Equipment
Yes

No
G-tube

GJ
Would you like to talk to a Social Worker today?
Diet & Nutrition
1. How does your child feed? 

By Mouth
2. Name of Formula/Milk ________________________________________
3. How often does your child feed? ________________________________
4. How much formula/milk at each feeding? _________________________
5. Does your child drink anything else? _____________________________
6. What solids does your child eat?

Purees

Table foods
7. Does your child?

Cough

Refuse Feedings
Choke/Gag
8. Does your child spit up or vomit?
Never
Often
9. Does your child have textural difficulties with foods?
Every Meal
Yes
No
MEDICATIONS – PLEASE COMPLETE MEDICATION SHEET
______________________________________________________
___________________________________________________________
ALLERGIES
Does your child have any drug allergies? 
Yes 
No
If yes, please explain: _______________________________________
Latex Allergy:
Yes
No
Kcal/kg/day:
Precautions
CC/kg/day:
Are your child’s immunizations up to date?
Yes 
No 
Unsure
B
EQUIPMENT
Is your child using any of the following?
AFO’s
SMO’s
UCBL’s
Twister Cables
Walker
Wheelchair
Gait Trainer
KAFO’s
Name:__________________________________
HKAFO’s
Forearm Crutches
Visit Date:________________________________
Stander
Parapodium
This Section for Office Use Only
Place Patient Label Here
RGO
Other:______________________________________________________________________
Clinician Notes
For Office Use Only
SERVICES
1. Is your child currently receiving any of the following services?
 Occupational Therapy
 Physical Therapy
 Speech Therapy
 Behavioral Counseling
Developmental Therapy
Hippo Therapy
Aquatic Therapy
Nutritional Therapy
2. Is your child presently in any type of school?
Yes
No
Classroom Type: ___________________________________
School Name:
Grade:
Hours per Day:
3. Is there an IEP?
Days per Week:
Yes
No
4. Has psychoeducational tesing been performed?
5. Are there difficulties with:
Math
Yes
Reading
Writing
Science
Spelling
No
Other:__________________________________________________
Home Care Agency
1. Is your child currently receiving Home Care Services?
Supplies
Nursing
DME
Names:
_________________________________________________________
Mobility
1. Is your child mobile by:

Growth and Development
1. Is your child doing any of the following:
Crawl
Drag/Army Crawl 
Reach for Objects
Use Fork/Spoon
Bear Crawl
Scoot
Scribble
Use Single Words
Cruise
Roll
Use Two Words Together
Speak 2-3 Word Sentences
Assistive Devices
Walker
Recite ABC’s
Count
Stander
Forearm Crutches
Recognize Letters/Numbers
Stack Blocks
Manual Wheelchair
Power Wheelchair
Copy Circles/Squares
Write Letters/Numbers
Gait Trainer
RGO
Assist with Dressing
Assist with Personal Care
Independent with Dressing
Independent with Hygiene
Language
1. How does your child let you know what he/she wants?
Words
Eye Gaze
Facial Expressions
Crying
Pointing
Assistive Device
Reviewed by:__________________________________________________
C
Date:_______________________
Name:__________________________________
Myelomeningocele Program
Visit Date:________________________________
This Section for Office Use Only
Place Patient Label Here
Review of Systems
Please review each item as it relates to your child’s health.

Constitutional 
Gastrointestinal 
Negative



Problems sleeping
Anemia
Significant weight gain/loss
Recent fevers, chills or sweats
Other_________________________

Neurological 

Negative
Seizures or staring spells
Headaches
Dizziness/light-headedness
Numbness or tingling
Problems with concentration
Irritability
Other_________________________


Eyes 

Urinary and Bladder System 

Negative
Vision loss or concerns

Eyes crossing or lazy eye
Nystagmus (eyes bouncing)
Has your child had a vision test?

No  Yes If Yes, when?_________

Other_________________________
Musculoskeletal 
Respiratory 


Negative



Cardiovascular 
Skin 



Negative
Wheezing
Snoring or noisy breathing with sleep
Cough
Stridor
Tracheostomy
Cpap/Bipap
Oxygen
Apnea (Breathing Stops)
Reactive Airway/Asthma
Other_________________________
Pulmonologist

Negative
Negative
Eczema or rash
G tube site or NG tube irritation
Wounds
Birthmarks
Other_________________________
Endocrine 
Negative
Thyroid problems
Pubertal changes
Menses
 No  Yes If Yes, 1st period _________
Precocious puberty (premature puberty)
Growth hormone
Excessive sweating
Excessive thirst and urination
Feeling too hot or too cold
Other_________________________



Safety/Other 
Heart problems/Congenital Defect
Chest Pain
Murmur
Cardiac-Apnea Monitor
Other_________________________
Cardiologist

Negative
Muscle weakness
Tightness or stiffness in joints
Pain in neck, back, arms, legs
Muscle spasms or cramps
Scoliosis/curvature of spine
Joint pain or swelling
Broken bones
Receives Botox
Other_________________________

Hearing loss or concerns

Earache or discharge
Has your child had a hearing test?

No  Yes If Yes, when?________
Difficulty swallowing
Frequent or worsening choking/gag reflex
Drooling
Change in quality/pitch of voice
Does your child see a dentist?

No  Yes If Yes, when?________
Other________________________
Negative
History of bladder or kidney infections
Spontaneous void
Toilet Trained
Catheterization: How often?____________
Vesicostomy
Monti (Ileovesicostomy)
Mitroffanoff (Appendicovesicostomy)
Bladder Augmentation
Other_______________________

Ears/Nose/Throat 
Negative
Nausea and/or vomiting
Diarrhea, or constipation
Gastroesophageal reflux
Abdominal pain
G-tube/J-tube/GJ-tube
Enema/Suppository Use
MACE: Amount:____________ Frequency:___________
Other_______________________
Negative
How does your child travel in a car?

Forward Facing Car Seat
Rear Facing Car Seat
 Booster Seat
Seat Belt  Tethered wheelchair
Are there any smokers living in your home?

Yes  No
Do you have concerns about safety in your home?

Yes  No
 ALL OTHERS NEGATIVE
Reviewed by: ______________________________________________
D
Date: ______________________________
Name:________________________________
Myelomeningocele Program
Past Medical, Family, Social History
Visit Date:_____________________________
FIRST VISIT – PLEASE FILL OUT COMPLETELY
REPEAT VISIT – INDICATE ONLY CHANGES SINCE YOUR LAST VISIT
Past Medical History
This Section for Office Use Only
Place Patient Label Here
No Changes Since Last Visit dated _______________
Please check all that apply
Illnesses:
 Seizure Disorder
 Asthma
 Pneumonia
 Other Illnesses/Medical Conditions:____________________
Past Surgeries:
 Ear PE Tubes
 G Tube
 Tonsils Removed
 Nissen
 Adenoids Removed
 VP Shunt
 Other: __________________________________________
_____________________________________________________
_____________________________________________________
Other Hospitalizations: __________________________________________________________________________________________
___________________________________________________________________________________________________
Injuries/Fractures: ______________________________________________________________________________________________
Procedures and Tests (such as MRI, chromosomes):___________________________________________________________________
Social History
No changes Since Last Visit dated _______________
Patients Parents are:

Child Lives With: 
Both Parents

Married
Divorced
Mother

Other:_________________________________________
Separated
Father
Foster Parents
Other
# of others living in home:_________
# of Siblings:_______________ Ages and health of Siblings:__________________________________________________________
Mother Employed?

Yes
No
If yes, Occupation:____________________________________________________________
Father Employed?

Yes
No
If yes, Occupation:____________________________________________________________
Is the family currently receiving any of the following services?
Childcare Provided by:

Parents
Family Medical History

Relatives

WIC
SSI
Home Daycare
CSHSC

Medicaid Waiver
Babysitter/Nanny

Medicaid Disability
Daycare Center
No Changes Since Last Visit dated _______________
Please indicate any history of the following illnesses among the patients immediate family by checking the appropriate box.
Immediate family consists of parents, siblings, and grandparents only.





ADD/ADHD
Alcohol/Drug Abuse
Allergies/Asthma
Autism/Asperger/PDD
Cancer





Diabetes
Genetic Conditions
Growth Problems
Heart Disease
High Blood Pressure





Kidney Disease
Learning Problems
Liver Disease
Mental Illness




Cerebral Palsy
Seizures/Epilepsy
Mental Retardation
Neurological Disorder
Thyroid Problems
Other (please list): ___________________________________________________________________________________________
__________________________________________________________________________________________________________
Reviewed by: _______________________________________________
E
Date: _______________________________
Rev. 4/8/11
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