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Updated 26 March 2017
Birmingham Children's Hospital Annual Paediatric Dermatology Course: Web resources
http://www.bch.nhs.uk/sites/bch/files/paediatric_dermatology_list_of_web_resources.pdf
Comments and corrections please to [email protected]
Birmingham Children’s Hospital (BCH) dermatology resources
BCH Paediatric Dermatology http://www.bch.nhs.uk/clinical/dermatology
BCH EB http://www.bch.nhs.uk/story/epidermolysis-bullosa
BCH Tertiary email referrals: [email protected]
Paediatrics and transition
RCPCH-approved guidelines: http://www.rcpch.ac.uk/publications
RCPCH Growth charts: www.growthcharts.rcpch.ac.uk
Patient experience: http://www.healthtalk.org/peoples-experiences/skin-conditions
Paediatric prescribing
BNFc online: www.evidence.nhs.uk/formulary/bnfc/current
British Society for Paediatric Rheumatology (BSPAR) guidelines for systemic therapy:
 for prescribers:http://www.rheumatology.org.uk/bspar/guidelines/default.aspx
 for patients and parents: http://www.rheumatology.org.uk/bspar/patient_and_parents/default.aspx
Vitamin D guideline: https://cks.nice.org.uk/vitamin-d-deficiency-in-children
Scores
Dermatology Quality of Life scores: http://sites.cardiff.ac.uk/dermatology/quality-of-life/
POEM: https://www.nottingham.ac.uk/research/groups/cebd/resources/poem.aspx
EASI score calculator for pc: https://www.easiscore.com/
PASI score calculator for pc: http://www.pasitraining.com/calculator/step_1.php
Birmingham EB Severity (BEBS) score: http://www.bch.nhs.uk/node/12584
Eczema
Nottingham resources: https://www.nottingham.ac.uk/research/groups/cebd/resources/index.aspx
Nottingham eczema stories:
https://www.nottingham.ac.uk/research/groups/cebd/resources/psychology-and-eczema.aspx
BCH Eczema treatment video: http://www.bch.nhs.uk/story/information-video-parents-children-eczema
National Eczema Society: www.eczema.org/
NICE Atopic Eczema in Under 12s: www.nice.org.uk/guidance/CG57
NICE Food Allergy www.nice.org.uk/guidance/CG116
NICE Tacrolimus and pimecrolimus for Atopic Eczema: www.nice.org.uk/TA082guidance
HIV and tropical infections
Useful consultant contact: [email protected]
Cutaneous and mucosal Leishmaniasis treatment:
http://onlinelibrary.wiley.com/doi/10.1111/jtm.12089/epdf
BHIVA HIV testing guidelines http://www.chiva.org.uk/
Genetics
Glossary of genetic terms: http://www.genetics.edu.au/Publications-and-Resources/glossary-1
https://www.genomicseducation.hee.nhs.uk/ Excellent educational resource
www.ncbi.nlm.nih.gov/omim/ Catalogue of all Mendelian conditions and known genes
http://www.ncbi.nlm.nih.gov/books/NBK1116/ Comprehensive, up to date information about genetic
conditions.
www.bsgm.org.uk Website for the British society for Genetic Medicine with useful links.
Updated 26 March 2017
www.orpha.net Information on rare diseases and availability of genetic (DNA) tests in UK and Europe
www.rarechromo.org Website for “Unique” support group. Information for all chromosome disorders
(rare and common)
www.ukgtn.nhs.uk UK Genetic Testing Network - catalogue of labs and tests commissioned by NHSE
www.ddduk.org “Deciphering Developmental Disorders”. National study, now closed, but website is
useful.
www.lmdatabases.com London Dysmorphology database information
www.genomicsengland.co.uk/the-100000-genomes-project 100,000 Genomes Project
http://www.youtube.com/watch?v=K9HvnRJT-8A Gene therapy for leber congenital amaurosis
Patient support groups (PSGs) with information for professionals and patients
Directory of all UK PSGs: www.cafamily.org.uk/
Directory of UK dermatology PSGs: http://www.bad.org.uk/for-the-public/patient-support-groups
Neurofibromatosis: https://www.nfauk.org/resources/knowledge-hub/nf1-knowledge-hub/
Tuberous Sclerosis www.tuberous-sclerosis.org/
Xeroderma Pigmentosum Support Group xpsupportgroup.org.uk/
Ectodermal Dysplasia Support Group www.ectodermaldysplasia.org/
Ichthyosis Support Group www.ichthyosis.org.uk/
Debra UK: https://www.debra.org.uk/information-and-publications/information-and-publications
Debra International: www.debra-international.org/homepage.html
Basic Life Support (BLS)
https://www.resus.org.uk/resuscitation-guidelines/
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